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Advisory Committee on Heritable Disorders in Newborn and Children
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CDC, FDA, HRSA
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NICHD
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The Advisory Committee on Heritable Disorders in Newborns and Children was established under the Public Health Service Act, Title XI, § 1109 (42 USC 300b-10), as amended by the Newborn Screening Saves Lives Reauthorization Act of 2014 (PL 113-240). The mission of the Advisory Committee on Heritable Disorders in Newborns and Children is to reduce morbidity and mortality in newborns and children who have or are at risk for heritable disorders. The Committee recommends that every newborn screening program include a Uniform Screening Panel that screens for 32 core disorders and 26 secondary disorders. The Committee advises the Secretary, US Department of Health and Human Services on the most appropriate application of universal newborn screening tests, technologies, policies, guidelines, and standards. Specifically, the committee provides to the Secretary, the following: Advice and recommendations concerning grants and projects authorized, awarded, or funded related to screening heritable disorders in newborns and children; technical information to develop Heritable Disorders Program policies and priorities that will enhance the ability of the state and local health agencies to provide screening; counseling and health care services for newborns and children who have or are at risk for heritable disorders, and recommendations; and advice and information to enhance, expand, or improve the ability of the Secretary to reduce mortality and morbidity from heritable disorders in newborns and children. The committee was chartered on May 7, 2015.
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Advisory Committee on Organ Transplantation (ACOT)
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Committee, Work group, Advisory group, or Task Force
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HRSA
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NIAID
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The Advisory Committee on Organ Transplantation (ACOT) was established to assist the HHS Secretary in enhancing organ donation, ensuring that the system of organ transplantation is grounded in the best available medical science, and assuring the public that the system is as effective and equitable as possible, thereby increasing public confidence in the integrity and effectiveness of the transplantation system.
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Advisory Council on Blood Stem Cell Transplantation (ACBSCT) of the U.S. Department of Health and Human Services (HHS)
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Committee, Work group, Advisory group, or Task Force
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CDC, CMS, FDA, HRSA
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NHLBI
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The Advisory Council advises the Secretary, Department of Health and Human Services and Administrator, Health Resources and Services Administration (HRSA) on matters related to the activities of the C.W. Bill Young Cell Transplantation Program and the National Cord Blood Inventory Program. The principal purpose of these programs is to make blood stem cells from adult donors and cord blood units available for patients who need a transplant to treat life-threatening conditions such as leukemia, and who lack a suitably matched relative who can be the donor.
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Agricultural Health Study
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Research Initiative
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CDC
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NCI, NIEHS
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The Agricultural Health Study (AHS) is a prospective study of cancer and other health outcomes in a cohort of licensed pesticide applicators and their spouses from Iowa and North Carolina. The AHS began in 1993 with the goal of answering important questions about how agricultural, lifestyle and genetic factors affect the health of farming populations. The study is a collaborative effort involving investigators from National Cancer Institute, the National Institute of Environmental Health Sciences, the Environmental Protection Agency, and the National Institute for Occupational Safety and Health. More than 89,000 farmers and their spouses in Iowa and North Carolina have participated in the study. Their participation has provided and continues to provide the data that researchers need to help the current and future generations of farmers and their families live healthier lives
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AHRQ - Systematic Evidence Reviews
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Other
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AHRQ
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NHLBI
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Develop systematic evidence reviews on topics and questions through an Evidence-based Practice Center (EPC).
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AHRQ evidence report on Comparative Effectiveness of Interventions to Manage Labor and AHRQ evidence report on Labor Dystocia
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Committee, Work group, Advisory group, or Task Force
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AHRQ
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NICHD
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The Agency for Healthcare Research and Quality (AHRQ) sponsors the development of various reports to assist public- and private-sector organizations in their efforts to improve the quality of healthcare in the United States. These reports provide comprehensive, science-based information on common, costly medical conditions and new health care technologies and strategies. The Evidence-based Practice Centers (EPCs) review all relevant scientific literature on a wide spectrum of clinical and health services topics. EPCs also produce technical reports on methodological topics and other types of evidence synthesis-related reports. The National Institutes of Health (NIH) scientists serve as expert advisors and collaborators in the development of some of these reports.
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AHRQ Registry of Patient Registries (RoPR)
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Resource Development
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AHRQ
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NLM
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The Registry of Patient Registries (RoPR) is a database of registry-specific information intended to promote collaboration, reduce redundancy, and improve transparency. ClinicalTrials.gov worked with RoPR to implement a mechanism for patient registries to be registered in ClinicalTrials.gov and additional information provided directly at RoPR.
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AIDSinfo/InfoSIDA
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Public Education Campaign
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CDC, FDA, HRSA
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NLM, NIAID, OD/DPCPSI/OAR
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AIDSinfo, a service of the US Department of Health and Human Services (HHS), offers access to the latest, federally approved HIV/AIDS medical practice guidelines, HIV treatment and prevention clinical trials, and other research information for health care providers, researchers, people affected by HIV/AIDS, and the general public.
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Alaska Native Tumor Registry
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Resource Development
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CDC, IHS
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NCI
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In collaboration with the Centers for Disease Control and Prevention (CDC), Indian Health Service (IHS), and National Cancer Institute (NCI), and with technical assistance from the Surveillance, Epidemiology, and End Results Program (SEER), the Alaska Native Tumor Registry collects information on cancer cases among Alaskan Native populations residing in Alaska.
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Alcohol Clinical Trial Initiative (ACTIVE)
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Committee, Work group, Advisory group, or Task Force
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FDA
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NIAAA, NIDA
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A workgroup was formed under the auspices of the American College of Neuropsychopharmacology, known as the ACTIVE (Alcohol Clinical Trials Initiative) and consists of academic experts, industry representatives, and staff from the Food and Drug Administration, the National Institute on Alcohol Abuse and Alcoholism, and the National Institute on Drug Abuse. The purpose is to explore methodological issues of conducting alcohol clinical trials and to provide the Food and Drug Administration (FDA), pharma, and the academic community evidence-based analyses into aspects of alcohol clinical trials such as endpoints, durations of trials, the placebo effect, handling of missing data, and grace periods. ACTIVE provides analyses for the FDA to use in developing evidence-based guidelines.
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