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Logical Observation Identifiers Names and Codes (LOINC)
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Resource Development
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AHRQ, CDC, CMS, HRSA, IHS, OS
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NLM
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This activity supports the maintenance, distribution, and continued development of LOINC®, a set of universal codes and names to identify laboratory and other clinical observations which facilitates the exchange and pooling of clinical results for clinical care, outcomes management, public health and research. The Regenstrief Institute, Inc, an internationally renowned healthcare and informatics research organization, maintains the LOINC database and supporting documentation, and the RELMA mapping program.
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Long-term Oxygen Treatment Trial
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Research Initiative
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CMS
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NHLBI
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The Long-term Oxygen Treatment Trial is a randomized controlled clinical trial to assess the efficacy of around-the-clock, supplemental oxygen therapy in subjects with chronic obstructive pulmonary disease and moderately severe hypoxemia. NHLBI will administer and oversee the study, and Medicare will cover the costs of items and medical services that are generally available through that program to beneficiaries enrolled in the trial.
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Lupus Federal Working Group
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CDC, FDA, HRSA, OS
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NIAMS, NCCAM, NEI, NHLBI, NIAID, NICHD, NIDCR, NIDDK, NIEHS, NIMHD, NINDS, OD/DPCPSI/OBSSR, OD/DPCPSI/ORWH
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The Lupus Federal Working Group, established on behalf of the HHS Secretary by the NIH, facilitates collaboration among NIH components, other Federal agencies, voluntary and professional organizations, and industry groups with an interest in lupus.
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Lyme and Tick-borne Diseases Work Group
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA, OS
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NIAID
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This work group involves members from agencies including the Centers for Disease Control and Prevetion (CDC), Food and Drug Administration (FDA), and the NIH with the purpose of continued coordination and communication of activities, policy updates, events, agency highlights, and other shared interests relating to Lyme Disease and other tick-borne diseases.
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Mapping of the SNOMED CT and ICD Clinical Terminology
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Resource Development
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CDC, OS
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NLM
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The U.S. Department of Health and Human Services (HHS) has set a goal for the nationwide implementation of an interoperable health information technology infrastructure to improve the quality and efficiency of health care. Achieving this goal will require that key clinical data elements are captured or recorded in detailed, standardized form (using standard vocabularies, codes, and formats) as close to their original sources (patients, health care providers, laboratories, diagnostic devices, etc.) as possible. If these standardized clinical data can also be used to generate HIPAA- compliant billing transactions automatically, this will provide another incentive for adoption of clinical data standards. For automated generation of bills from clinical data to become a reality, robust mappings from standard clinical terminologies to the HIPAA code sets must be created. In preparation for the transition to ICD-10-CM in 2015, a map from SNOMED CT to ICD-10-CM is being created.
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Maternal and Child Health (MCH) Electronic Health Record (EHR) Pediatric Practice Based Network (PBRN)
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Research Initiative
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HRSA
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NICHD
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This effort provides $200,000 in FY2014 to the DHHS/HRSA/MCHB to fund to the following activities: Maternal and Child Health (MCH) Electronic Health Record (EHR) Pediatric Practice Based Research Network (PBRN) Initiative. Comparative Effectiveness Research (CER) and epidemiologic assessments of the use of selected psychotropic medications and the most commonly prescribed asthma medications in pediatric populations, as well as possible association between these medications and side effects in this population.
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Maternal and Child Health (MCH) Research Network Programs
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Research Initiative
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HRSA
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NICHD
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The MCH Research Programs supports Research Networks that focus on collaborative, multisite research and dissemination of information. The MCH Research Networks consist of three programs: MCH Pregnancy-related Care Research Network (PRCRN), MCH Pediatric Research Network, and Life Course Health Development Network. MCH Pregnancy-related Care Research Network The Pregnancy-related Care Research Network (PRCRN) promotes coordinated research activities that focus on studying the content of provider practice and risk reduction practices related to pregnancy care and translation of research to practice. These network activities should result in health and health services improvements in critical MCH areas such as low birth weight and preterm births. The following are key activities of the PRCRN: • Develop new ideas and conduct research studies on critical pregnancy-related health and women’s health issues. • Develop evidence based guidelines based on network research findings for use by practitioners that will result in improvements in pregnancy-related health and women’s health care services. • Disseminate critical information on its research findings and guidelines developed in order to assist health professionals, policy makers, and the public. MCH Pediatric Research Network The MCH Pediatric Research Network Program promotes coordinated multi-centered research activities, focused on translating research to practice that should result in health and health service improvements when applied directly into pediatric primary care and/or service settings. A network of primary care child health professionals will collaborate in the development and implementation of research designed to increase critical child health care knowledge. The primary activities of the Network include the following: • Developing new ideas and conducting research studies on critical child health issues. • Developing evidence-based guidelines based on network research findings for use by practitioners that will result in improvements in child health care services. • Disseminating critical information on its research findings and guidelines developed to health professionals, policy makers, and the public. Life Course Health Development Network The Life Course Health Development Research Network (LCRN) advances public health research on the epidemiology, social determinants, and on the origins and impacts of health disparities, from a life course perspective. These network activities should result in documenting the important role early life events play in shaping an individual’s health trajectory, while considering the interplay of how risk and protective factors, such as socioeconomic status, environmental exposures, health behaviors, stress, and nutrition, influence health throughout one’s lifetime. The key activities of the LCRN include the following: • Developing new ideas and a research agenda on life course health development; • Conducting research studies utilizing life course focused approaches that will influence health promotion and risk reduction strategies of the MCH population now, and over future generations; • Advancing the methods of studying life course health development; • Disseminating critical information on its research findings to assist health professionals, policy makers, and the public.
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Maternal and Child Health (MCH) Research Pediatric Practice Based Research Network (PBRN) Initiative
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Research Initiative
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HRSA
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NICHD
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The purpose of this activity is a continued cooperative agreement for NICHD to contribute funding to HRSA to fund, oversee, and manage a cooperative agreement to support a pediatric practice-based applied research network that will engage in coordinated multi-centered research activities, focusing on translating research to practice, and cultivate new researchers from among the practice-based constituency of the research network.
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Media-Smart Youth campaign outreach
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Meeting/ Workshop
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OS
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NICHD
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In FY14, the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) coordinated with the U.S. Department of Health and Human Services Center for Faith-Based and Neighborhood Partnerships to promote the Media-Smart Youth: Eat, Think, and Be Active! health education campaign. NICHD staff co-led a series of training webinars, hosted by the Partnership Center, to train hundreds of community leaders across the country in implementing Media-Smart Youth.
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Medical Countermeasures Surveillance Integrated Program Team
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA, OS
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NIAID
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This entity was created to identify the regulatory science research required of real‐time tracking and evaluation of medical countermeasures (MCMs) during public health emergencies. The team is developing a comprehensive Action Plan to identify and facilitate the development of systems that can be used to monitor MCM safety and clinical benefit during an event.
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