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Kidney, Urologic, and Hematologic Diseases Interagency Coordinating Committee (KUHICC)
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CDC, CMS, FDA, HRSA, IHS
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NIDDK, NCCIH, NCI, NHLBI, NIA, NICHD, NINDS, OD/DPCPSI/OBSSR
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The Kidney, Urologic, and Hematologic Diseases Interagency Coordinating Committee (KUHICC) encourages cooperation, communication, and collaboration among all Federal agencies involved in kidney, urology, and hematology research and other activities. Section 429 of Public Law 99-158 created the KUHICC in 1987. The committee met for the first time in 1988, and has the following subcommittees: Kidney Interagency Coordinating Committee, Urology Subcommittee, and Hematology Subcommittee. Meetings focus on interagency collaboration to elicit ideas from meeting participants to enhance current research directions within the National Institutes of Health and to form partnerships among agencies.
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Leprosy Research Support in Armadillos (Dasypus Novemcinctus)
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Resource Development
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HRSA
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NIAID
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The Leprosy Research Support and Maintenance of an Armadillo Colony – Post Genome Era interagency agreement provides standardized research reagents to investigators worldwide to assist in the development of skin test antigens used to detect leprosy. This agreement supports collaborative research to continuously improve biochemical, microbiological, and immunological models for leprosy research in an effort to provide the most up-to-date resource and expertise for mycobacterial researchers.
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Leveraging Novel Technologies for Chronic Disease Management for Aging Underserved Populations
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Research Initiative
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OASH
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NHLBI
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HHS Office of the Assistant Secretary for Health (OASH), in partnership with other federal agencies, has issued a Request for Information (RFI) to gain a more comprehensive understanding from our stakeholders regarding innovative solutions to chronic disease management. The RFI is focused on how to leverage novel technologies to optimize compliance with evidence-based standards of care in disease states that cause significant morbidity and mortality in aging populations in underserved areas. The RFI also seeks to identify opportunities to strengthen the U.S. healthcare system through public-private partnerships in data sharing, comprehensive analytics including AI, and other potential mechanisms.
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LGBT Healthy People 2030 Working Group (LGBT HP 2030)
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Committee, Work group, Advisory group, or Task Force
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ACF, ACL, AHRQ, ATSDR, BARDA, CDC, CMS, FDA, HRSA, IHS, OS, Office of the Surgeon General (OSC), SAMHSA
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OD/DPCPSI/SGMRO, NCI, NEI, NHLBI, NIA, NIAID, NIAMS, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIEHS, NIMH, NINDS, OD/DPCPSI/ODP
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Healthy People provides science-based national goals and objectives with 10-year targets designed to guide national health promotion and disease prevention efforts to improve the health of all Americans. As part of its mission, Healthy People has established benchmarks and monitored progress over three decades in order to (1) engage multiple sectors to strengthen policies and improve practices that are driven by the best available evidence and (2) to increase public awareness of the determinants of health, disease, and disability and the opportunities for progress.
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Linkage of Surveillance, Epidemiology, End Results data to Centers for Medicare and Medicaid data (SEER-CMS)
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Resource Development
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CMS
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NCI
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SEER registry data (e.g., cancer diagnosis date, site, histology) are individually linked to CMS data (e.g., enrollment, claims, assessments and surveys) using personally identifiable information. The data on the matching cancer cases are pulled together with CMS data on non-cancer controls (e.g., individuals not known to have a cancer diagnosis who reside in a SEER area) to create four research data resources: SEER-Medicare, SEER-Medicare Health Outcomes Survey (SEER-MHOS), SEER-Consumer Assessment of Healthcare Providers and Systems (SEER-CAHPS) and SEER-Medicaid. The SEER-CAHPS data set is a resource for quality of cancer care research based on a linkage between the NCI's Surveillance, Epidemiology and End Results (SEER) cancer registry data and the Centers for Medicare and Medicaid Services' (CMS) Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS®) patient surveys.The SEER-MHOS is a data resource for cancer health outcomes research. It is based on a linkage between the NCI's Surveillance, Epidemiology and End Results (SEER)External Web Site Policy cancer registry data and the Centers for Medicare and Medicaid Services' (CMS) Health Outcomes Survey (HOS).
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Logical Observation Identifiers Names and Codes (LOINC)
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Resource Development
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AHRQ, CDC, CMS, HRSA, IHS, IOS
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NLM
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This activity supports the maintenance, distribution, and continued development of LOINC®, a set of universal codes and names to identify laboratory and other clinical observations which facilitates the exchange and pooling of clinical results for clinical care, outcomes management, public health, and research. NLM has a contract with Regenstrief to distribute the LOINC vocabulary through the UMLS and to cover some special projects to enhance parts of the LOINC vocabulary. Regenstrief creates and maintains the LOINC database and supporting documentation, and the RELMA mapping program. AHRQ, CDC, CMS, HRSA, HIS and IOS use LOINC. The past and current contract allows for tasks to be assigned to Regienstrief to review and enhance portions of the LOINC vocabulary based on special or new topic areas. In the past the collaborators have asked NLM to designate a special task/ work to be done through an MOU or IAA; the collaborators provide funding for the special task.
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Lower Limb Prosthetics Research Standards Working Group
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Committee, Work group, Advisory group, or Task Force
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ACL, AHRQ, CMS, FDA
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NICHD, NIDDK, OD
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This working group helps to determine research standards for lower limb prosthetics.
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Lupus Federal Working Group
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CDC, FDA, HRSA, OS
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NIAMS, NCCIH, NEI, NHLBI, NIAID, NICHD, NIDCR, NIDDK, NIEHS, NIMHD, NINDS, OD/DPCPSI/OBSSR, OD/DPCPSI/ORWH
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The Lupus Federal Working Group, established on behalf of the Department of Health and Human Services (HHS) Secretary by the National Institutes of Health (NIH), facilitates collaboration among NIH components, other Federal agencies, voluntary and professional organizations, and industry groups with an interest in lupus.
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Lyme and Tick-borne Diseases Work Group
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA, OS, CMS
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NIAID
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This workgroup involves members from agencies including the Centers for Disease Control and Prevention (CDC), Food and Drug Administration (FDA), and the National Institutes of Health (NIH) with the purpose of continued coordination and communication of activities, policy updates, events, agency highlights, and other shared interests relating to Lyme disease and other tick-borne diseases.
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Machine learning methods for literature data extraction
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Research Initiative
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FDA
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NIEHS
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This project is applying natural language processing and machine learning methods to identify specific data elements in the full text of scientific publications
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