Title Collaboration Type HHS Participating Agencies NIH Participating Institutes, Centers, and Offices Description
Know Stroke in the Community Public Education Campaign CDC NINDS The NINDS developed the Know Stroke campaign to help educate the public about the symptoms of stroke and the importance of getting to the hospital quickly. The campaign includes outreach to consumers and health care professionals using mass media, grassroots outreach, partnerships, and community education.
Lesbians, Gay, Bisexuals, and Transgender (LGBT) Coordinating Committee Committee, Work group, Advisory group, or Task Force ACF, AoA, AHRQ, CDC, CMS, FDA, HRSA, IHS, OS, SAMHSA NICHD, OD This committee includes senior representatives from each operating division to ensure coordination of and inclusion for LGBT populations throughout the Department''s activities.
Linking Cardiovascular Health Study Data to CMS Data Resource Development CMS NHLBI The Cardiovascular Health Study is a population-based, longitudinal study of risk factors for development and progression of cardiovascular disease and stroke in elderly adults. Participant data from the NHLBI Cardiovascular Health Study is being linked to Medicare data to allow researchers to investigate the utilization and costs of medical services within the Medicare Program. CMS is providing the Medicare claims data to NHLBI for this purpose at no cost.
Linking Atherosclerosis Risk in Communities (ARIC) Data to CMS Data Research Initiative CMS NHLBI The ARIC study, which began in 1985, seeks to 1) monitor trends in the incidence and mortality of coronary heart disease and heart failure through a surveillance program in four communities and 2) assess determinants in development and progression of subclinical and clinical cardiovascular disease (CVD) through a cohort follow-up study of 15,796 white and African American persons aged 45-64 at baseline. Since 2005, CMS data has been provided through an interagency agreement. The data is being used to validate and capture all the heart failure cases in persons aged 65 and older in the ARIC cohorts and to validate and capture morbidity and mortality status of these individuals. In addition, CMS data are being used to enhance ARIC CVD outcomes research by enabling researchers to study determinants related to medical care access, quality, cost, and outcomes. Conference calls are conducted among staff of the study, the CMS, and the NHLBI to discuss the data availability, confidentiality, quality, distribution, and to identify research opportunities.
Linking Framingham Heart Study Data to CMS Data Resource Development CMS NHLBI The Framingham Heart study is a longitudinal study of factors influencing the development of cardiovascular disease. Participant data from the NHLBI-funded Framingham Heart Study is being linked to Medicare data to allow researchers to investigate the utilization and costs of medical services within the Medicare program. CMS is providing the Medicare claims data to NHLBI for this purpose at no cost.
Linking Jackson Heart Study Data to CMS Data Resource Development CMS NHLBI The Jackson Heart Study is an epidemiologic study of cardiovascular disease in blacks in Jackson, Mississippi. The purpose of the collaborative activity is to obtain services and expertise in acquisition and use of Medicare claims data for participants enrolled in the Jackson Heart Study (JHS). Combining the detailed clinical and epidemiological data of the JHS with the Medicare claims data will allow (1) assessment of major events (hospitalizations, stroke, MI) for participants lost to follow-up, (2) validation of selected outcomes reported by participants, and (3) expansion of the JHS research agenda to address questions related to resource use among elderly JHS participants that could not be addressed using the JHS data or Medicare claims data alone.
Linking Multi-Ethnic Study of Atherosclerosis Data to CMS Data Resource Development CMS NHLBI The Multi-Ethnic Study of Atherosclerosis (MESA) is investigating the prevalence, correlates, and progression of subclinical cardiovascular disease in a multi-ethnic cohort. Participant data from the MESA cohort is being linked to Medicare data to allow researchers to identify clinical outcomes and to investigate the utilization and costs of medical services within the Medicare Program.
Linking Women''s Health Initiative Data to CMS Data Resource Development CMS NHLBI, NCI, NIA, NIAMS, OD The Women''s Health Initiative was a study of cardiovascular disease, cancer, and osteoporosis in postmenopausal women. Participant data from the NHLBI Women''s Health Initiative cohort is being linked to Medicare data to allow researchers to identify clinical outcomes and to investigate the utilization and costs of medical services within the Medicare Program.
Logical Observation Identifiers Names and Codes (LOINC) Resource Development AHRQ, CDC, CMS, HRSA, IHS, OS NLM This activity supports the maintenance, distribution, and continued development of LOINC®, a set of universal codes and names to identify laboratory and other clinical observations which facilitates the exchange and pooling of clinical results for clinical care, outcomes management, and research. The Regenstrief Institute, Inc., an internationally renowned healthcare and informatics research organization, maintains the LOINC database and supporting documentation, and the RELMA mapping program.
Long-term Oxygen Treatment Trial Research Initiative CMS NHLBI The Long-term Oxygen Treatment Trial is a randomized controlled clinical trial to assess the efficacy of around-the-clock, supplemental oxygen therapy in subjects with chronic obstructive pulmonary disease and moderately severe hypoxemia. NHLBI will administer and oversee the study, and Medicare will cover the costs of items and medical services that are generally available through that program to beneficiaries enrolled in the trial.