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Linkage of Surveillance, Epidemiology, End Results data to Centers for Medicare and Medicaid data
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Resource Development
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CMS
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NCI
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The Surveillance, Epidemiology, End Results (SEER) registry data (e.g., cancer diagnosis date, site, histology) are individually linked to Centers for Medicare and Medicaid Services (CMS) data (e.g., enrollment, claims, assessments and surveys) using personally identifiable information. The data on the matching cancer cases are pulled together with CMS data on non-cancer controls (e.g., individuals not known to have a cancer diagnosis who reside in a SEER area) to create four research data resources: SEER-Medicare, SEER-Medicare Health Outcomes Survey (SEER-MHOS), SEER-Consumer Assessment of Healthcare Providers and Systems (SEER-CAHPS) and SEER-Medicaid.
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Logical Observation Identifiers Names and Codes (LOINC)
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Resource Development
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AHRQ, CDC, CMS, HRSA, IHS, IOS
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NLM
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This activity supports the maintenance, distribution, and continued development of LOINC®, a set of universal codes and names to identify laboratory and other clinical observations which facilitates the exchange and pooling of clinical results for clinical care, outcomes management, public health, and research. The Regenstrief Institute, Inc., an internationally renowned healthcare and informatics research organization, maintains the LOINC database and supporting documentation, and the RELMA mapping program.
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Lower Limb Prosthetics Research Standards Working Group
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Committee, Work group, Advisory group, or Task Force
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ACL, AHRQ, CMS, FDA
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NICHD, NIDDK, OD
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This working group helps to determine research standards for lower limb prosthetics.
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Lung Scoring System
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Committee, Work group, Advisory group, or Task Force
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ASPR, CDC
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NIAID
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To determine best practices for a systematic scoring of pathology for various pathogens of interest.
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Lupus Federal Working Group
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CDC, FDA, HRSA, OS
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NIAMS, NCCIH, NEI, NHLBI, NIAID, NICHD, NIDCR, NIDDK, NIEHS, NIMHD, NINDS, OD/DPCPSI/OBSSR, OD/DPCPSI/ORWH
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The Lupus Federal Working Group, established on behalf of the Department of Health and Human Services (HHS) Secretary by the National Institutes of Health (NIH), facilitates collaboration among NIH components, other Federal agencies, voluntary and professional organizations, and industry groups with an interest in lupus.
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Lyme and Tick-borne Diseases Work Group
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA, OS
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NIAID
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This workgroup involves members from agencies including the Centers for Disease Control and Prevention (CDC), Food and Drug Administration (FDA), and the National Institutes of Health (NIH) with the purpose of continued coordination and communication of activities, policy updates, events, agency highlights, and other shared interests relating to Lyme disease and other tick-borne diseases.
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Machine learning methods for literature data extraction
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Research Initiative
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FDA
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NIEHS
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This project is applying natural language processing and machine learning methods to identify specific data elements in the full text of scientific publications
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Mapping of the Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT) and International Classification of Disease (ICD) Clinical Terminology
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Resource Development
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CDC, IOS
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NLM
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The US Department of Health and Human Services (HHS) has set a goal for the nationwide implementation of an interoperable health information technology infrastructure to improve the quality and efficiency of healthcare. Achieving this goal will require that key clinical data elements are captured or recorded in detailed, standardized form (using standard vocabularies, codes, and formats) as close to their original sources (patients, healthcare providers, laboratories, diagnostic devices, etc.) as possible. If these standardized clinical data can also be used to generate HIPAA- compliant billing transactions automatically, this will provide another incentive for adoption of clinical data standards. For the automated generation of bills from clinical data to become a reality, robust mappings from standard clinical terminologies to the HIPAA code sets must be created. To support the transition to ICD-10-CM in 2015, a map from SNOMED CT to ICD-10-CM is being created.
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Materials Genome Initiative (MGI)
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Committee, Work group, Advisory group, or Task Force
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FDA
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NIBIB
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The Office of Science and Technology Policy(OSTP) chartered this committee to create a new era of policy, resources, and infrastructure that support U.S. institutions in the effort to discover, manufacture, and deploy advanced materials twice as fast, at a fraction of the cost. Led by the National Institute of Standards and Technology(NIST), the National Science Foundation (NSF), and the Department of Defense (DoD) as co-leads it also includes the Food and Drug Administration (FDA), the National Aeronautics and Space Administration (NASA), and the Department of Energy (DoE). 2020 meeting was cancelled due to the COVID-19 pandemic.
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Maternal Health Working Group
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Committee, Work group, Advisory group, or Task Force
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ACF, ACL, AHRQ, CDC, CMS, FDA, HRSA, IHS, OS, SAMHSA
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NICHD, NHLBI, NIMHD, OD/DPCPSI/ORWH
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This internal Department of Health and Human Services (HHS) group was formed in June 2019, with the goal of developing a trans-HHS Action Plan aimed at making the U.S. the safest place in the world to give birth.
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