Title Collaboration Type HHS Participating Agencies NIH Participating Institutes, Centers, and Offices Description
AHRQ - Systematic Evidence Reviews Other AHRQ NHLBI Develop systematic evidence reviews on topics and questions through an Evidence-based Practice Center (EPC).
AHRQ evidence report on Comparative Effectiveness of Interventions to Manage Labor and AHRQ evidence report on Labor Dystocia Committee, Work group, Advisory group, or Task Force AHRQ NICHD AHRQ sponsors the development of various reports to assist public- and private-sector organizations in their efforts to improve the quality of healthcare in the United States. These reports provide comprehensive, science-based information on common, costly medical conditions and new health care technologies and strategies. The EPCs review all relevant scientific literature on a wide spectrum of clinical and health services topics. EPCs also produce technical reports on methodological topics and other types of evidence synthesis-related reports. NIH scientists serve as expert advisors and collaborators in the development of some of these reports.
AHRQ National Guidelines Clearinghouse/National Quality Measures Clearinghouse (NQMC/NGC) Editorial Board Committee, Work group, Advisory group, or Task Force AHRQ NLM The AHRQ’s National Guidelines Clearinghouse/National Quality Measures Clearinghouse (NQMC/NGC) Editorial Board is composed of healthcare professionals with collective expertise in evidence-based quality measures and clinical practice guidelines. This is an expert public-private panel that provides guidance concerning the content and presentation of the related but distinct AHRQ resources, the National Guidelines Clearinghouse, and the National Quality Measures Clearinghouse. The Board also serves as a resource for feedback and guidance on developments in health care that inform future work. NLM is a member of this editorial board.
AHRQ Patient Safety Workgroup Committee, Work group, Advisory group, or Task Force AHRQ NLM AHRQ Patient Safety Network (PSNet) is a national web-based resource featuring the latest news and essential resources on patient safety. The AHRQ Patient Safety Workgroup is an expert public-private panel that provides guidance to AHRQ concerning the implementation of legislation related to patient safety reporting and monitoring, including the “AHRQ Patient Safety Common Formats” for reporting patient safety events. NLM serves on this workgroup.
AHRQ Registry of Patient Registries (RoPR) Resource Development AHRQ NLM The Registry of Patient Registries (RoPR) is a database of registry-specific information intended to promote collaboration, reduce redundancy, and improve transparency. ClinicalTrials.gov worked with RoPR to implement a mechanism for patient registries to be registered in ClinicalTrials.gov and additional information provided directly at RoPR.
AIDSinfo/InfoSIDA Public Education Campaign CDC, FDA, HRSA NLM, NIAID, OD/DPCPSI/OAR AIDSinfo, a service of the US Department of Health and Human Services (HHS), offers access to the latest, federally approved HIV/AIDS medical practice guidelines, HIV treatment and prevention clinical trials, and other research information for health care providers, researchers, people affected by HIV/AIDS, and the general public.
Alaska Native Tumor Registry Resource Development CDC, IHS NCI In collaboration with CDC, IHS, and NCI, and with technical assistance from the Surveillance, Epidemiology, and End Results Program (SEER), the Alaska Native Tumor Registry collects information on cancer cases among Alaskan Native populations residing in Alaska.
Alcohol Clinical Trial Initiative (ACTIVE) Committee, Work group, Advisory group, or Task Force FDA NIAAA, NIDA A workgroup was formed under the auspices of the American College of Neuropsychopharmacology, known as the ACTIVE (Alcohol Clinical Trials Initiative) and consists of academic experts, industry representatives, and staff from the Food and Drug Administration, the National Institute on Alcohol Abuse and Alcoholism, and the National Institute on Drug Abuse. The purpose is to explore methodological issues of conducting alcohol clinical trials and to provide the FDA, pharma, and the academic community evidence-based analyses into aspects of alcohol clinical trials such as endpoints, durations of trials, the placebo effect, handling of missing data, and grace periods. ACTIVE provides analyses for the FDA to use in developing evidence-based guidelines.
Alzheimer''s Disease Neuroimaging Initiative (ADNI) Research Initiative FDA NIA, NIBIB The Alzheimer’s Disease Neuroimaging Initiative (ADNI) unites researchers with study data as they work to define the progression of Alzheimer’s disease. ADNI researchers collect, validate and utilize data such as MRI and PET images, genetics, cognitive tests, CSF, and blood biomarkers as predictors of the disease. Data from the North American ADNI’s study participants, including Alzheimer’s disease patients, mild cognitive impairment subjects and elderly controls, are available on a website run by NLM.
America''s Children Forum on Health and Family Statistics Resource Development SAMHSA NIDA As a member of this collaboration, NIDA contributes data from the, “Monitoring the Future Survey on Illicit Drugs, Alcohol and Tobacco Trends”.