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Steering Committee of the Scientific Interest Group in Glycobiology
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Committee, Work group, Advisory group, or Task Force
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FDA
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NIGMS, NCI, NHGRI, NHLBI, NIAID, NICHD, NIDCR, NIDDK
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The Steering Committee of the Scientific Interest Group in Glycobiology (GlycoSIG) is comprised of NIH intramural scientists and program staff as well researchers from the Food and Drug Administration (FDA) and the National Institute of Standards and Technology (NIST). The committee organizes a seminar series; an annual NIH/FDA Glycosciences Research Day Meeting (averaging 250 people in attendance); and a Mentoring & Networking Luncheon for graduate students and postdoctoral fellows to meet with staff from federal agencies and learn about NIH extramural programs. The Committee also offers a Special Topics in the Glycosciences Course every other year. In addition, the GlycoSIG maintains an email listserve to distribute information on meetings, jobs, funding opportunities, and seminars. The SIG cross posts with other NIH SIG’s that share interests.
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Stimulating Peripheral Activity to Relieve Conditions
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Research Initiative
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FDA
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OD/DPCPSI, NCATS, NCCIH, NEI, NHLBI, NIAID, NIBIB, NICHD, NIDA, NIDCD, NIDDK, NIMH, NINDS, OD/DPCPSI/OSC
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The Stimulating Peripheral Activity to Relieve Conditions (SPARC) program''s central goal is to provide an integrated, predictive neural circuit map that illustrates the physiology and biological mechanisms underlying peripheral nervous system control of internal organ function. SPARC is collaborating with the FDA''s CDRH to facilitate discovery of new therapeutic uses for existing neuromodulation devices as well as improvements that make these devices more effective and/or minimally invasive. SPARC also coordinates with DARPA''s ElectRx program to minimize research overlap while ensuring complimentary efforts are undertaken to collectively advance the neuromodulation field as a whole.
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Structured Data Capture (SDC) Initiative
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Resource Development
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AHRQ, CDC, CMS, FDA, HRSA, IHS, OS
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NLM, NCI
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The Structured Data Capture (SDC) Initiative is sponsored by the Department of Health and Human Services, Office of the National Coordinator (ONC), as part of the Standards and Interoperability Framework, a program developed to foster collaboration between the public and private sectors to promote the interoperable exchange of health data and information. The SDC mission is to develop and validate a data architecture and exchange standards so that a structured set of data can be accessed from electronic health record systems, merged with comparable data and made accessible for purposes other than clinical care, such as research, patient safety, and public health. The SDC Working Group on Common Data Elements and Forms, chaired by NLM/NIH with NCI/NIH participation, evaluated and selected two ISO standards to serve as the basis for definitions of Common Data Elements and electronic Case Report Forms (eCRF) under the initiative: ISO/IEC 11179 (Metadata Registries and Data Elements metamodel) and ISO/IEC 19763-13 (Forms metamodel).
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Study of Cancer Among US Firefighters
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Research Initiative
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CDC
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NCI
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A retrospective cohort study to evaluate the relationship between occupational exposures of firefighters and cancer risk.
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Study to Assess the Incidence of Type 1 Diabetes in Young Adults
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Research Initiative
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CDC
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NIDDK
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The goal of this study is to develop, implement, and evaluate a population-based, timely, low-cost surveillance system for the assessment of the incidence of type 1 diabetes among young adults in the United States. The study will determine the incidence of type 1 diabetes among young adults and will include an Islet Autoantibody Standardization Program (ISAP)-certified central laboratory for the measurement of diabetes auto anti-bodies in all individuals identified with newly diagnosed diabetes. Incident cases of diabetes will be identified using electronic health records.
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Subcommittee for Toxics and Risks
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA, OS
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NIEHS, NLM
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The Subcommittee for Toxics and Risks (T&R) serves under the National Science and Technology Council’s, Committee on Environment, Natural Resources, and Sustainability (CENRS). The committee consists of 17 federal agencies with public health or regulatory responsibilities involving toxicology, environmental exposure, or epidemiology. NIH/NIEHS has been a co-chair of this committee for the past 8 years in close cooperation with the Environmental Protection Agency and the Department of Defense. The T&R meets bi-monthly to share ongoing issues relevant to research, regulations, and emerging science. Presently, the White House Office of Science and Technology Policy is in the process of reorganization. The present charter for the T&R expires on April 30, 2018
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Subcommittee on Disaster Reduction
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Committee, Work group, Advisory group, or Task Force
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CDC
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NIEHS
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The Subcommittee on Disaster Reduction (SDR) is a Federal interagency body of the US National Science and Technology Council under the Committee on Environment, Natural Resources and Sustainability. Chartered in 1988, the SDR provides a unique Federal forum for information sharing; development of collaborative opportunities; formulation of science- and technology-based guidance for policymakers; and dialogue with the US policy community to advance informed strategies for managing disaster risks. Under its mandate, the SDR advises the White House Office of Science and Technology Policy (OSTP) and others about relevant risk reduction resources and the related work of SDR Member Agencies. Additional information about the subcommittee''s mandate is available in the SDR Charter.
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Subcommittee on Ocean Science and Technology
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Committee, Work group, Advisory group, or Task Force
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CDC
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NIEHS
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The purpose of the Subcommittee on Ocean Science and Technology (SOST) is to advise and assist the National Science and Technology Council (NSTC)''s Committee on Environment, Natural Resources, and Sustainability on national issues of ocean science and technology. In that capacity, the SOST is the lead interagency entity for Federal coordination on ocean science and technology. The SOST identifies ocean science and technology priorities, fosters and facilitates ocean science and technology activities, and contributes to Federal goals and agency missions in this area, including through collaborative interagency strategies. The SOST’s interagency efforts expand knowledge, provide advice, and offer recommendations regarding the advancement of ocean science and technology across the federal government and with the broader ocean community, including international activities.
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Sudden Death in the Young (SDY) Registry
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Resource Development
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CDC, HRSA
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NINDS, NHLBI
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The Sudden Death in the Young (SDY) Registry is a surveillance system to track sudden deaths in youths less than or equal to 19 years of age in up to 10 states and to gather clinical data and a DNA sample to be used for research to explore the causes and risk factors for sudden death in the young. The SDY Registry is a collaboration between the National Heart, Lung, and Blood Institute (NHLBI), National Institute of Neurological Disorders and Stroke (NINDS), and Centers for Disease Control and Prevention (CDC).
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Suicide Mortality Surveillance
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Other
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CDC
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NIMH
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Through the Suicide Mortality Surveillance project, the Centers for Disease Control and Prevention (CDC) will develop and refine a rapid suicide mortality surveillance system. Monitoring the trends in cause-specific mortality is critical for identifying emerging public health problems and in generating evidence for health policy development, implementation, and evaluation. Timely information is important for monitoring severity of the disease or condition, allocating resources, and facilitating preventive and control programs. The results from this study will yield valuable information about the validity, feasibility, and timeliness of the enhanced vital statistics system for rapid suicide surveillance.
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