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Drug Data Interagency Working Group (Data IWG)
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Committee, Work group, Advisory group, or Task Force
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FDA, ASPE, CDC, SAMHSA
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NIDA
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The Drug Data Interagency Working Group has recently been revitalized and brings together various agencies to discuss any upcoming data releases, latest research and studies, meetings and conferences, exploring near-real-time-data, and for development of a Data Plan.
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Drug Development Interest Group
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Committee, Work group, Advisory group, or Task Force
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ASPR
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NIAID, FIC, NCI, NHLBI
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Share information about state of the art and challenges in drug development for infectious diseases
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Drug Induced Liver Injury Network (DILIN)
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Resource Development
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FDA
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NIDDK, NCI
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Both a prospective and retrospective database containing cases of drug-induced liver disease, the Drug-Induced Liver Injury Network (DILIN) is funded by a cooperative agreement and includes eight clinical centers and a central data coordinating center. One of the goals of the DILIN is to establish a database of well-characterized cases of drug-induced liver injury along with serum, DNA, and tissue samples that will facilitate research on the mechanisms of hepatic injury due to drugs. Cases of liver injury due to herbal medications are also included. The DILIN will develop standardized definitions of drug-induced liver disease and standardization of scoring systems for causality. Three employees of the Food and Drug Administration (FDA) serve as ad hoc members on the committee overseeing the network activities.
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Early Hearing Detection and Intervention
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Meeting/ Workshop
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CDC, HRSA, ACF
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NIDCD
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This is Federal collaboration program involving the National Institute on Deafness and Other Communication Disorders (NIDCD), the Centers for Disease Control and Prevention (CDC), and the Health Resources and Services Administration (HRSA). NIDCD collaborates on early identification and diagnosis of hearing loss and intervention services for newborns and infants. HRSA funds awards to states and healthcare providers to screen newborns and young children for hearing loss. CDC funds states to develop data systems to track hearing loss. NIDCD also funds research grants to scientists throughout the US to study early hearing detection and intervention services. Regular (roughly quarterly) meetings with federal partners, currently organized and facilitated by HRSA.
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Early Intervention to Promote Cardiovascular Health of Mothers and Children (ENRICH) Multisite with Coordinating Center
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Research Initiative
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HRSA
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NHLBI, NICHD, NIDDK, OD/DPCPSI/OBSSR, OD/DPCPSI/ODP
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To test the effectiveness of an implementation-ready intervention designed to promote cardiovascular health (CVH) and address CVH disparities in both mothers and children (0-5 yr.) who are of low socio-economic status (SES), or live in low-income underserved rural or urban communities, or in diverse geographic regions with high burden of cardiovascular disease (CVD) risk factors (obesity, hypertension, diabetes).
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Ebola Clinical Research Response in Democratic Republic of the Congo
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Research Initiative
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CDC, ASPR
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NIAID
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Multi-lateral collaborative partnerships including, but not limited to National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and host countries Ministeries of Health. Research focus includes Ebola and other emerging and re-emerging infectious diseases. These programs are capable of rapidly mounting a clinical research response.
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Ebola Clinical Research Response in West Africa (Guinea, Liberia)
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Research Initiative
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CDC, FDA
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NIAID
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Multi-lateral collaborative partnerships including, but not limited to National Institutes of Health (NIH), Centers for Disease Control and Prevention (CDC), and host countries MoH. Research focus includes Ebola and other emerging and re-emerging infectious diseases. These programs are capable of rapidly mounting a clinical research response.
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Ebola Vaccines Advisory Committee on Immunization Practises (ACIP) Working Group
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Committee, Work group, Advisory group, or Task Force
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CDC
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NIAID
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Develop recomendations on Ebola Vaccines for Advisory Committee on Immunization Practises (ACIP)
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eCare Plan for People with Multiple Chronic Conditions Project
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CMS, FDA, HRSA, ASPE, ACL
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NIA, NCI, NIDDK, NLM
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To develop and test: 1) a clinician-facing SMART on FHIR e-care plan application to enable clinicians to view and share comprehensive e-care plan data for people with multiple chronic conditions and 2) an HL7 Implementation Guide (IG) to specify data standards and help healthcare institutions implement the e-care plan.
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ECHO Institute and Project ECHO for Cancer Research and Control
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Other
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CDC
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NCI
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The mission of Project ECHO (Extension for Community Healthcare Outcomes) at the University of New Mexico Health Sciences Center (UNMHSC) is to demonopolize knowledge and amplify the capacity to provide best practice care for underserved people all over the world. In pursuit of this mission, Project ECHO® faculty, staff and partners have dedicated themselves to de-monopolizing knowledge in order to expand access to best-practice medical care across the United States and globally. The ECHO model utilizes a technology-enabled case-based knowledge exchange approach. The NCI/CGH through partnership with the ECHO Institute utilizes the ECHO model to convene global cancer research and control networks to exchange knowledge to advance the uptake of evidence-based interventions to advance cancer control and build research partnerships.Project Extension for Community Healthcare Outcomes (ECHO) is a collaborative medical education model that aims to build workforce and knowledge capacity, through use of online videoconferencing to allow for knowledge exchange across interdisciplinary teams on relevant medical, healthcare, and health systems related topics. The National Cancer Institute (NCI) Center for Global Health (CGH) Project Echo Cancer Control Planning Program will link participants active in cancer control planning in low- and middle-income country settings with researchers, regional colleagues, and relevant technical experts, through monthly ECHO sessions that will provide virtual didactic instruction, case study learning, and knowledge exchange on relevant evidence-based cancer control planning principles. These sessions will relay evidence-based, general cancer control principals and related to cervical cancer screening. The CGH Project ECHO program’s primary goals are to increase participant knowledge of the aforementioned topics, improve the application of knowledge, including evidence-based practices and policies, and to increase collaboration among participants and experts who are active in cancer control planning in the participating countries.
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