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Structured Data Capture Forms and Common Data Element Working Groups
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Committee, Work group, Advisory group, or Task Force
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OS
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NCI, NLM
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Help design a standard form and data element structure, developing XML artifacts and implementation guide
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Studies in the Treatment of Anthrax Edema Toxin Associated Shock: The Role of Conventional Hemodynamic Support Alone or Together with a PA Directed mAb
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Research Initiative
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FDA
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CC
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Production of edema toxin by B. anthracis is a key pathogenic component in the hemodynamic compromise and resistance to conventional hemodynamic support leading to death during all severe forms of anthrax infection, including inhalational disease. The aim of the present collaboration was to define employing a large animal model the efficacy of conventional hemodynamic support for anthrax edema toxin induced shock and to determine whether the use of protective antigen directed monoclonal antibody (PA-mAb) can increase the efficacy of conventional hemodynamic support.
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Study of Cancer Among United States Firefighters
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Research Initiative
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CDC
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NCI
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A retrospective cohort study to evaluate the relationship between occupational exposures of firefighters and cancer risk.
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Subcommittee on Nanoscale Science, Engineering, and Technology
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA
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NIBIB, NCI, NIEHS, OD/OSP
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This subcommittee of the National Science and Technology Council''s Committee on Technology is responsible for coordinating the National Nanotechnology Initiative (NNI). The NNI was established in 2001 to coordinate federal research and development in nanotechnology by providing a vision of the long-term benefits and opportunities offered by nanotechnology and acting as a locus for communication, cooperation, and collaboration between Federal agencies involved in nanotechnology research and development. In 2011, the Nanoscale Science, Engineering, and Technology Subcommittee developed a strategic plan that encompasses a comprehensive nanotechnology R&D initiative built on shared goals, priorities, and strategies that complement agency-specific missions and activities.
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Subpopulations and Intermediate Outcome Measures in Chronic Obstructive Pulmonary Disease (COPD)
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Research Initiative
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FDA
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NHLBI
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SPIROMICS (SubPopulations and Intermediate Outcome Measures In Chronic Obstructive Pulmonary Disease Study) is an observational study of COPD (Chronic Obstructive Pulmonary Disease) that seeks to identify practical intermediate outcome measures and mechanistically homogeneous subgroups of patients with the disease. The study was developed in cooperation with the U.S. Food and Drug Administration and will be implemented with industrial partners.
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Sudden Death in the Young (SDY) Registry
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Resource Development
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CDC
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NINDS, NHLBI
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Collaboration between the National Heart, Lung, and Blood Institute, National Institute of Neurological Disorders and Stroke, and Centers for Disease Control and Prevention to develop a registry of cases of sudden death in the young (to age 24), including sudden cardiac death and sudden unexpected death in epilepsy.
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Suicide Research Consortium
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Committee, Work group, Advisory group, or Task Force
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CDC, IHS, SAMHSA
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NIAAA, NIMH
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The consortium coordinates program development in suicide research, stimulates extramural research on suicide, and disseminates science-based information on suicidology.
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Surveillance, Epidemiology and End Results (SEER) - Medicare Database
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Resource Development
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CMS
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NCI
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The Surveillance, Epidemiology, and End Results (SEER)-Medicare data are a unique resource that can be used for research related to the health care provided to persons with cancer. The database results from the linkage of two large population-based data sources: the SEER cancer registries data and the Medicare enrollment and claims files.
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Surveillance, Epidemiology, and End Results (SEER) Program
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Resource Development
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CDC
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NCI
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The Surveillance, Epidemiology, and End Results (SEER) program is the premier source for cancer statistics in the U.S. It collects information on incidence, prevalence and survival from specific geographic areas representing 26 percent of the US population. Through SEER, we develop reports on all of these information areas plus cancer mortality for the entire country. The site is intended for anyone interested in U.S, cancer statistics or cancer surveillance methods.
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Targeting of Interleukin-13 Receptor a2 for Treatment of Head and Neck Squamous Cell Carcinoma Induced by Conditional Deletion of TGF-ß and PTEN Signaling
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Research Initiative
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FDA
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NIDCR, NIDCD
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The activity will test new animal models of head and neck squamous cell cancer with targeted treatments using Interleukin-13 Receptor alpha 2 antagonists.
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