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Newborn Screening Coding and Terminology Guide
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Resource Development
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CDC, HRSA, OS
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NLM, NHGRI, NHLBI, NICHD
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This ongoing collaboration develops, supplements and publicizes a free online resource with guidance to help promote efficient electronic exchange of standardized newborn screening data. Related efforts include: studying the screening process for diseases including severe combined immunodeficiency (SCID), lysosomal storage disorders (LSDs), and critical congenital heart disease (CCHD), and developing standard codes for ordering and reporting the results of newborn screening for SCID, CCHD, and other conditions added to the Uniform Recommended Screening Panel by the Secretary''s Advisory Committee on Heritable Disorders in Newborns and Children.
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Newborn Screening Committee
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Other
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CDC, HRSA
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NICHD, NHLBI, NLM
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The NIH, HRSA, CDC, the American College of Medical Genetics and the Genetic Alliance meet monthly, in person or online, to discuss and coordinate current activities and initiatives in newborn screening. Topics include the activities of the Newborn Screening Translational Research Network Coordinating Center, the Clearinghouse for Newborn Screening information, Sickle Cell Screening Programs, the CDC Quality Control program for Newborn Screening, and the Regional Newborn Screening Collaboratives.
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NEWSteps Steering Committee
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Other
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HRSA
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NICHD
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Steering committee for NEWSteps. NEWSteps is a cooperative agreement related to newborn screening that HRSA funds.
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NEXT Generation Health Study - Health Behavior in School-Age Children
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Research Initiative
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HRSA
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OD/OSP, NCI, NHLBI, NIAAA, NICHD
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NEXT is a 7-year longitudinal assessment of a representative sample of U.S. adolescent and young adults, starting when they are in the 10th grade. The goals of the NEXT longitudinal study include: to identify the trajectory of adolescent health status and health behaviors from mid-adolescence through the post high school years; to examine individual predictors of the onset of key adolescent risk behaviors and risk indicators during this period; to identify genetic, personal, family, school, and social/environmental factors that provide or sustain positive health behaviors; to identify transition points in health risk and risk behaviors and changes in family, school, and social/environmental precursors to these transitions, and to examine the role of potential gene-environment interactions in the development of health status and health behaviors.
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Next-Generation DNA Sequencing as a Tool for Clinical Decision-Making in Cancer Patient Management
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Meeting/ Workshop
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FDA
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NCI
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This NCI-sponsored meeting brought together scientists, patient advocates and clinicians from academia, medical centers, industry and government to discuss the translation of this new technology into clinical tests useful for cancer diagnosis and treatment choices.
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NIAID International Tuberculosis (TB) Working Group
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Other
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AHRQ, CDC, FDA, IHS, OS
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NIAID, FIC, NHLBI, NICHD, NIDA
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The Working Group focuses on coordinating Tuberculosis (TB) research, which includes studies to characterize drug resistance; the identification, preclinical development and clinical evaluation of new drugs, diagnostics, and vaccines; and studies of the epidemiology and transmission of TB, including research addressing HIV/TB co-infection and TB in high-risk populations.
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NIAID-CDC Joint U.S. Partnership Implementing Tuberculosis (TB) Elimination Research (JUPITER)
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Meeting/ Workshop
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CDC
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NIAID
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Through weekly teleconferences, Joint U.S. Partnership Implementing Tuberculosis (TB) Elimination Research (JUPITER) facilitates cooperation, communication, and collaboration on tuberculosis among these government entities. This approach helps ensure that federal diabetes activities are coordinated and not duplicated, and stimulates collaborations where appropriate.
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NICHD Health Equity Seminar Series: Jackson Heart Study Kids (JHS Kids): Lessons Learned Engaging Children and Families
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Meeting/ Workshop
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OS
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NICHD
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Jackson Heart Study Kids (JHS Kids) is a feasibility study that enrolls children and grandchildren of participants who took part or are taking part in the JHS, the largest study of heart disease risk factors among African Americans in Jackson, Mississippi. Investigators identify early life risk factors (environmental and hereditary) for obesity and heart disease to inform the design of appropriate early intervention and prevention strategies. Speakers shared their experiences with engaging families in this effort.
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NIH and US Food and Drug Administration On-line Courses: The Science of Sex and Gender in Human Health
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Training Initiative
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FDA
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NIDA, NCI, NINR, OD/DPCPSI/ORWH
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This is an online series of courses that was designed to create a permanent foundation for sex and gender accountability in medical research and treatment by enabling researchers, clinicians, and students in the health professions to integrate knowledge of sex and gender differences and similarities into their research and practice.
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NIH Guide for Grants and Contracts
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Resource Development
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AHRQ, CDC, FDA
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OD/OER, CIT, CSR
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The NIH Guide for Grants and Contracts is the official publication for NIH medical and behavioral grant policies, guidelines and funding opportunities, and is used by other HHS Agencies to disseminate FOAs to its 50,000 subscribers.
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