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Collaboration with the CDC-funded Childhood Obesity Research Demonstration (CORD) Project
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Meeting/ Workshop
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CDC
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NHLBI, NICHD, OD/DPCPSI/OBSSR
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The NIH is collaborating with Childhood Obesity Research Demonstration (CORD) project officers to 1) develop a symposium proposal for the Obesity Society (TOS) annual meeting coming up in November 2013 and 2) to discuss Childhood Obesity Research and the NHLBI/NICHD/OBSSR funded study- COPTR (childhood obesity prevention and treatment research). The proposal for the TOS meeting, developed by COPTR and CORD (NHLBI and CDC staff) is for a collaborative symposium on childhood obesity research with the goal of advancing health and well being of America’s children.
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Collaboration with the Center for Emergency Medical Research
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Other
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OS
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NICHD, NINDS
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Consultant to Research Subcommittee for needs of children in disasters, surge capacity, and some consultative efforts on specific problems/conditions/diseases in disaster preparedness. The Office of Coordination of emergency research was officially formed as a result of this subcommittee. The committee didn''t have regular meetings in FY2012, but the members still interacted during the year. Staff from NICHD are frequently asked to interact with the newly formed office.
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Collaborative Islet Transplant Registry Ad Hoc Scientific Advisory Committee
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Meeting/ Workshop
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FDA, HRSA
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NIAID
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This committee provides scientific direction to the Registry on an ad hoc basis.
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Collaborative Pediatric Critical Care Research Network (CPCCRN)
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Other
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HRSA
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NICHD
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The goal of the Collaborative Pediatric Critical Care Research Network (CPCCRN) is to develop an infrastructure to have well-designed collaborative clinical trials and meaningful descriptive studies in pediatric critical care medicine. The Network seeks to reduce morbidity and mortality in pediatric critical illness and injury, and to provide a framework for the development of the scientific basis of pediatric critical care practice.
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Collection and Characterization of HIV Variant Strains in Cameroon for an HIV Panels Project
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Research Initiative
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FDA
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NIAID
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Funding is being requested to continue research at the FDA lab on the global viral panels project to analyze multiple, diverse isolates from different parts of the world. This activity is part of NIAID’s ongoing efforts to develop a well characterized repository for diagnostics, drug, and vaccine studies.
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Committee to review National Institute for Occupational Safety and Health (NIOSH) decisions on special exposure cohorts
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Other
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OS
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NCI
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NCI was a panel member for administrative review of National Institute for Occupational Safety and Health (NIOSH) decisions to create special exposure cohorts in response to claimants.
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Common Data Elements (CDE) for Patient-Centered Outcomes Research
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Resource Development
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OS
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NLM, CC, CIT, NCATS, NCI, NEI, NHGRI, NHLBI, NIA, NIAID, NIAMS, NICHD, NIDA, NIDDK, NIEHS, NIMH, NINDS, NINR, OD/OER
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This project is related to development of a repository and search tool for identification of Common Data Elements (CDE) for Patient-Centered Outcomes Research. Led by NLM, a work-group of the Trans-NIH BioMedical Informatics Coordinating Committee (BMIC) and others are working to promote data sharing and reuse and use of electronic health record (EHR)- derived data among the PCOR community supported by NIH and other Federal organizations. Work has produced a portal of NIH projects that use CDEs and, with the assistance of funding to develop data infrastructure to promote patient-centered outcomes research (OS PCOR Trust Fund), will contribute to development of a search, retrieval, and repository mechanism that will support and reflect the standards work of the S&I Framework Structured Data Capture Initiative.
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Community Health Worker Initiative
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Public Education Campaign
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HRSA, IHS
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NHLBI
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The Community Health Worker (CHW) Initiative supports activities to reduce disparities in cardiovascular risk factors and asthma in African American, Latino, American Indian, and Filipino population groups. The project uses formative research (literature reviews, focus groups, and workshops) to inform the development and implementation of approaches that integrate CHW activities into the broader health workforce to improve cardiovascular health and reduce asthma disparities.
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Community Participation in Research (R01)
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Research Initiative
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CDC
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NICHD, NCI, NHLBI, NIAAA, NIDA, NIDCD, NIDCR, NIEHS, NINR
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Solicit grant applications that propose intervention research on health promotion, disease prevention, and health disparities that communities and researchers jointly conduct.
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Comparative Effectiveness Research Coordinating Committee
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CMS, FDA
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OD/OSP, CC, CSR, NCATS, NCCAM, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIMH, NIMHD, NINDS, NINR, NLM, OD/DPCPSI/OBSSR, OD/DPCPSI/ODP
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The NIH Comparative Effectiveness Research Coordinating Committee (CER CC) was established in 2008 at the request of the NIH Director. Its members include NIH Institute and Center (IC) Directors and high level senior staff. Its charge is to coordinate ongoing CER initiatives across the agency, develop a long term research vision for CER, implement collaborative initiatives with sister agencies, determine appropriate definitions, policies and guidance relative to CER, administer the CER funds awarded through the American Recovery & Reinvestment Act (ARRA), and track the outcomes of those projects. The CER CC has organized meetings with AHRQ, CMS, the VA, FDA and Office of the National Coordinator for Health Information Technology to discuss potential strategic collaborations.
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