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Newborn Screening Quality Improvement Committee
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA, HRSA
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NICHD
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This committee seeks to improve the quality of newborn screening.
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Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs) Steering Committee
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Committee, Work group, Advisory group, or Task Force
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HRSA
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NICHD
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Steering committee for the Newborn Screening Technical Assistance and Evaluation Program (NEWSteps). NEWSteps is a cooperative agreement related to newborn screening that the Health Resources and Services Administration funds.
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NEWSteps Steering Committee
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Committee, Work group, Advisory group, or Task Force
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HRSA
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NICHD
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This steering committee supports the mission of NEWSteps which is to achieve the highest quality for newborn screening systems by providing relevant, accurate tools and resources and to facilitate collaboration between state programs and other newborn screening partners.
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NEXT Generation Health study
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Research Initiative
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HRSA
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NICHD
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NEXT is a 7-year longitudinal assessment of a representative sample of U.S. adolescent and young adults, starting when they are in the 10th grade. The goals of the NEXT longitudinal study include: to identify the trajectory of adolescent health status and health behaviors from mid-adolescence through the post high school years; to examine individual predictors of the onset of key adolescent risk behaviors and risk indicators during this period; to identify genetic, personal, family, school, and social/environmental factors that provide or sustain positive health behaviors; to identify transition points in health risk and risk behaviors and changes in family, school, and social/environmental precursors to these transitions, and to examine the role of potential gene-environment interactions in the development of health status and health behaviors.
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NHLBI Federal COPD Workshop
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Committee, Work group, Advisory group, or Task Force
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ACL, CDC, CMS, FDA, HRSA, IHS
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NHLBI, NCCIH
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The Senate Appropriations Committee in FY2012 encouraged the National Heart, Lung and Blood Institute (NHLBI) "to work with community stake-holders and other Federal Agencies, including CDC, to develop a national action plan to respond to the growing burden of this disease." In response to this congressional encouragement, NHLBI hosted in Bethesda, Maryland, on May 3, 2013, a forum of representatives from Federal Agencies and Institutes to share information about current activities related to Chronic Obstructive Pulmonary Disease (COPD) and discuss opportunities for further cooperation and enhanced effectiveness of the Federal response to this serious public health problem.
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NIAID Universal Influenza Vaccine Working Group
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Committee, Work group, Advisory group, or Task Force
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CDC, OS
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NIAID
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HHS Working group established to facilitate the development of universal influenza vaccines and move them toward clinical trials.
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NIAID-CDC Joint U.S. Partnership Implementing TB Elimination Research (JUPITER)
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Committee, Work group, Advisory group, or Task Force
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CDC
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NIAID
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Through weekly teleconferences, the Joint U.S. Partnership Implementing TB Elimination Research (JUPITER) facilitates cooperation, communication, and collaboration on tuberculosis between the National Institute of Allergy and Infectious Diseases (NIAID) and the Centers for Disease Control and Prevention (CDC). This approach helps ensure that Federal activities are coordinated and not duplicated, and stimulates collaborations where appropriate.
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NIAID/CDC Dual Use Research of Concern (DURC) Risk Mitigation Reviews
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Other
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CDC
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NIAID
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The Centers for Disease Control and Prevention (CDC) Division of Select Agents and Toxins Division will provide technical assistance in evaluating the sufficiency of the biosecurity and/or biosafety measures incorporated into risk mitigation plans received from institutions, and cross-check risk mitigation plans and research conducted using select agents and toxins against information in the Federal Select Agent Program (FSAP) database.
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NIAID/CDC Select Agents Laboratory Inspections
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Other
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CDC
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NIAID
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The Centers for Disease Control and Prevention (CDC) Division of Select Agents and Toxins laboratory inspectors visit foreign National Institute of Allergy and Infectious Diseases (NIAID) grantees on behalf of NIAID to ensure that foreign select agents laboratories follow safety, security, and training standards comparable to those for U.S. institutions.
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NICHD Data Archiving and Specimen Hub (DASH) committee
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Committee, Work group, Advisory group, or Task Force
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CDC, HRSA
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NICHD
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The NICHD Director will consult the NICHD DASH Committee composed of NICHD staff with the appropriate policy knowledge. The Committee will provide oversight over the management and performance of NICHD DASH. Specialized sub-committees related to data submission, data access (such as the Data Access Committee), and quality control will report to the DASH Committee. In order to maintain policies consistent with evolving technological and ethical considerations, the NICHD Director will solicit, on an as needed basis, recommendations on the NICHD DASH Policy Statement from external experts representing public and scientific stakeholders through the NICHD Council. The NICHD DASH Committee will establish and maintain operating policies and procedures for NICHD DASH to address issues including, but not limited to: • Privacy and confidentiality of research participants, • Interests of individuals and groups, • Data submission procedures, • Data access and use procedures, and • Data security mechanisms based on the content and level of risk.
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