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Registry of Patient Registries (RoPR) Project
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Committee, Work group, Advisory group, or Task Force
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AHRQ
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NIDDK, NLM
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The Agency for Healthcare Research and Quality (AHRQ) is working to design and deploy Registry of Patient Registries (RoPR), which will create a searchable central listing of patient registries in the United States that will be integrated with ClinicalTrials.gov. As part of this project, broad consultations were carried out with relevant groups. Staff of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) participated extensively in these consultations.
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Report on Carcinogens (RoC) Evaluation of Cobalt and Cobalt Compounds that Release Cobalt In Vivo
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Committee, Work group, Advisory group, or Task Force
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ATSDR
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NIEHS
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Collaborated on preparing the Report on Carcinogens (RoC) evaluation of cobalt and cobalt compounds that release cobalt in vivo for possible listing in the RoC. The RoC is a congressionally mandated, science-based, public health report that identifies substances in our environment that are cancer hazards for people living in the U.S.
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Research in diabetes mellitus, its complications, and obesity
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Research Initiative
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IHS
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NIDDK
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The objectives are to identify the determinants and understand the progression of type 2 diabetes, obesity, and other chronic diseases in Pima Indians.
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Research to Guide Practice Enhancing HIV/AIDS Platforms to Address NCDs in Low Resource Settings (PEPFAR-NCD)
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Other
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CDC
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FIC, NCI, NHLBI, NIAID, NICHD, NIDDK, NIMH, NIMHD, NINDS, NINR, OD/DPCPSI/OAR, OD/DPCPSI/ORWH
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The goal of the President''s Emergency Plan for AIDS Relief (PEPFAR) non-communicable diseases (NCD) project (PEPFAR-NCD), a collaboration between PEPFAR implementing partners, is to articulate research priorities that incorporate prevention, care and treatment for non-communicable diseases into HIV/AIDS platforms in low- and middle-income countries (LMICs). The PEPFAR-NCD project focuses on people living with HIV (PLWH), many of whom are being treated successfully for HIV, but who are increasingly experiencing co-morbid diseases or conditions such as cardiovascular disease, diabetes, cancer, and depression. This project has produce landscape analyses and is establishing research agendas, priorities, and products, including modeled data, to enhance NCD services through PEPFAR platforms.
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Research-Tested Intervention Program Database (RTIPs)
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Resource Development
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SAMHSA
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NCI
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The Research-Tested Intervention Program Database (RTIPs) is a searchable database of cancer control interventions and program materials and is designed to provide program planners and public health practitioners easy and immediate access to research-tested materials.
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Revision of CDC Guidelines
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Committee, Work group, Advisory group, or Task Force
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CDC
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CC
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The collaboration serves to revise guidelines for managing occupational exposures to HIV and managing healthcare workers infected with hepatitis B.
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Ruth L. Kirschstein National Research Service Award Program
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Training Initiative
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AHRQ, HRSA
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OD/OER
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The National Institutes of Health Ruth L. Kirschstein National Research Service Award (Kirschstein-NRSA) program provides predoctoral and postdoctoral training in biomedical, behavioral, and clinical research, including health services and primary care research, to meet the nation’s needs for investigators in these fields. To help foster the training of health services and primary care researchers, a portion of the Kirschstein funds are annually transferred to the Agency for Healthcare Research and Quality and Health Resources and Services Administration by the NIH Budget Office, in accordance with Public Law 1118, Section 219 of the Public Health Service Act.
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RxNorm
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Resource Development
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FDA
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NLM
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RxNorm provides normalized names for clinical drugs and links its names to many of the drug vocabularies commonly used in pharmacy management and drug interaction software. By providing links between these vocabularies, RxNorm can mediate messages between systems not using the same software and vocabulary.
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Sabbatical in Clinical Research Management Program
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Training Initiative
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FDA, OS
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CC, FIC, NCATS, NEI, NHLBI, NIAID, NIDCR, NIDDK
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Experienced investigators come to the National Institutes of Health (NIH) to learn about management of a clinical research enterprise, including topics such as planning and budget development, protocol writing and tracking and scientific review. Sabbaticals are self-directed, meaning that the participant chooses from a list of electives and helps determine how much time to spend studying each topic. The electives are offered by leaders at the NIH and other U.S. Department of Health and Human Services agencies with the NIH Clinical Center being the most heavily involved.
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Safety and Efficacy Evaluations of Topical Microbicide (TM) Biomedical Prevention (BP) Products in the Repeat Low-Dose Macaque SIV/SHIV Infection Model
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Research Initiative
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CDC
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NIAID
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The National Institute of Allergy and Infectious Diseases (NIAID) and Centers for Disease Control and Prevention (CDC) recognize the need to perform preclinical safety and efficacy evaluations of candidate products in the repeat low-dose (RLD) macaque SIV/SHIV infection model established by CDC. NIAID established an interagency agreement with CDC to: 1) conduct safety and efficacy evaluations of Topical Microbicide/Biomedical Prevention products in the RLD macaque model, including pharmacokinetic/pharmacodynamic analyses of candidate biomedical prevention products; 2) utilize relevant macaque species, virus strains, and routes of infection to accomplish the proposed evaluations; and 3) perform other macaque studies as needed.
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