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STS/ACC TVT Registry
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Meeting/ Workshop
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CMS, FDA
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NHLBI
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The STS/ACC TVT Registry, created through a collaboration between STS and the American College of Cardiology (ACC), monitors patient safety and real-world outcomes related to transcatheter valve replacement and repair procedures – emerging treatments for valve disease patients.
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Subcommittee on Open Science (Formerly Interagency Working Group on Open Science)
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Committee, Work group, Advisory group, or Task Force
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ACL, AHRQ, CDC, FDA, OS
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OD/OSP, NLM, OD/OER
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Advance Federal efforts to support open science by increasing access to and use of the results of Federally funded research and development.
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Subcommittee on Open Science Effective Data Management Subgroup
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Committee, Work group, Advisory group, or Task Force
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ACL, ASPR, CDC
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NLM, OD/OSP
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The SOS Effective Data Management Subgroup (formerly the Data Management ; Repository Standards Subgroup) was established to coordinate implementation of and ongoing support for federal agency policies on public access to research data. NLM co-chairs this group with NSF and ACL.
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Substance Abuse and Mental Health Services Administration (SAMHSA) Evidence-Based Practices Resource Center (EBRC) Guide
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Other
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SAMHSA, CDC
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NIDA, NIAAA
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This technical expert panel meets to discuss and review the new Evidence-Based Practices Resource Center (EBRC) guide, titled "Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System," that the Substance Abuse and Mental Health Services Administration (SAMHSA) is developing.
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Sudden Death in the Young (SDY) Registry
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Resource Development
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CDC, HRSA
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NHLBI, NINDS
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The Sudden Death in the Young (SDY) Registry is a surveillance system to track sudden deaths in youths less than or equal to 19 years of age in up to 10 states and to gather clinical data and a DNA sample to be used for research to explore the causes and risk factors for sudden death in the young. The SDY Registry is a collaboration between the National Heart, Lung, and Blood Institute (NHLBI), National Institute of Neurological Disorders and Stroke (NINDS), and Centers for Disease Control and Prevention (CDC).
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Support for Implementation of Agency Public Access Policies
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Resource Development
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AHRQ, CDC, FDA, IOS
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NLM, OD/OSP
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NIH Public Access Policy was created by NIH and established in statute by Congress in the Consolidated Appropriations Act 2008, P. L. 110-161, enacted on 12/26/2007. It ensures that the public can access without charge peer-reviewed journal articles arising from NIH-funded research. Since 2008, the PubMed Central (PMC) database has served as the repository for journal articles subject to the NIH Public Access Policy. The Office of Science and Technology Policy (OSTP) coordinated the development of public access policies across federal science agencies, and OSTP released a directive in February 2013 to increase public access to scientific publications and digital data. NIH is collaborating with five divisions and offices in HHS and four agencies outside HHS to use PMC and related services in support of their public access policies. Interagency agreements have been signed with AHRQ, ASPR, CDC, FDA and ACL within HHS, as well as with NASA, NIST, VA, EPA, and DHS. Researchers either employed and/or funded by all of these agencies have begun depositing manuscripts in PMC. IAAs with VA and AHRQ have also been extended to support inclusion of non-journal literature in NCBI's Bookshelf resource.
NIH has also entered memorandums of understanding with NOAA and DOD to share manuscripts deposited in PMC with other federal repositories, streamlining compliance with public access requirements for authors.
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Supporting Early Psychosis Research and Implementation
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Research Initiative
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OS, ASPE
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NIMH
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Institute of Mental Health support research on the delivery of evidence-based early psychosis care, including facilitating the implementation of evidence-based coordinated specialty care (CSC) for early psychosis. The agencies meet on a regular basis to inform each other's research agenda on early psychosis care generally and CSC specifically, identify synergies in our research initiatives and formulate new research initiatives, and share related draft reports and funding opportunity announcements for comment.
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Supporting the Whole Student: Mental Health and Well-Being in STEMM Undergraduate and Graduate Education
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Committee, Work group, Advisory group, or Task Force
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SAMHSA
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NIMH, NIAAA, NIDA
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A Committee, convened by the National Academy of Sciences, conducted a study of the ways in which colleges and universities provide treatment and support for the mental health and well-being of undergraduate and graduate students, with a focus on students enrolled in science, technology, engineering, mathematics, and medicine courses. The Committee reviewed data and findings and conferred with experts in the mental health field, to gain an understanding of the resources, programs, policies, and practices geared to improving mental health in colleges and universities. The Committee published a report in January 2021, detailing their findings and recommendations for improving resources, programs, policies, and practices.
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Surveillance, Epidemiology, and End Results (SEER) Program
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Resource Development
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CDC
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NCI
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The Surveillance, Epidemiology, and End Results (SEER) program is the premier source for cancer statistics in the US. It collects information on incidence, prevalence, and survival from specific geographic areas representing 48 percent of the US population. Through SEER, NCI develops reports on all of these information areas plus cancer mortality for the entire country. The site is intended for anyone interested in US cancer statistics or cancer surveillance methods.
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Synthetic DNA Working Group
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Committee, Work group, Advisory group, or Task Force
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CDC, OS
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OD/OSP
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Re-examining and updating (if necessary) the Screening Framework Guidance for Providers of Synthetic Double-Stranded DNA, which was released in 2010.
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