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Serum PFAS concentrations and risk of renal cell carcinoma in the Multiethnic Cohort
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Research Initiative
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CDC
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NCI
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National Cancer Institute (NCI) and Centers for Disease Control and Prevention (CDC) are collaborating to measure serum levels of per- and polyfluoroalkyl substances (PFAS) for a nested case-control study of renal cell carcinoma (RCC) in the Multiethnic Cohort.
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SHIELD – Standardization of Lab Data to Enhance Outcomes Research and Value Based Care
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Committee, Work group, Advisory group, or Task Force
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FDA, CDC
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NLM
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This project will expand the collaborative efforts of FDA and other stakeholders involved in the SHIELD (Systemic Harmonization and Interoperability Enhancement for Laboratory Data) Collaborative to ensure laboratory information interoperability, such that the same type of device is described the same way in electronic health records systems. To realize this goal, this project will develop code mapping manuals to consistently map the same LOINC (Logical Observations Identifiers Names and Codes) to the same type of in vitro diagnostic (IVD) devices. This is important because, without specific guidance, manufacturers of IVD devices and laboratories often assign different (and frequently incorrect) LOINC codes for the same type of device. This project will also pilot the implementation of SHIELD standard digital formats to update infrastructure in active health care provider laboratories, which will include the seamless distribution of LOINC and SNOMED-CT (Systematized Nomenclature of Medicine—Clinical Terms) coding to those provider institutions and registries. https://aspe.hhs.gov/shield-standardization-lab-data-enhance-patient-ce…
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Sickle Cell Disease Federal Interagency Work Group (SCD FIWG)
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA, HRSA, OASH
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NHGRI, NHLBI
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The Sickle Cell Disease Federal Interagency Work Group (FIWG) fosters a community of partners engaged in achieving the vision of long, healthy, productive lives for those living with Sickle Cell Disease (SCD) and those with Sickle Cell Trait (SCT)." This involves building the capacity to address the recommendations shared in the NASEM Sickle Cell Disease Strategic Plan and Blueprint for action.
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Smart Health and Biomedical Research in the Era of Artificial Intelligence and Advanced Data Science (SCH)
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Research Initiative
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Not Reported
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NCATS, NCCIH, NCI, NEI, NHLBI, NIAMS, NIBIB, NICHD, NIDA, NIDCR, NIDDK, NINR, NLM, OD/DPCPSI/OAR, OD/DPCPSI/OBSSR, OD/DPCPSI/ODP, OD/DPCPSI/ODSS, OD/DPCPSI/ONR, OD/DPCPSI/ORWH, OD/DPCPSI/SGMRO, OD/OSP
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The Smart Health program supports innovative, high-risk/high-reward research with the promise of disruptive transformations in biomedical and public health research, which can only be achieved by well-coordinated, convergent, and interdisciplinary approaches that draw from multiple domains of computer and information science, engineering, mathematical sciences and the biomedical, social, behavioral, and economic sciences.
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Smokefree.gov Initiative
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Resource Development
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CDC, FDA, IHS
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NCI
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The Smokefree.gov Initiative (SFGI) provides tobacco users who want to quit with free, evidence-based cessation information and on-demand support. SFGI includes 6 mobile-optimized websites, 10 SMS text programs, 2 smartphone apps, and 6 social media platforms. Tailored content is provided for special populations including women, teens, Spanish speakers, veterans, and older adults. *Collaboration Type should also include: Websites, text messaging program interventions, smart phone applications, national text portal, digital public education campaigns
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Social Connection Coordination Interagency Team
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Committee, Work group, Advisory group, or Task Force
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ACL, OSG, ACF, CDC, OASH, SAMHSA
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NIA
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The SSCIT works to coordinate efforts across government agencies to promote social connection as a public health priority.
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Social Determinants of Health Research Coordinating Committee
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Committee, Work group, Advisory group, or Task Force
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SAMHSA
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FIC, NCATS, NCCIH, NCI, NIA, NIAMS, NIEHS, NIMHD, NINR, OD/DPCPSI/OBSSR, OD/DPCPSI/ODP, OD/DPCPSI/ORWH
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The overall goal of the Research Coordinating Committee (RCC) is to accelerate NIH-wide SDOH research across diseases and conditions, populations, stages of the life course, and SDOH domains, domestically and globally.
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Society for Prevention Research Annual Conference
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Meeting/ Workshop
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ACF, CDC
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NCCIH, NCI, NIAAA
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This annual conference is funded by an R13 award and is co-funded by several other NIH Institutes as well as the ACF and the CDC.
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Somatic Cell Genome Editing
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Research Initiative
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FDA
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NCATS, NCI, NEI, NHGRI, NHLBI, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDDK, NIEHS, NIMH, NINDS, OD/DPCPSI/ORIP, OD/DPCPSI/OSC
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The Somatic Cell Genome Editing (SCGE) program aims to develop quality tools to perform effective and safe genome editing in human patients. These research tools will be made widely available to the research community to reduce the time and cost required to develop new therapies. Representatives from Food and Drug Administration (FDA) Center for Biologics Evaluation and Research (CBER) attend SCGE Consortium meetings with NIH and Prinicpal Investigators that covers emerging science and opportunities as well as progress of SCGE awardees. The NIH is also establishing a Memorandum of Understanding (MOU) with the FDA for direct NIH/FDA communications on general regulatory issues around genome editing that may inform how NIH manages the SCGE program. The SCGE program is a member of the National Institute of Standards and Technology (NIST) Gene Editing Consortium.
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Sound Health Initiative Phase II
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Research Initiative
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Not Reported
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NCATS, NCCIH, NCI, NCMHD, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIEHS, NIMH, NINDS, OD/DPCPSI/OBSSR
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The Sound Health initiative promotes and implements an interdisciplinary research program in the field of music and related art form and health. Moreover Sound Health is also involved in capacity building and training of the next generation of neuroscientists and musician scientist.
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