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Paternal Involvement in Pregnancy: Outcomes from Preconception to First Year of Life
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Meeting/ Workshop
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ACF, HRSA
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NICHD, OD/DPCPSI/OBSSR
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Numerous efforts have been initiated to promote responsible fatherhood as a way to enhance children’s development. However, less attention has been paid to the role of fathers during pregnancy through the first year of life. This workshop brought together researchers and community representatives to address the impact of fathers’ involvement on pregnancy, birth outcomes, and the health and development of children during the first year of life. This workshop was hosted by the Eunice Kennedy Shriver National Institute of Child Health and Human Development and co-sponsored by the Administration for Children and Families, the Maternal and Child Health Bureau, Health Resources and Services Administration, and the National Institutes of Health Office of Behavioral and Social Sciences Research. The purpose of the meeting was to develop a transformative, transdisciplinary research agenda that would translate into good public policy. The workshop consisted of a series of research-based presentations on various aspects of paternal involvement in pregnancy and birth outcomes. Participants broke into four working groups to consider both research questions and methods in their assigned topics. On day 2 of the workshop, these groups reported their findings and recommendations. This workshop included a new investigator poster session, which was held on September 25, 2013, at the same location. Attendance at this workshop was by invitation only.
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Pathways to Prevention Workshop
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Health Survey
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AHRQ, CDC, FDA, IHS, OS, SAMHSA
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NIDA, NCI, NIA, NINDS, OD/DPCPSI/ODP
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This is a conference to look at the existing data on the efficacy and safety of opioids for chronic pain.
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Patient-Reported Outcomes Measurement Information System (PROMIS)
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Research Initiative
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CDC, CMS, FDA, SAMHSA
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OD/DPCPSI, NCCAM, NCI, NHLBI, NIAID, NIAMS, NICHD, NIDA, NIDDK, NIGMS, NIMH, NINDS, OD/DPCPSI/OSC
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The Patient-Reported Outcomes Measurement Information System (PROMIS) is a network of National Institutes of Health-funded primary research sites and coordinating centers working collaboratively to develop a series of dynamic tools to reliably and validly measure patient-reported outcomes (PROs). PROMIS provides an opportunity to improve healthcare outcomes by giving decision makers hard data on how healthcare affects what patients are able to do and how they feel. The U.S. Food and Drug Administration has been invited to contribute to the scientific steering committee meetings as an interested partner. The Centers for Medicare and Medicaid Services, Centers for Disease Control and Prevention, and Substance Abuse and Mental Health Services Administration are working with PROMIS to coordinate use of PROMIS tools in programs of mutual interest.
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Pediatric Abusive Head Trauma-Reviewing the Evidence Advancing Science
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Meeting/ Workshop
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HRSA
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NICHD, NHLBI, NIDA, NIGMS, NIMH, NINDS, NINR
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The developmental sequelae of children who suffer maltreatment related injuries are understudied and there is a need to bring together researchers from different disciplines who study and provide a continuum of services to these children. Thus, the purpose of this conference was to build on the 2002 Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) sponsored conference on Inflicted Childhood Neurotrauma, review advances in the science from multiple disciplinary perspectives and to address definitional issues as well as implications for treatment, intervention and long-term outcomes for children. This meeting was an advisory to the new Pediatric Trauma & Critical Illness Branch (PTCIB) of NICHD and the proceedings will be used to inform a research agenda. This workshop was sponsored by PTCIB. The purpose of the meeting was to examine current findings on inflicted childhood neurotrauma, or Abusive Head Trauma (AHT), and related priorities. Day 1 of the workshop began with two presentations, one establishing a research agenda for AHT and a broad overview of what is and is not known about AHT, followed by a roundtable discussion. Then there were two sessions, one on basic research in AHT and one on clinical, epidemiological, and translational research, each followed by a roundtable discussion. Day 2 began with a session reviewing highlights from the previous day, followed by a roundtable discussion. Participants then divided into three workgroups: basic science; clinical science; and treatment, outcomes, prevention, and rehabilitation. After completing their discussions, workgroups presented their findings.
