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Workgroup on Timely and Strategic Action to Inform ICD-11 Policy
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Committee, Work group, Advisory group, or Task Force
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CDC
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NLM
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The purpose of the National Committee on Vital and Health Statistics (NCVHS) Workgroup on Timely and Strategic Action to Inform ICD-11 Policy is to gather information from a broad range of sources to bring to the full Committee in its effort to develop advice and recommendations to HHS regarding adoption of ICD-11 as a Health Insurance Portability and Accountability Act (HIPAA) code set. NCVHS finds that immediate action is needed if the U.S. is to avoid repeating, for ICD-11, the many costs and resource burdens that characterized its late implementation of ICD-10. One important goal in the adoption of ICD-11 is to avoid, if possible, a full U.S.-specific clinical modification as occurred for ICD-10. In its role as an advisory committee to the Secretary, NCVHS intends for this project to support HHS in leading the U.S. in preparation for policy and implementation decisions regarding ICD-11. NLM supports this activity by carrying out research on the feasibility of using ICD-11 to replace ICD-10-CM for morbidity coding. In addition, NLM provides subject matter expertise on ICD-11 and medical terminologies in general.
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Working Group for the Development of USG Pandemic Instrument for the WHO Intergovernmental Negotiating Body
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Committee, Work group, Advisory group, or Task Force
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Not Reported
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NHLBI, NIAID, NIBIB, NIMHD, OD/OSP
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The Working Group for the development of the USG Pandemic Instrument is a USG-wide effort that is working to develop the USG position for the Pandemic Instrument (now known as the Pandemic Accord). The Pandemic Accord is being drafted by the WHO Intergovermental Negotiating Body (INB), with the purpose of ensuring communities, governments, and all sectors of societies are better prepared and protected, in order to prevent and respond to future pandemics. The Accord has been drafted and following negotiations it will be adopted by the WHO. NIH subject matter experts have been providing input and review of the different iterations of the Accord.
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Working Group on Accessible and Affordable Hearing Health Care for Adults
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Committee, Work group, Advisory group, or Task Force
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FDA
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NIA, NIDCD
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In partnership with NIA and the FDA, NIDCD plans to revisit topics related to hearing health care access and affordability. The goal of this working group is to hear from subject matter experts and partners about hearing health care needs that remain, and about new work that should be conducted both in the context of OTC hearing aid availability and, more broadly, in the changing landscape of health care.
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Working Groups to Develop HIV/AIDS Treatment and Prevention Guidelines
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Committee, Work group, Advisory group, or Task Force
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OASH
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NIAID, NICHD, NLM, OD/DPCPSI, OD/DPCPSI/OAR
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There are five Office of AIDS Research Advisory Council (OARAC) Working Groups to maintain updated federally approved medical practice guidelines for HIV/AIDS Treatment and the Prevention of HIV Transmission from Mother to Infant. The five working groups are the 1) Panel on Antiretroviral Guidelines for Adults and Adolescents, 2) Panel on Opportunistic Infections in HIV-Infected Adults and Adolescents, 3) Panel on Antiretroviral Therapy and Medical Management of Children Living with HIV, 4) Panel on Opportunistic Infections in HIV-Exposed and HIV-Infected Children, and 5) Panel on Treatment of Pregnant Women with HIV Infection and Prevention of Perinatal Transmission. The HIV/AIDS Treatment and Prevention Guideline Panels update guidelines for HIV/AIDS care providers with the most current information on combination antiretroviral therapy, treatment and prevention of opportunistic infections for people with HIV; the prevention of HIV transmission from an infected mother to her infant; and the safety and efficacy of HIV/AIDS therapies.
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Workshop on Patient-Reported Outcomes and Vision Related Quality of Life Questionnaires
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Meeting/ Workshop
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FDA
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NEI
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NEI is partnering with the FDA to highlight the importance of patients’ perspectives, patient-reported outcomes (“PROs”), and questionnaires to measure visual function and vision-related quality of life (“VFQs”) in vision research and clinical care. The goal of the workshop was to identify future steps in the development of PROs and VFQs for a variety of ocular conditions and varying degrees of visual impairment. The workshop was open to the public and was attended by researchers from academia, industry, non-profits, other government agencies, patients, and care partners.
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World Cancer Research Day, World No Tobacco Day, and World Cancer Day observances
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Public Education Campaign
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OGA
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FIC, NCI
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The NCI Office of Communications and Public Liaison and Center for Global Health collaborate with NCI Divisions, Offices, and Centers and the DHHS Assistant Secretary for Public Affairs Digital Media Office to coordinate public education campaigns featuring digital materials that highlight prevention promotion and wellness programs. These materials are shared across several HHS OPDIVs.
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World Health Organization (WHO) Programme on Prevention of Deafness and Hearing Loss
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Committee, Work group, Advisory group, or Task Force
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CDC
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NIDCD
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NIDCD is a founding member of WHO’s World Hearing Forum, a global network of stakeholders promoting ear and hearing care worldwide. Members work, in part, to raise awareness about and promote key interventions from the World Report on Hearing, published in 2021. NIDCD supported the development of this report – the first of its kind – via a contract mechanism and subject matter expertise via stakeholders’ meetings.
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