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Collaboration with Indian Health Service IRB in training IRB interns from Native communities
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Committee, Work group, Advisory group, or Task Force
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IHS
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CC, NHGRI
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The Clinical Center''s Department of Bioethics, in collaboration with NHGRI, piloted an Institutional Review Board (IRB) internship program for Native Americans. As part of the program, Sara Hull collaborated with the IRB of the Indian Health Service.
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Collaborative Islet Transplant Registry Ad Hoc Scientific Advisory Committee
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Committee, Work group, Advisory group, or Task Force
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FDA, HRSA
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NIAID
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This committee provides scientific direction to the Registry on an ad hoc basis.
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Committee on Fetus and Newborn
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Committee, Work group, Advisory group, or Task Force
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CDC
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NICHD
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The Committee on the Fetus and Newborn (COFN) studies issues and current advances in fetal and neonatal care; makes recommendations regarding neonatal practice; collaborates with the American College of Obstetricians and Gynecologists (ACOG) to consider perinatal issues on which the practices of obstetrics and pediatrics merge; and works cooperatively with ACOG on new editions of Guidelines for Perinatal Care. In 1937, the Academy established the Committee on Neonatal Morbidity and Mortality to collaborate with a similar Committee in the American Pediatric Society. Together, these committees agreed that neonatal mortality and morbidity could be reduced by applying what was already known. The group made a number of recommendations including: collect statistics and develop a standard nomenclature for causes of death, conduct more autopsies to learn about the causes of death, collaborate with obstetricians, and develop standards for protection of newborn infants. In 1938, the committee requested a name change to the Committee on Problems of the Fetus and Newborn Infant and in 1941, the name was changed to its current name, COFN.
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Committee to Review NIOSH Decisions on Special Exposure Cohorts
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Committee, Work group, Advisory group, or Task Force
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OS
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NCI
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NCI was a panel member for administrative review of NIOSH decisions to create special exposure cohorts in response to claimants.
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Common Barriers in Vaccine Research and Development
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Meeting/ Workshop
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FDA
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NIAID
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This workshop seeks to gather vaccine developers, academic researchers, and government agencies to achieve two goals. The first is to identify gaps and barriers that impair vaccine development; the second is to identify and discuss novel solutions that may advance the field. Areas to be discussed include: Lessons Learned from vaccine developers; Novel Approaches to Antigen Selection; Induction and Maintenance of Vaccine Memory; and Correlates of Protection Based on Natural History and Clinical Studies.
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Common Data Elements (CDE) for Patient-Centered Outcomes Research
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Resource Development
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OS
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NLM, CC, CIT, NCATS, NCI, NEI, NHGRI, NHLBI, NIA, NIAID, NIAMS, NICHD, NIDA, NIDDK, NIEHS, NIMH, NINDS, NINR, OD/OER
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Led by NLM, a work-group of the Trans-NIH BioMedical Informatics Coordinating Committee (BMIC) and others are working to promote the use of common data elements in research, surveillance, and patient registries to facilitate data sharing and reuse. Work has produced a portal of NIH projects that use Common Data Elements (CDEs) and, with the assistance of funding to develop data infrastructure to promote patient-centered outcomes research (OS Patient-Centered Outcomes Research Trust Fund), will contribute to development of a search, retrieval, and repository mechanism that will support and reflect the standards work of the Standards & Interoperability (S&I) Framework Structured Data Capture Initiative. This project contributes to efforts to develop a repository and search tool for identification of CDEs for Patient-Centered Outcomes Research.
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Community Guide Screen Time Team
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Meeting/ Workshop
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CDC
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NHLBI
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The goal was to review the evidence related to screen time and its effects on obesity and health behaviors of youth.
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Community Health Worker Initiative
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Public Education Campaign
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HRSA, IHS
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NHLBI
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The Community Health Worker (CHW) Initiative supports activities to reduce disparities in cardiovascular risk factors and asthma in African American, Latino, American Indian, and Filipino population groups. The project uses formative research (literature reviews, focus groups, and workshops) to inform the development and implementation of approaches that integrate CHW activities into the broader health workforce to improve cardiovascular health and reduce asthma disparities.
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Comparative Effectiveness Research Coordinating Committee
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Committee, Work group, Advisory group, or Task Force
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AHRQ, CMS, FDA
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NINR, CC, CSR, NCATS, NCCAM, NCI, NEI, NHGRI, NHLBI, NIA, NIAAA, NIAID, NIAMS, NIBIB, NICHD, NIDA, NIDCD, NIDCR, NIDDK, NIMH, NIMHD, NINDS, NLM, OD/DPCPSI/OBSSR, OD/DPCPSI/ODP, OD/OSP
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The NIH Comparative Effectiveness Research Coordinating Committee (CER CC) was established in 2008 at the request of the NIH Director. Its members include NIH Institute and Center (IC) Directors and high level senior staff. Its charge is to coordinate ongoing CER initiatives across the agency, develop a long term research vision for CER, implement collaborative initiatives with sister agencies, determine appropriate definitions, policies and guidance relative to CER, administer the CER funds awarded through ARRA, and track the outcomes of those projects. The CER CC has organized meetings with AHRQ, CMS, the VA, FDA, the Office of the National Coordinator for Health Information Technology (ONC), and PCORI, to discuss potential strategic collaborations. NIH invested $597M in CER in FY2012, and estimates funding $581M in FY 2013.
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Comprehensive and Coordinated Prevention Systems: Building Partnerships and Transcending Boundaries
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Meeting/ Workshop
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CDC
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NIAAA, NCI, NHLBI, NICHD, NIDA, NIMH
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The Society for Prevention Research (SPR)envisions a wellness-oriented society in which evidenced-based programs and policies are continuously applied to improve the health and wellbeing of its citizens. The SPR Annual Meeting provides unique opportunities to advance this vision by providing an integrated forum for the exchange of new concepts, methods, and results from prevention and public health-related research, and communication between scientists, public policy leaders and practitioners concerning the implementation of evidence-based preventive interventions.
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