| State of the Science in Transfusion Medicine Symposium |
Committee, Work group, Advisory group, or Task Force |
OASH |
NHLBI |
On August 29-30, 2022, the National Heart, Lung, and Blood Institute (NHLBI), National Institutes of Health (NIH), and the Office of the Assistant Secretary for Health (OASH), Department of Health and Human Services (DHHS) held a virtual transfusion medicine (TM) research symposium. In advance of the symposium, six multidisciplinary working groups (WG) convened to define research priorities in the following topic areas: blood donors and the supply, optimizing transfusion outcomes for recipients, emerging infections, mechanistic aspects of components and transfusion, new computational methods in transfusion science, and the impact of health disparities on donors and recipients. The objective was to identify key basic, translational, and clinical research questions, that if addressed over the next decade, will increase and diversify the volunteer blood donor pool, help ensure safe and effective transfusion strategies for all blood recipients, and identify which blood products from which donors best meet the clinical needs of specific recipient populations. |
| Steering Committee of the Scientific Interest Group in Glycobiology |
Committee, Work group, Advisory group, or Task Force |
FDA |
NCI, NHGRI, NHLBI, NIAID, NIDCR, NIDDK |
The Steering Committee of the Scientific Interest Group in Glycobiology (GlycoSIG) is comprised of National Institutes of Health (NIH) intramural scientists and program staff as well researchers from the Food and Drug Administration (FDA) and the National Institute of Standards and Technology (NIST). The committee organizes a seminar series; an annual NIH/FDA Glycosciences Research Day Meeting (averaging 250 people in attendance); and a Mentoring & Networking Luncheon for graduate students and postdoctoral fellows to meet with staff from federal agencies and learn about NIH extramural programs. The Committee also offers a Special Topics in the Glycosciences Course every other year. In addition, the GlycoSIG maintains an email list serve to distribute information on meetings, jobs, funding opportunities, and seminars. The SIG cross posts with other NIH SIG’s that share interests. |
| Substance-exposed Pregnancies workgroup |
Committee, Work group, Advisory group, or Task Force |
ASPE, ACF, ACL, AHRQ, CDC, FDA, HRSA, SAMHSA |
NIDA, OD/ECHO |
Share information re: Substance use disorders, illness in children, current research, and future plans. |
| Sudden Unexpected Infant Death and Sudden Death in the Young Case Registry |
Research Initiative |
CDC |
NHLBI, NINDS |
Sudden Death in the Young (SDY), those under 20 years of age, is a tragic event with longstanding impact on families and communities. Although the causes of SDY are myriad, sudden unexpected infant death (SUID), sudden cardiac death and sudden unexpected death in epilepsy (SUDEP) are three examples that have inspired public health efforts at prevention. The Sudden Unexpected Infant Death (SUID) and SDY Case Registry is a collaboration between the National Institutes of Health (NHLBI and NINDS) and the Centers for Disease Control and Prevention. |
| Supply Chain Risk Management (SCRM) Program |
Committee, Work group, Advisory group, or Task Force |
ASPR, ONS, CDC, CMS, FDA |
OD/OM, OD/OM/OALM |
HHS E-SCRM protects the Department's internal supply chain concerning threats posed towards the lifecycle of mission-critical products, materials, services used by the OPDIVS and STAFFDIVS through the identification, assessment, and mitigation of threats. OD/OM/OALM collaborates with HHS/ASPR/OSVP to conduct classified and unclassified analyses of threats and vulnerabilities called SCARs and HHS/ONS for the FOCI touchpoints. |
| Support for Implementation of Agency Public Access Policies |
Resource Development |
ACL, AHRQ, ASPR, CDC, FDA |
NLM, OD/OSP |
The National Library of Medicine (NLM) collaborates with other federal agencies to provide free public access through NLM’s PubMed Central digital archive to peer-reviewed publications resulting from agency-funded research. These agencies include five divisions and offices in HHS and four agencies outside HHS. Interagency agreements (IAAs) have been signed with the Agency for Healthcare Research and Quality (AHRQ), Administration for Strategic Preparedness and Response, CDC, FDA, and Administration for Community Living within HHS, as well as with the National Institute of Standards and Technology, Department of Veterans Affairs (VA), EPA, and Department of Homeland Security. IAAs with VA and AHRQ have also been extended to support the inclusion of non-journal literature in NLM’s Bookshelf resource. NLM has also agreed to manuscript redistribution terms with the National Oceanic and Atmospheric Administration and Department of Defense to streamline public access compliance across the federal government. https://www.ncbi.nlm.nih.gov/pmc/about/public-access-info |
| Supporting Early Psychosis Research and Implementation and Other Cross-Agency Common Interests |
Research Initiative |
ASPE, OS |
NIMH |
The National Institute of Mental Health (NIMH) supports research on the delivery of evidence-based early psychosis care, including facilitating the implementation of evidence-based coordinated specialty care (CSC) for early psychosis. Collaborators from NIMH and the Department of Health and Human Services (HHS) Office of the Secretary (OS) and the Office of the Assistant Secretary for Planning and Evaluation (ASPE) meet on a regular basis to inform each other's research agenda on early psychosis care generally and CSC specifically, identify synergies in research initiatives and formulate new research initiatives, and share related draft reports and funding opportunity announcements for comment. |
| Surveillance, Epidemiology, and End Results (SEER) Program |
Resource Development |
CDC |
NCI |
The Surveillance, Epidemiology, and End Results (SEER) program is the premier source for cancer statistics in the US. It collects information on incidence, prevalence, and survival from specific geographic areas representing 48 percent of the US population. Through SEER, NCI develops reports on all of these information areas plus cancer mortality for the entire country. The site is intended for anyone interested in US cancer statistics or cancer surveillance methods. |
| Sustainability and the Dietary Guidelines for Americans Subcommittee (ICHNR) |
Committee, Work group, Advisory group, or Task Force |
IOS/ODPHP |
OD/DPCPSI/ONR |
This subcommittee of the ICHNR focuses on the incorporation of sustainable practices (including agriculture and climate change) in the development process for the Dietary Guidelines for Americans (DGA). This group will develop an RFI in order to obtain public input on these practices for including sustainability in the review process for the DGA. |
| Systematic Evidence Review of Trauma Informed Care (TIC) |
Research Initiative |
AHRQ |
NIMH |
This project, a collaboration between the National Institute of Mental Health (NIMH) and the Agency for Healthcare Research and Quality (AHRQ) will aim to review the effectiveness of trauma-informed care in improving patient care and outcomes. |