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National Academies Addressing Evidence Gaps in Clinical Prevention (NAM Evidence Gaps project)
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Committee, Work group, Advisory group, or Task Force
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AHRQ
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ODP
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A consensus committee will examine issues in identifying and filling evidence gaps in clinical prevention recommendations made by the U.S. Preventive Services Task Force. The committee will catalog evidence gaps identified in the recommendations; summarize the types of evidence gaps to communicate with funders and researchers; identify potential research strategies that could help close evidence gaps; and suggest approaches for AHRQ and NIH to optimize announcements and requests for applications to accelerate research to close evidence gaps. This initiative is being funded through an NIH contract and co-funded by ODP and AHRQ.
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National Academy of Medicine Committee on Emerging Science, Technology, and Innovation in health and medicine
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Committee, Work group, Advisory group, or Task Force
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FDA
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NIMH
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The National Academy of Medicine has recently launched a new Committee on Emerging Science, Technology, and Innovation in health and medicine. The Committee will bring together experts in diverse fields to assess the landscape of emerging scientific advances and technologies in health and medicine and address the potential societal, ethical, legal, and workforce implications of such technologies. The goal of the Committee is to develop a multi-sectoral governance policy framework. The Committee plans to examine examples of emerging technologies and their implications for society, through a multi-sectoral lens. The first point of focus will be on neurotechnology, specifically transcranial direct current stimulation.
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National Action Alliance for Suicide Prevention (NAASP)
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Committee, Work group, Advisory group, or Task Force
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ACL, CDC, HRSA, IHS, OS, Office of the Surgeon General (OSC), SAMHSA
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NIMH, NIAAA, NIDA, OD/DPCPSI/OBSSR, OD/DPCPSI/ODP
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Founded in September 2010, the National Action Alliance for Suicide Prevention (NAASP) is a public-private partnership designed to advance the National Strategy for Suicide Prevention in the United States. The NAASP's Research Prioritization Task Force (RPTF) was charged with developing a process to prioritize suicide prevention research efforts and consider ways to integrate science and service to ensure that suicide deaths decrease significantly within the next decade. The RPTF released the Nation's first suicide research agenda, A Prioritized Research Agenda for Suicide Prevention: An Action Plan to Save Lives. The research agenda includes an overarching goal to advance suicide prevention research more rapidly, seeking ways to reduce suicide deaths and attempts by 20 percent in five years and by 40 percent or greater in ten years. In 2015, the RPTF produced the "U.S. National Suicide Prevention Research Efforts: 2008-2013 Portfolio Analyses." The analyses revealed that investments in suicide research are severely lagging, but there is a growing knowledge base of intervention research. The National Institute of Mental Health (NIMH) Director serves as an ex-officio member of the Executive Committee of the NAASP. NIMH participates in a number of NAASP activities related to identifying research needs for improving risk identification and suicide preventive care within healthcare systems, justice, and school settings.
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National Action Plan for Combating Antoibiotic-Resistant Bacteria (CARB) 2020-2025
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Committee, Work group, Advisory group, or Task Force
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AHRQ, BARDA, CDC, CMS, FDA, HRSA, OS
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NIAID
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The National Action Plan for Combating Antibiotic-resistant Bacteria, 2020-2025, in development through the CARB Task Force, will outline coordinated, strategic actions that the U.S. government will take in the next five years to reduce the impact of antibiotic and antimicrobial resistance on the nation.
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National Action Plan for the Elimination of multi-drug resistant Tuberculosis (MDR TB)
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Other
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CDC
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NIAID, CC, FIC, NCATS, NCI, NHLBI, NIA, NIAAA, NICHD, NIDA
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Federal agencies involved in the National Action Plan for the Elimination of Multidrug-Resistant Tuberculosis (MDR-TB) coordinate reporting across agencies. Annual reporting and regular updates on opportunities for cross-agency collaboration and information sharing are provided.
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National Advisory Board for Medical Rehabilitation Research
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Committee, Work group, Advisory group, or Task Force
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ACL, CDC
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NICHD, NHLBI, NIA, NIAMS, NIDCD, NINDS, OD/DPCPSI
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The Director of the National Institutes of Health (NIH) was mandated in P.L. 101-613 to establish the National Advisory Board on Medical Rehabilitation Research. The Board advises the directors of the NIH, the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), and NICHD's National Center for Medical Rehabilitation Research (NCMRR) on matters and policies relating to the NCMRR's programs. The Board is comprised of 12 members representing health and scientific disciplines related to medical rehabilitation and six members representing persons with disabilities.
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National Advisory Committee on Children and Disasters (NAACD)
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA, HRSA, ASPR
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NICHD, NIEHS
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The Secretary of the U.S. Department of Health and Human Service (HHS) is responsible for a wide range of activities that include monitoring for emerging issues and concerns as they relate to medical and public health preparedness and response; developing, overseeing, and providing guidance for implementation of national preparedness goals for disasters of all types at the federal, state and local levels; identifying, conducting responses to, and recovery from public health and medical emergencies; assisting other federal agencies responsible for aspects of planning for, responding to, and recovering from public health emergencies; and taking into account the special physical, psychological, emotional, and behavioral needs of children. On behalf of HHS, the Assistant Secretary for Preparedness and Response (ASPR) leads public health and medical planning for, response to, and recovery from disasters and public health emergencies in accordance with the National Response Framework Emergency Support Function (ESF) #8 (Public Health and Medical Services). Additionally, the federal responsibilities and partnerships described in ESF #6 (Mass Care, Emergency Assistance, Housing, and Human Services) and the Health and Social Services Recovery Support Function are critical to comprehensive consideration of issues related to children and disasters. The NACCD shall provide advice and consultation to the Secretary of HHS to assist him in carrying out these and related activities as they pertain to the unique needs of children in preparation for, responses to, and recovery from disasters.The NACCD shall evaluate issues and programs and provide findings, advice, and recommendations to the Secretary of HHS in accordance with FACA to support and enhance all-hazards public health and medical preparedness, response activities, and recovery aimed at meeting the unique needs of children, in a developmentally and socially appropriate manner, across the entire spectrum of their physical, mental, emotional, and behavioral wellbeing.
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National Amyotrophic Lateral Sclerosis Registry (National ALS Registry)
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Resource Development
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ATSDR, CDC
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NINDS
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The National ALS Registry is a congressionally mandated registry for persons in the US with ALS. It is the only population-based registry in the US that collects information to help scientists learn more about who gets ALS and its causes.
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National Asthma Education and Prevention Program
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Committee, Work group, Advisory group, or Task Force
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CDC
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NHLBI, NIAID
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Oversees development of the clinical practice guidelines for asthma
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National Center for Advancing Translational Sciences (NCATS) Toolkit for Patient-focused Therapy Development
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Resource Development
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FDA
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NCATS
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NCATS is dedicated to engaging the patient community throughout the translational science process. The NCATS Toolkit for Patient-Focused Therapy Development (Toolkit) was created to provide a collection of online resources that can help patient groups advance through the process of therapy development and provide them with the tools they need to advance medical research. Launched in September 2017, the Toolkit includes resources that have been developed primarily for the rare diseases community to facilitate therapeutics research and development.
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