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Surveillance, Epidemiology and End Results (SEER) - Medicare Database
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Resource Development
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CMS
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NCI
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The Surveillance, Epidemiology, and End Results (SEER) - Medicare Database data are a unique resource that can be used for research related to the health care provided to persons with cancer. The database results from the linkage of two large population-based data sources: the SEER cancer registries data and Medicare enrollment and claims files.
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Surveillance, Epidemiology, and End Results (SEER) Program
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Resource Development
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CDC
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NCI
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The Surveillance, Epidemiology, and End Results (SEER) program is the premier source for cancer statistics in the US. It collects information on incidence, prevalence, and survival from specific geographic areas representing 26 percent of the US population. Through SEER, the National Cancer Institute (NCI) develops reports on all of these information areas plus cancer mortality for the entire country. The site is intended for anyone interested in US cancer statistics or cancer surveillance methods.
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Synthetic DNA Working Group
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Committee, Work group, Advisory group, or Task Force
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CDC, OS
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OD/OSP
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Re-examining and updating (if necessary) the Screening Framework Guidance for Providers of Synthetic Double-Stranded DNA, which was released in 2010.
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Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)
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Resource Development
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AHRQ, CDC, CMS, FDA, HRSA, IHS, OS, SAMHSA
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NLM
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This activity provides support for SNOMED CT, a systematically organized computer processable collection of medical terminology covering most areas of clinical information such as diseases, findings, procedures, microorganisms, pharmaceuticals, etc. It allows a consistent way to index, store, retrieve, and aggregate clinical data across specialties and sites of care. It also helps to organize the content of medical records, reducing the variability in the way data is captured, encoded and used for clinical care of patients and research.
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Task Force for Combating Antibiotic-Resistant Bacteria (CARB)
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Committee, Work group, Advisory group, or Task Force
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AHRQ, BARDA, CDC, CMS, FDA, HRSA
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NIAID
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Established by Executive Order 13676, the Task Force facilitates implementation of the CARB Action Plan and provides progress reports and quarterly updates describing key achievements. The Task Force is an internal government committee comprised of federal representatives and co-chaired by the Secretaries of Defense, Agriculture, and HHS.
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Task Force on Research Specific to Pregnant Women and Lactating Women (PRGLAC)
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CDC, FDA, HRSA, OS
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NICHD, NCATS, NHLBI, NIAID, NIDDK, NIMH, OD/DPCPSI/ORWH
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The 21st Century Cures Act established PRGLAC to advise the Secretary of Health and Human Services (HHS) regarding gaps in knowledge and research on safe and effective therapies for pregnant women and lactating women. PRGLAC is tasked with identifying these gaps and will report its findings back to the Secretary. In addition to providing advice and guidance to the Secretary, the Task Force will prepare and submit to the Secretary and Congress a report that includes each of the following:
a plan to identify and address gaps in knowledge and research regarding safe and effective therapies for pregnant women and lactating women, including the development of such therapies; ethical issues surrounding the inclusion of pregnant women and lactating women in clinical research; effective communication strategies with healthcare providers and the public on information relevant to pregnant women and lactating women; and recommendations to improve the development of safe and effective therapies for pregnant women and lactating women. The report will also include identification of Federal activities, including the state of research on pregnancy and lactation; recommendations for the coordination of, and collaboration on research related to pregnant women and lactating women; dissemination of research findings and information relevant to pregnant women and lactating women to providers and the public; and existing Federal efforts and programs to improve the scientific understanding of the health impacts on pregnant women, lactating women, and related birth and pediatric outcomes, including with respect to pharmacokinetics, pharmacodynamics, and toxicities.
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Task Force to Develop Best Practices for Trauma-Informed Identification, Referral, and Support
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Committee, Work group, Advisory group, or Task Force
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SAMHSA
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NIMH
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H.R.6-SUPPORT for Patients and Communities Act, Section 7132, establishes an Interagency Task Force on Trauma-Informed Care, chaired by the Substance Abuse and Mental Health Services Administration (SAMHSA), to identify, evaluate, and make recommendations regarding (1) best practices for children and their families who have or are at risk of experiencing trauma, and (2) ways in which federal agencies can better coordinate to improve the response to those affected by substance use disorders and other forms of trauma. The National Institutes of Health (NIH) is one of a number of federal agencies on the task force.
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Technical and Clinical Consultation to Indian Health Service in Kidney Disease
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Other
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IHS
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NIDDK
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A National Institute of Diabetes and Digestive and Kidney Diseases senior staff member serves as Chief Clinical Consultant for Nephrology for the Indian Health Service.
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Technical Consultation on Viral Hepatitis (HCV) Infection in Young Injection Drug Users
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Meeting/ Workshop
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CDC, OS, SAMHSA
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NIDA, NIAID, NIDDK
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This collaboration brings Federal and non-Federal clinician/researchers from academia, state public health departments, and communities together to present and discuss current research and other information on an emerging epidemic of viral hepatitis (HCV) infection in the 15-30 year group of Injection Drug Users (IDUs).
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Technical Expert Panel on Pharmacologic and Nonpharmacologic Treatments for Posttraumatic Stress Disorder: Groundwork for a Publicly Available Repository of Randomized Controlled Trials
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Committee, Work group, Advisory group, or Task Force
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AHRQ
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NIMH
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The purpose of this project is to identify and abstract data from randomized controlled trials (RCTs) of posttraumatic stress disorder (PTSD) interventions, to support the development of a publicly accessible data repository by the Veterans Affairs'' National Center for Posttraumatic Stress Disorder.
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