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National Collaborative on Childhood Obesity Research (NCCOR)
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Research Initiative
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CDC
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NICHD, NCI, NHLBI, NIDDK, FIC, NIAMS, NIMHD, OD/DPCPSI/OBSSR, OD/DPCPSI/ODP, OD/DPCPSI/ODS, OD/DPCPSI/ONR, OD/ECHO
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The mission of the National Collaborative on Childhood Obesity Research is to improve the efficiency, effectiveness, and application of childhood obesity research, and to halt -- and reverse -- childhood obesity through enhanced coordination, communication, and collaboration.
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National Counterintelligence Task Force (NCITF)
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Committee, Work group, Advisory group, or Task Force
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OS
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OD/OM
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As the lead U.S. counterintelligence agency, the FBI is responsible for detecting and lawfully countering the actions of foreign intelligence services and organizations as they seek to adversely affect U.S. national interests. The FBI recognized the need to coordinate similar efforts across all agencies, and therefore established the National Counterintelligence Task Force (NCITF) to create a whole-of-government approach to counterintelligence.
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National COVID Cohort Collaborative (N3C)
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Research Initiative
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FDA, ASPR, CMS
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NCATS, NIGMS
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The N3C is a partnership among the NCATS-supported Clinical and Translational Science Awards (CTSA) Program hubs, the National Center for Data to Health (CD2H), and NIGMS-supported Institutional Development Award Networks for Clinical and Translational Research (IDeA-CTR), to provide clinical data in close to real time to improve our knowledge of COVID-19 and potential treatment strategies. Collaborators will contribute and use COVID-19 clinical data to answer critical research questions to address the pandemic. As the largest limited dataset in US history with more than 11 Million participants (https://covid.cd2h.org/), the N3C initiative has demonstrated that it is possible to conduct science/learning healthcare across a large network, share and harmonize sensitive clinical data across modalities at a national scale and to realize the promise of precision medicine. The N3C effort is centered on the following: Establishing a secure data repository (the N3C Data Enclave) for studying COVID-19-related data. Receiving existing patient data derived from electronic health records (EHRs) provided by participating U.S. health care sites. Providing operational support for researchers using the N3C Data Enclave to navigate in the N3C platform and collaborate on COVID-19 research. Ensuring research using the N3C Data Enclave follows the rules and expectations of NCATS and its partners to keep the data secure and protect patient privacy.
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National Database for Antibiotic Resistant Organisms (NDARO)
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Resource Development
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CDC, FDA
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NIAID, CC, FIC, NCATS, NCI, NHLBI, NIA, NIAAA, NIDA
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The objective of this collaboration is to produce a collection of high-quality genome sequences from antibiotic-resistant strains and to create and maintain a publicly accessible database -- National Database for antibiotic resistance (AR), developed and housed at the National Center for Biotechnology Information of the National Library of Medicine (NLM).
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National Death Index Linkage Collaboration (NIH-NDI Agreement)
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Resource Development
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CDC
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OD/DPCPSI/OBSSR, OD/IMOD
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Beginning January 1, 2020, through an agreement between the National Institutes of Health (NIH) and the Centers for Disease Control (CDC) National Center for Health Statistics, (NCHS), NIH began reimbursing the NCHS National Death Index (NDI) for the costs of NIH-supported investigators to link their research databases with the NDI for the research aims supported by the NIH. "NIH-supported investigators" refers to extramural investigators actively funded by the NIH, contract investigators working under an active contract with the NIH, and intramural researchers employed by the NIH. These NIH-supported investigators can link their research data to the National Death Index (NDI) at no cost to the NIH supported investigator. NIH-supported investigators will continue to submit applications for NDI linkage as per current NDI procedures, including NDI review and approval. This agreement applies only to NIH-supported investigators who are actively funded by the NIH to conduct research that requires NDI linkage. To be covered under this agreement, the NIH-supported investigator must be the owner or steward of the research data to be linked to the NDI datafile, and subject to limitations in linkages as identified in the agreement. As a part of the NIH/NCHS agreement, NCHS will be implementing an enhanced online application and will increase the frequency of NDI releases to quarterly. NDI allows fully deidentified (public access) research datasets with NDI-linked data to be shared without further NDI approval. Potentially re-identifiable datasets also may be shared without further NDI approval provided the research dataset is not transferred from one investigator to another but instead shared via a data enclave provided that the investigator obtained approval in the original NDI application to share the data via an enclave. An investigator also may share potentially re-identifiable NDI-linked research datasets with a data repository without further NDI approval provided the data repository shares the dataset on behalf of the investigator bound to the same constraints as the investigator (i.e., shared only if the dataset is fully-deidentified or shared only via a data enclave if potentially re-identifiable). During the period of this agreement, NDI will attempt to negotiate with the 57 vital registration jurisdictions to allow further data sharing flexibility without NDI approval. The MOU was reissued in FY2022 between CDC/NCHS and NIH/IMOD and OBSSR.
