Title Collaboration Type HHS Participating Agencies NIH Participating Institutes, Centers, and Offices Description
National Action Plan for the Elimination of multi-drug resistant Tuberculosis (MDR TB) Other CDC NIAID, CC, FIC, NCATS, NCI, NHLBI, NIA, NIAAA, NICHD, NIDA Federal agencies involved in the National Action Plan for the Elimination of Multidrug-Resistant Tuberculosis (MDR-TB) coordinate reporting across agencies. Annual reporting and regular updates on opportunities for cross-agency collaboration and information sharing are provided.
National Advisory Board for Medical Rehabilitation Research Committee, Work group, Advisory group, or Task Force ACL, CDC NICHD, NHLBI, NIA, NIAMS, NIDCD, NINDS, OD/DPCPSI The Director of the National Institutes of Health (NIH) was mandated in P.L. 101-613 to establish the National Advisory Board on Medical Rehabilitation Research. The Board advises the directors of the NIH, the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), and NICHD's National Center for Medical Rehabilitation Research (NCMRR) on matters and policies relating to the NCMRR's programs. The Board is comprised of 12 members representing health and scientific disciplines related to medical rehabilitation and six members representing persons with disabilities.
National Advisory Committee on Children and Disasters (NAACD) Committee, Work group, Advisory group, or Task Force CDC, FDA, HRSA, ASPR NICHD, NIEHS The Secretary of the U.S. Department of Health and Human Service (HHS) is responsible for a wide range of activities that include monitoring for emerging issues and concerns as they relate to medical and public health preparedness and response; developing, overseeing, and providing guidance for implementation of national preparedness goals for disasters of all types at the federal, state and local levels; identifying, conducting responses to, and recovery from public health and medical emergencies; assisting other federal agencies responsible for aspects of planning for, responding to, and recovering from public health emergencies; and taking into account the special physical, psychological, emotional, and behavioral needs of children. On behalf of HHS, the Assistant Secretary for Preparedness and Response (ASPR) leads public health and medical planning for, response to, and recovery from disasters and public health emergencies in accordance with the National Response Framework Emergency Support Function (ESF) #8 (Public Health and Medical Services). Additionally, the federal responsibilities and partnerships described in ESF #6 (Mass Care, Emergency Assistance, Housing, and Human Services) and the Health and Social Services Recovery Support Function are critical to comprehensive consideration of issues related to children and disasters. The NACCD shall provide advice and consultation to the Secretary of HHS to assist him in carrying out these and related activities as they pertain to the unique needs of children in preparation for, responses to, and recovery from disasters. The NACCD shall evaluate issues and programs and provide findings, advice, and recommendations to the Secretary of HHS in accordance with FACA to support and enhance all-hazards public health and medical preparedness, response activities, and recovery aimed at meeting the unique needs of children, in a developmentally and socially appropriate manner, across the entire spectrum of their physical, mental, emotional, and behavioral wellbeing.
National Amyotrophic Lateral Sclerosis Registry (National ALS Registry) Committee, Work group, Advisory group, or Task Force ATSDR, CDC NINDS The National ALS Registry is a congressionally mandated registry for persons in the US with ALS. It is the only population-based registry in the US that collects information to help scientists learn more about who gets ALS and its causes.
National Asthma Education and Prevention Program Committee, Work group, Advisory group, or Task Force CDC NHLBI, NIAID Oversees development of the clinical practice guidelines for asthma
National Biodefense Strategy - Vaccines Joint Capabilities Plan writing group Other ASPR, CDC, FDA NIAID The Vaccines Joint Capabilities Plan (JCP) writing group, developed in support of the National Biodefense Strategy and Implementation Plan for Countering Biological Threats, Enhancing Pandemic Preparedness, and Achieving Global Health Security, focuses on: Vaccine design, testing, and authorization; Vaccine production; Vaccine distribution; and Vaccine administration and allocation to work towards the bold goal of having a vaccine poised to deploy within 100 days following the identification of an emergent viral pandemic.
National Cancer Control Strategy Committee, Work group, Advisory group, or Task Force CDC NCI The National Cancer Control Strategy is an NCI-funded study through the National Academies of Sciences, Engineering, and Medicine, which examines cancer control efforts in the United States. This study is expected to produce a report in 2018, which will recommend a national strategy to reduce the incidence, morbidity, and mortality from cancer and to improve quality of life for cancer survivors.
National Center for Advancing Translational Sciences (NCATS) Toolkit for Patient-focused Therapy Development Resource Development FDA NCATS NCATS is dedicated to engaging the patient community throughout the translational science process. The NCATS Toolkit for Patient-Focused Therapy Development (Toolkit) was created to provide a collection of online resources that can help patient groups advance through the process of therapy development and provide them with the tools they need to advance medical research. Launched in September 2017, the Toolkit includes resources that have been developed primarily for the rare diseases community to facilitate therapeutics research and development.
National Clinical Trials Network (NCTN) Scientific Steering Committees (SSCs) Committee, Work group, Advisory group, or Task Force FDA NCI Scientific Steering Committees (SSCs) are composed of leading cancer experts and advocates from outside the Institute as well as NCI senior investigators who meet regularly to: (1) increase the transparency and openness of the trial design and prioritization process; (2) enhance patient advocate and community oncologist involvement in clinical trial design and prioritization; (3) convene Clinical Trial Planning Meetings to identify critical questions, unmet needs, and prioritize key strategies.
National Coalition for Oversight of Assisted Reproductive Technologies (NCOART) Committee, Work group, Advisory group, or Task Force CDC, FDA NICHD The National Coalition for Oversight of Assisted Reproductive Technologies (NCOART) has become a successful forum for discussion of issues by organizations involved in the assisted reproductive technologies (ART) in the United States.