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AHRQ Registry of Patient Registries (RoPR)
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Resource Development
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AHRQ
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NLM
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The Registry of Patient Registries (RoPR) is a database of registry-specific information intended to promote collaboration, reduce redundancy, and improve transparency. ClinicalTrials.gov worked with RoPR to implement a mechanism for patient registries to be registered in ClinicalTrials.gov and additional information provided directly at RoPR.
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AHRQ/CMS/Duke Evidence-based Practice Center (EPC) Comparative Effectiveness Review: Lower Extremity Peripheral Venous Disease, Excluding Acute Deep Vein Thrombosis.
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CMS
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NHLBI
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This systematic review will focus on the diagnosis and management of chronic venous disease in outpatient and inpatient settings where care is coordinated by primary care physicians, vascular surgeons, vascular medicine specialists, cardiologists, and/or radiologists. In developing this comprehensive review, the rules of evidence and evaluation of strength of evidence recommended by the Agency for Healthcare Research and Quality (AHRQ)’s Evidence-based Practice Center (EPC) Program in its Methods Guide for Effectiveness and Comparative Effectiveness Reviews (hereafter referred to as the Methods Guide) apply. This review will solicit feedback regarding conduct of the work (such as development of search strategies and identifying outcomes of key importance) from the Task Order Officer (TOO) and the Technical Expert Panel (TEP). The project will follow the methodology recommended by the EPCs for literature search strategies, inclusion/exclusion of studies in review, abstract screening, data abstraction and management, assessment of methodological quality of individual studies, data synthesis, and grading of evidence for each key questions.
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AIDSinfo
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Public Education Campaign
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CDC, CMS, HRSA
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OD/DPCPSI/OAR, NIAID, NLM
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AIDSinfo, a service of the U.S. Department of Health and Human Services (HHS), offers access to the latest, federally approved HIV/AIDS medical practice guidelines, HIV treatment and prevention clinical trials, and other research information for health care providers, researchers, people affected by HIV/AIDS, and the general public.
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AIDSinfo/InfoSIDA
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Resource Development
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CDC, FDA, HRSA
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NLM, NIAID, OD/DPCPSI/OAR
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These English and Spanish language websites assist in the dissemination of the Public Health Service Treatment Guidelines.
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Alaska Native Tumor Registry
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Resource Development
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CDC, IHS
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NCI
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In collaboration with CDC, IHS, and NCI, and with technical assistance from the Surveillance, Epidemiology, and End Results Program (SEER), the Alaska Native Tumor Registry collects information on cancer cases among Alaskan Native populations residing in Alaska.
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Alaska Suicide Prevention
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Meeting/ Workshop
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SAMHSA
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NIMH
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Each year NIMH, in partnership with the Substance Abuse and Mental Health Services Administration (SAMHSA), hosts a webinar on effective practices in suicide prevention for Alaska Native communities. Suicide is a national concern, with more than 41,000 deaths by suicide occurring in the U.S. each year. Alaska Native and American Indian populations bare a disproportionately high burden from suicide. At the webinar, mental health researchers, representatives from the Tanana chiefs Conference, and academic administrators provide an overview of suicide in Alaska and strategies to promote mental wellness and reduce suicide risk among Alaska Natives.
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Alcohol Clinical Trial Initiative (ACTIVE)
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Committee, Work group, Advisory group, or Task Force
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FDA
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NIAAA, NIDA
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Consortium that includes academia and representatives from the Food and Drug Administration (FDA), European Medicines Agency (EMA), National Institutes on Alcohol Abuse and Alcoholism (NIAAA), National Institute on Drug Abuse (NIDA) and the pharmaceutical industry working together to identify and clarify clinical trials methodology to evaluate medications for treating alcohol dependence.
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All-Hazards Playbook
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Resource Development
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OS
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NLM
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This activity is to develop an interactive tool to help state and local health departments prepare for and respond to disasters in their regions.
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Alzheimer''s Disease Neuroimaging Initiative
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Research Initiative
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FDA
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NIA, NIBIB
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This collaboration is meant to develop biomarkers of Alzheimer’s disease in elderly subjects. A major goal of the study has been to establish and validate MRI and PET images, cerebral spinal fluid, and blood biomarkers as predictors of the disease.
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America''s Children Forum on Health and Family Statistics
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Resource Development
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SAMHSA
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NIDA
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As a member of this collaboration, NIDA contributes data from the, “Monitoring the Future Survey on Illicit Drugs, Alcohol and Tobacco Trends”.
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