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National Death Index Working Group
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Committee, Work group, Advisory group, or Task Force
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CDC
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NICHD, CC, NCATS, NCI, NHLBI, NIA, NIAID, NIDA, NIMH, OD/DPCPSI/OBSSR
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The National Death Index (NDI) is a centralized database of death record information on file in state vital statistics offices. Working with these state offices, the National Center for Health Statistics (NCHS) established the NDI as a resource to aid epidemiologists and other health and medical investigators with their mortality ascertainment activities. The National Death Index Working Group brings together federal and non-federal demographic experts to improve the quality, comprehensiveness, and utility of the National Death Index.
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National Emerging Contaminant Research Initiative
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Research Initiative
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CDC, ATSDR, FDA
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NIEHS
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Congressional Mandate
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National Family Health History Group
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Public Education Campaign
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CDC
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NHGRI, CC, OD/OSP
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Federal, state, and other stakeholders focus on increasing awareness of the value of family health history in managing health risks. National Family History Day is designated by the Surgeon General for increasing awareness of the above. Members of this group coordinate public communications and resource development.
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National Food and Nutrient Analysis Program (NFNAP)
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Committee, Work group, Advisory group, or Task Force
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CDC, IHS, FDA
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NCI, NHLBI, NEI, NIA, NICHD, NIDCR, NIDDK, CSR, NIEHS, OD
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The generation of original analytical data for foods at the US Department of Agriculture (USDA) is conducted through the National Food and Nutrient Analysis Program (NFNAP) in collaboration with multiple groups including the Department of Health and Human Services (HHS) and other federal agencies. NFNAP includes statistically based sampling plans for Key Foods and analysis of foods by qualified laboratories. The five Specific Aims of the NFNAP are to: (1) establish a monitoring program for Key Foods and critical nutrients. Key Foods are frequently consumed foods and ingredients, which collectively contributed more than 75 percent of the intake of any specific nutrient for the US population; (2) conduct comprehensive analyses of selected Key Foods; (3) develop databases for high priority foods consumed by US ethnic subpopulations; (4) develop databases for new bioactive components; and (5) develop a validated database for ingredients in dietary supplements. Analytical data generated through the NFNAP are compiled and released in annual updates of the USDA National Nutrient Database for Standard Reference (SR). They are also used to calculate estimates for related foods not analyzed, to assess nutrient variability, and to evaluate methods for estimating the nutrient content of multi-ingredient foods. These values will be used by the Food Surveys Research Group (FSRG), Agricultural Research Service (ARS) to develop the Food and Nutrient Dataset for Dietary Surveys used in the “What We Eat in America” (WWEIA) component of the National Health and Nutrition Examination Survey (NHANES).
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National Health Interview Survey (NHIS) Cancer Control Supplement
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Health Survey
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CDC
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NCI
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The National Health Interview Survey (NHIS) - started in 1957 - is a continuous, nationwide in-person survey of approximately 27,000 sample adult and 9,000 sample child interviews annually, in the civilian non-institutionalized population. The NHIS oversamples African-American and Hispanic respondents. The National Cancer Institute (NCI) periodically sponsors a Cancer Control Supplement (CCS) which is administered to a randomly selected sample of 39,000 adults. The CCS focuses on issues pertaining to knowledge, attitudes, and practices of cancer-related health behaviors, screening, and risk assessment.
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