This workshop was sponsored by the Pediatric Trauma and Critical Illness Branch (PTCIB) of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). The purpose of the meeting was to examine current findings on inflicted childhood neurotrauma, or AHT, and related priorities. Day 1 of the workshop began with two presentations, one establishing a research agenda for AHT and the a broad overview of what is and is not known about AHT, followed by a roundtable discussion. Then there were two sessions, one on basic research in AHT and one on clinical, epidemiological, and translational research, each followed by a roundtable discussion. Day 2 began with a session reviewing highlights from the previous day, followed by a roundtable discussion. Participants then divided into three workgroups: basic science; clinical science; and treatment, outcomes, prevention, and rehabilitation. After completing their discussions, workgroups presented their findings.
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Pediatric Emergency Care Applied Research Network (PECARN)
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Research Initiative
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HRSA
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NICHD
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PECARN, the Pediatric Emergency Care Applied Research Network, is the first federally-funded pediatric emergency medicine research network in the U.S. PECARN conducts high-priority, multi-institutional research on the prevention and management of acute illnesses and injuries in children and youth of all ages. PECARN is supported by cooperative agreements between seven academic medical centers and the Health Resources Services Administration / Maternal and Child Health Bureau / Emergency Medical Services for Children Program (HRSA / MCHB / EMSC). The PECARN network consists of a data coordinating center; six Research Node Centers (RNCs); an Emergency Medical Services Demonstration node (funded in 2013); and 18 Hospital Emergency Department Affiliates (HEDAs). PECARN sites represent academic, community, urban, general, and children''s hospitals. Studies carried out by PECARN are funded through independent research grants. PECARN studies have been funded by the National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and other divisions of the U.S. Department of Health and Human Services (HHS), as well as private foundations, hospitals, and universities.
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Pertussis Working Group
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA
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NIAID
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The objective of the Pertussis Working Group is to share information and promote collaborations among U.S. Department of Health and Human Services (HHS) agencies in order to better understand the recent resurgence of pertussis in the U. S. and identify potential strategies to address the problem.
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PHS MSM Working Group
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA
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NHLBI
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The Working Group is developing guidelines and strategies to improve HIV/STD programs for men who have sex with men (MSM).
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PHS Review Committee: Use of Marijuana in Clinical Research
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Committee, Work group, Advisory group, or Task Force
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FDA, OS, SAMHSA
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NIMH, NCCAM, NIDA, NINDS
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Follow-up review of revised application for purchase of research-grade marijuana from the National Institute on Drug Abuse (NIDA) for use in proposed treatment study of refractory post-traumatic stress disorder (PTSD) in military veterans.
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Physical Activity and Disease Prevention: Identifying Research Priorities
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Meeting/ Workshop
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AHRQ, CDC, OS
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OD/DPCPSI/ODP, NCI, NHLBI, NIA, NIBIB, NICHD, NIDA
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This workshop was coordinated and funded by the National Institutes of Health (NIH) Office of Disease Prevention (ODP) to convene NIH and Federal partners to examine: barriers to achieving the Federal Physical Activity Guidelines; effective evidence-based interventions for initiating and sustaining physical activity; NIH’s physical activity research portfolio; and current and emerging research methodologies. The workshop focused on NIH’s interest in supporting innovative research to improve physical activity assessment and research methods used with diverse age and racial/ethnic populations as well as prioritizing the NIH physical activity research agenda. The meeting was held on December 13-14, 2012.
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Pink Ribbon Red Ribbon
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Meeting/ Workshop
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CDC
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NCI
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Pink Ribbon Red Ribbon (PRRR) is a partnership to leverage public and private sector investments to address breast and cervical cancers in developing countries. It is being implemented in several countries in sub-Saharan Africa. The National Cancer Institute and Centers for Disease Control and Prevention provide technical assistance in implementation strategies to the PRRR countries. This assistance involves drafting guidelines for monitoring and evaluation of prevention and treatment services as well as developing communication strategies.
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