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Department of Health and Human Services (HHS) Open Innovation Day
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Meeting/ Workshop
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ACF, AHRQ, CDC, CMS, FDA, HRSA, IHS, SAMHSA
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NCI, NEI, NIDA, NIDDK, NIEHS, NLM
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Workshop to highlight open innovation work performed and/or supported by the Department of Health and Human Services (HHS) staff, and to plot a course forward for HHS open innovation community.
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Developing a Strategically Coordinated Registry Network (CRN) for Women’s Health Technologies
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Committee, Work group, Advisory group, or Task Force
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AHRQ, FDA, OS
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NLM
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This project is funded by the Office of the Secretary Patient Centered Outcomes Research Trust Fund for Data Infrastructure. The project goal is to create a strategically Coordinated Registry Network (CRN) for women’s health technologies that will collect patient-reported outcomes and employ the standards for Structured Data Capture (SDC) from EHRs for data collection and exchange to both enhance existing registries and enrich PCOR data infrastructure pertinent to women’s health conditions.
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Developing Clinical Vocabulary Standards for Public Health Reporting
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Resource Development
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CDC
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NLM
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This collaboration between the National Library Medicine (NLM) and the Centers for Disease Control and Prevention (CDC) is to develop Logical Observation Identifiers Names and Codes (LOINC) for use in public health reporting, including tumor registry reporting and reportable disease reporting.
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Development and Use of a Non-human Primate Model of Pertussis Disease and Transmission
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Other
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FDA
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NIAID
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The National Institutes of Health (NIH) has been working with the Food and Drug Administration (FDA) towards the development and use of a non-human primate model of pertussis disease and transmission. The unique model helps to test novel vaccines and to understand host immunity.
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DHHS Office on Women’s Health, Section on Pregnancy and Newborn Care, womenshealth.gov
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Committee, Work group, Advisory group, or Task Force
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OS
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NICHD
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The National Institutes of Health (NIH) scientists work together with other Department of Health and Human Services (HHS) experts to develop and review content for HHS public-facing websites, including the womenshealth.gov website.
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Diabetes Mellitus Interagency Coordinating Committee (DMICC)
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CDC, CMS, FDA, HRSA, IHS, OS
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NIDDK, CSR, NCATS, NCCIH, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIEHS, NIGMS, NIMH, NIMHD, NINDS, NINR, NLM
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The DMICC facilitates cooperation, communication, and collaboration on diabetes among the participating government entities. DMICC meetings, held several times a year, help members identify emerging issues and opportunities and develop ways in which different government components can work together and build upon each other’s expertise and resources. This approach helps ensure that federal diabetes activities are coordinated and not duplicated, as well as stimulates collaborations where appropriate.
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Diabetes Prevention Program (DPP) and Diabetes Prevention Program Outcomes Study (DPPOS)
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Research Initiative
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CDC, IHS
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NIDDK, NCATS, NCI, NCMHD, NEI, NHLBI, NIA, NICHD
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The Diabetes Prevention Program (DPP) showed that lifestyle change or the drug metformin delay the development of type 2 diabetes. The Diabetes Prevention Program Outcomes Study is studying the long-term effect of diet and exercise and the diabetes medication, metformin, on the delay of type 2 diabetes in participants of the DPP.
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Diabetic Eye Disease Information Dissemination
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Public Education Campaign
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CDC
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NEI
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The Centers for Disease Control and Prevention (CDC''s) National Diabetes Education Program is part of the National Eye Health Education Program Partnership. This past year, the National Eye Institute (NEI) and CDC worked outlets and conference calls, and circulated information in phConnect and among each other''s stakeholder groups.
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Diabetic Retinopathy Clinical Research Network
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Research Initiative
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OS
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NEI, NIDDK
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The Diabetic Retinopathy Clinical Research Network (DRCR.net) is a collaborative network dedicated to facilitating multicenter clinical research of diabetic retinopathy, diabetic macular edema, and associated conditions. The DRCR.net supports the identification, design, and implementation of multicenter clinical research initiatives focused on diabetes-induced retinal disorders. Principal emphasis is placed on clinical trials, but epidemiologic outcomes and other research may be supported as well. The network is funded by the NEI, and co-funded by OS, through NIDDK, with the Special Funding Program for Type 1 Diabetes Research.
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Diagnosis, Treatment, and Medical Service Utilization in Medicare and Medicaid Population
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Research Initiative
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CMS
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CC
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Centers for Medicare and Medicaid Services (CMS) and the National Institutes of Health (NIH) Clinical Center (CC) Rehabilitation Medicine (RMD) agreed to collaborate in data-sharing for research, the results of which may be helpful to improve medical-service quality, utilization, and effectiveness for Medicare and Medicaid beneficiaries. CMS will provide electronic data to the NIH Clinical Center, which will perform analyses that are agreed to by both parties.
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