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Lupus Federal Working Group
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Meeting/ Workshop
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AHRQ, CDC, FDA, HRSA, OS
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NIAMS, NCCAM, NEI, NHLBI, NIAID, NICHD, NIDCR, NIDDK, NIMHD, NINDS
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The Lupus Federal Working Group, established on behalf of the HHS Secretary by the NIH, facilitates collaboration among NIH components, other Federal agencies, voluntary and professional organizations, and industry groups with an interest in lupus.
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Maintenance of an Armadillo Colony
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Other
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HRSA
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NIAID
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The Maintenance of an Armadillo Colony contract supports basic research for leprosy.
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Mapping of the SNOMED CT and ICD Clinical Terminology
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Resource Development
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CDC, OS
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NLM
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The U.S. Department of Health and Human Services (HHS) has set a goal for the nationwide implementation of an interoperable health information technology infrastructure to improve the quality and efficiency of health care. Achieving this goal will require that key clinical data elements are captured or recorded in detailed, standardized form (using standard vocabularies, codes, and formats) as close to their original sources (patients, health care providers, laboratories, diagnostic devices, etc.) as possible. If these standardized clinical data can also be used to generate HIPAA- compliant billing transactions automatically, this will provide another incentive for adoption of clinical data standards. For automated generation of bills from clinical data to become a reality, robust mappings from standard clinical terminologies to the HIPAA code sets must be created.
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Maternal and Child Health (MCH) Pediatric Research Network Program
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Research Initiative
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HRSA
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NICHD
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The purpose of this IAA is for NIH to contribute funding to the Health Resources and Services Administration (HRSA) to fund, oversee, and manage a cooperative agreement on a topic of mutual interest to the agencies. The funds will be used to support a pediatric practice-based applied research network that will engage in coordinated multi-centered research activities, focusing on translating research to practice, and cultivate new researchers from among the practice-based research network (PBRN) that successfully competed for the cooperative agreement to continue to develop and implement a training program to create research proposals, culminating in the submission of research proposals involving priority needs for pediatric therapeutics in accordance with the Best Pharmaceuticals for Children Act (BPCA), build infrastructure to further develop an existing affiliated electronic health record (EHR) based pediatric PBRN engaged in research endeavors of mutual interest to NIH and HRSA, and more swiftly evaluate and submit research proposals that should result in health and health services improvements within the pediatric population, particularly when applied directly into pediatric care and service settings.
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Medical Expenditure Panel Survey (MEPS)
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Health Survey
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AHRQ
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NCI
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The Medical Expenditure Panel Survey (MEPS) is a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States. MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.
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Medical Planning and Response to a Nuclear Detonation Working Group
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Other
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CDC, FDA, OS
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NCI
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This group developed educational materials related to emergency planning for nuclear detonations for Government use and publication.
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Medicare benefit postcard developed by NEI and CMS
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Public Education Campaign
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CMS
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NEI
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NEI worked with CMS to develop and disseminate a Medicare benefit card in English and Spanish which describes eligibility for the Medicare benefit for glaucoma and diabetic eye disease. The postcards are distributed to Medicare beneficiaries, the general public, and to health professionals.
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Memorandum of Understanding (MOU) between the FDA/Center for Biologics Evaluation and Research (FDA/CBER) and NIH/NINDS
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Other
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FDA
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NINDS
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This MOU provides a mechanism for addressing cross-cutting issues related to therapy development for neurological disorders, from bench science to clinical trials and FDA approval and licensure.
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Mental Health Surveillance Study
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Health Survey
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SAMHSA
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NIMH
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The Mental Health Surveillance Study (MHSS) builds upon established federal survey platforms in order to expand the NIMH research portfolio in population-based mental health studies. The purpose of the MHSS will be to conduct additional calibration work on the survey data; to assess the feasibility of developing a longitudinal component for future surveys; and to produce up to seven reports related to mental health. In FY2012, NIMH participated in data collection activities by supplementing the MHSS sample with 1,000 clinical interviews.
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Meta-Analysis of the Risk of Guillain-Barre Syndrome Following H1N1 Vaccination
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Committee, Work group, Advisory group, or Task Force
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FDA
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NIAID
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Statistical expertise is offered in the design and analysis of multiple safety studies to assess the risk of Guillain-Barre Syndrome following H1N1 vaccination.
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