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National Database for Antibiotic Resistant Organisms (NDARO)
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Resource Development
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CDC, FDA
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NIAID, CC, FIC, NCATS, NCI, NHLBI, NIA, NIAAA, NIDA
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The objective of this collaboration is to produce a collection of high-quality genome sequences from antibiotic-resistant strains and to create and maintain a publicly accessible database -- National Database for antibiotic resistance (AR), developed and housed at the National Center for Biotechnology Information of the National Library of Medicine (NLM).
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National Death Index Linkage Collaboration (NIH-NDI Agreement)
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Resource Development
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CDC
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OD/DPCPSI/OBSSR, OD/IMOD
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Beginning January 1, 2020, through an agreement between the National Institutes of Health (NIH) and the Centers for Disease Control (CDC) National Center for Health Statistics, (NCHS), NIH began reimbursing the NCHS National Death Index (NDI) for the costs of NIH-supported investigators to link their research databases with the NDI for the research aims supported by the NIH. "NIH-supported investigators" refers to extramural investigators actively funded by the NIH, contract investigators working under an active contract with the NIH, and intramural researchers employed by the NIH. These NIH-supported investigators can link their research data to the National Death Index (NDI) at no cost to the NIH supported investigator. NIH-supported investigators will continue to submit applications for NDI linkage as per current NDI procedures, including NDI review and approval. This agreement applies only to NIH-supported investigators who are actively funded by the NIH to conduct research that requires NDI linkage. To be covered under this agreement, the NIH-supported investigator must be the owner or steward of the research data to be linked to the NDI datafile, and subject to limitations in linkages as identified in the agreement. As a part of the NIH/NCHS agreement, NCHS will be implementing an enhanced online application and will increase the frequency of NDI releases to quarterly. NDI allows fully deidentified (public access) research datasets with NDI-linked data to be shared without further NDI approval. Potentially re-identifiable datasets also may be shared without further NDI approval provided the research dataset is not transferred from one investigator to another but instead shared via a data enclave provided that the investigator obtained approval in the original NDI application to share the data via an enclave. An investigator also may share potentially re-identifiable NDI-linked research datasets with a data repository without further NDI approval provided the data repository shares the dataset on behalf of the investigator bound to the same constraints as the investigator (i.e., shared only if the dataset is fully-deidentified or shared only via a data enclave if potentially re-identifiable). During the period of this agreement, NDI will attempt to negotiate with the 57 vital registration jurisdictions to allow further data sharing flexibility without NDI approval.
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National Death Index Working Group
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Committee, Work group, Advisory group, or Task Force
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CDC
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NICHD, CC, NCATS, NCI, NHLBI, NIA, NIAID, NIDA, NIMH, OD/DPCPSI/OBSSR
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The National Death Index (NDI) is a centralized database of death record information on file in state vital statistics offices. Working with these state offices, the National Center for Health Statistics (NCHS) established the NDI as a resource to aid epidemiologists and other health and medical investigators with their mortality ascertainment activities. The National Death Index Working Group brings together federal and non-federal demographic experts to improve the quality, comprehensiveness, and utility of the National Death Index.
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National Emerging Contaminant Research Initiative
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Research Initiative
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CDC, ATSDR, FDA
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NIEHS
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Congressional Mandate
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National Family Health History Group
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Public Education Campaign
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CDC
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NHGRI, CC, OD/OSP
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Federal, state, and other stakeholders focus on increasing awareness of the value of family health history in managing health risks. National Family History Day is designated by the Surgeon General for increasing awareness of the above. Members of this group coordinate public communications and resource development.
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National Health Interview Survey (NHIS) Cancer Control Supplement
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Health Survey
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CDC
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NCI
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The National Health Interview Survey (NHIS) - started in 1957 - is a continuous, nationwide in-person survey of approximately 27,000 sample adult and 9,000 sample child interviews annually, in the civilian non-institutionalized population. The NHIS oversamples African-American and Hispanic respondents. The National Cancer Institute (NCI) periodically sponsors a Cancer Control Supplement (CCS) which is administered to a randomly selected sample of 39,000 adults.
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National Healthcare Quality and Disparities (NHQDR) Inter-Agency Workgroup
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CDC, CMS, HRSA
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NCI, NIAID, NIEHS, NIMHD
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For the 16th year in a row, the Agency for Healthcare Research and Quality (AHRQ) has reported on progress and opportunities for improving healthcare quality and reducing healthcare disparities. As mandated by the U.S. Congress, the report focuses on “national trends in the quality of health care provided to the American people” (42 U.S.C. 299b-2(b)(2)) and “prevailing disparities in health care delivery as it relates to racial factors and socioeconomic factors in priority populations” (42 U.S.C. 299a-1(a)(6)). The report is produced with the support of an HHS Interagency Work Group (IWG) and guided by input from AHRQ’s National Advisory Council and the Institute of Medicine (IOM), now known as the Health and Medicine Division of the National Academies of Sciences, Medicine, and Engineering. The National Cancer Institute (NCI) Surveillance, Epidemiology, and End Results (SEER) Data and data from Tumor Registries are among the data for monitoring cancer related care. NCI currently Chairs the Cancer Care Sub-Committee which defines the measures/ indicators and data sources in the reports for access to and quality of cancer care received by population groups at various phases of the Cancer Care Continuum.
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National Hispanic Science Network (NHSN)
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Meeting/ Workshop
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AHRQ, CDC, SAMHSA
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NIDA, NIAAA, NIMH
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The National Hispanic Science Network is dedicated to improving the health equity of Hispanics. It has broad representation from academic and government agencies, including several National Institutes of Health Institutes and Centers, the Centers for Disease Control and Prevention, the Substance Abuse and Mental Health Services Administration, and the Agency for Healthcare Research and Quality.
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National Institute on Deafness and Other Communication Disorders (NIDCD) Directory of Organizations
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Resource Development
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AHRQ, CDC, CMS
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NIDCD
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The National Institute on Deafness and Other Communication Disorders (NIDCD) Directory of Organizations is designed to help patients, health consumers, providers, and others find agencies and organizations with an interest in the diseases and disorders of human communication. The directory is maintained as an online database accessible to the public from the NIDCD website. Several US Department of Health and Human Services agencies are included.
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National Institutes of Health (NIH) Flow Cytometry Interest Group
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Committee, Work group, Advisory group, or Task Force
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FDA
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NCI, CC, NEI, NHLBI, NIAID, NIAMS, NIDCR
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The NIH Flow Cytometry Interest Group, an NIH-affiliated scientific interest group supported by the NIH Office of the Director, provides central information for basic and clinical investigators doing flow and image cytometry at NIH. The group sponsors two meetings a year on the science and technology of cytometry, and is a central clearinghouse for cytometry resources at NIH.
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