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National Academies of Sciences, Engineering, and Medicine Consensus Study on Accessible and Affordable Hearing Health Care for Adults
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA
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NIDCD, NIA
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NASEM established an ad hoc committee to address how to improve accessibility to and affordability of hearing health care (HHC) for adults, with a focus on nonsurgical devices and services. NASEM considered HHC from the health care and population health perspective, including the regulatory environment, access, and affordability.
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National Action Alliance for Suicide Prevention (NAASP)
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Committee, Work group, Advisory group, or Task Force
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ACL, CDC, HRSA, IHS, OS, OSG, SAMHSA
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NIMH, NIAAA, NIDA, OD/DPCPSI/OBSSR, OD/DPCPSI/ODP
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"Founded in September 2010, the NAASP is a public-private partnership designed to advance the National Strategy for Suicide Prevention in the United States. The NAASP''s Research Prioritization Task Force (RPTF) was charged with developing a process to prioritize suicide prevention research efforts and consider ways to integrate science and service to ensure that suicide deaths decrease significantly within the next decade. The RPTF released the Nation''s first suicide research agenda, A Prioritized Research Agenda for Suicide Prevention: An Action Plan to Save Lives. The research agenda includes an overarching goal to advance suicide prevention research more rapidly, seeking ways to reduce suicide deaths and attempts by 20 percent in five years and by 40 percent or greater in ten years. In 2015, the RPTF produced the "U.S. National Suicide Prevention Research Efforts: 2008-2013 Portfolio Analyses." The analyses revealed that investments in suicide research are severely lagging, but there is a growing knowledge base of intervention research. In 2016, the NIH Office of Disease Prevention supported the Pathways to Prevention Workshop, Advancing Research to Prevent Youth Suicide in 2016, which further refined methodological challenges and data linkage needs relevant to multiple NIH Institutes and HHS agencies. The National Institute of Mental Health (NIMH) developed a request for information relevant to this workshop, and a federal partners meeting in the spring of 2017 considered additional actions in response to the workshop recommendations. Two multi-IC RFAs were issued in response to this effort (MH RFA 18-400; MH RFA 18-410). In 2016, NAASP adapted the goal of reducing US suicide rates by 20 percent in 10 years. NIMH supports this goal by identifying practice-ready suicide prevention research. For example, in May 2017, the NIMH led the meeting, the “State of Suicide Prevention in Emergency Care” with participation from the NIH Office of Emergency Care Research (NIGMS), SAMHSA and the CDC. Surveillance, policy and practices challenges, as well as research gaps were identified for further strategic efforts.
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National Action Plan for the Elimination of MDR TB
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Other
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CDC
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NIAID, CC, FIC, NCATS, NCI, NHLBI, NIA, NIAAA, NICHD, NIDA
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Federal agencies involved in the National Action Plan for the Elimination of MDR-TB coordinate reporting across agencies. Annual reporting and regular updates on opportunities for cross-agency collaboration and information sharing are provided.
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National Advisory Board for Medical Rehabilitation Research
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Committee, Work group, Advisory group, or Task Force
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ACL
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NICHD, NHLBI, NIA, NIAMS, NIDCD, NINDS, OD/DPCPSI
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The National Advisory Board for Medical Rehabilitation Research (NABMRR) is a Federal Advisory Committee that is composed of researchers, clinicians, and members of the public that advise the Directors of the National Center for Medical Rehabilitation Research, the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), and the National Institutes of Health on issues related to research in medical rehabilitation. The Board includes Ex Officio members from various Federal Departments and Agencies (VA, DoD, NSF, NIDILRR, AHRQ, FDA) to aid in the coordination of Federal programs, activities, projects, and plans for the same with respect to the conduct of research related to rehabilitation of individuals with disabilities. In 2015, the Board provided advice and consultation on: the development of a NIH Rehabilitation Research Plan, the review and marketing of a Medical Rehabilitation Research Infrastructure Network, the structure and funding of training opportunities for rehabilitation scientists, and concept approval for programs planned by the NCMRR.
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National Ambulatory Medical Care Survey (NAMCS) Asthma Supplement - Interagency agreement with CDC/NCHS
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Health Survey
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AHRQ, CDC
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NIEHS, NHLBI, NIAID, NICHD
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Developed a survey of a national sample of primary care health providers and specialists likely to see asthma patients in order to gauge implementation of the NHLBI Guidelines for Asthma Diagnosis and Management.
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National Amyotrophic Lateral Sclerosis (ALS) Registry
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Resource Development
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ATSDR, CDC
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NINDS
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The National ALS Registry is a congressionally mandated registry for persons in the US with ALS. It is the only population-based registry in the US that collects information to help scientists learn more about who gets ALS and its causes.
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National Biomonitoring Network Steering Committee
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Committee, Work group, Advisory group, or Task Force
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CDC
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NIEHS
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The National Biomonitoring Network is an effort coordinated by the Association of Public Health Laboratories (APHL) to formally link national, regional, state, and local laboratories conducting the analysis of environmental exposures in biological samples to ensure high-quality data for use in public health practice. The effort is led by a Steering Committee of experts from the public health laboratories and federal agencies supporting biomonitoring efforts and research, including NIEHS.
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National Cancer Control Strategy
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Meeting/ Workshop
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CDC
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NCI
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The National Cancer Control Strategy is an NCI-funded study through the National Academies of Sciences, Engineering, and Medicine, which examines cancer control efforts in the United States. This study is expected to produce a report in 2018, which will recommend a national strategy to reduce the incidence, morbidity, and mortality from cancer and to improve quality of life for cancer survivors.
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National Clinical Trials Network (NCTN) Scientific Steering Committees (SSCs)
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Committee, Work group, Advisory group, or Task Force
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FDA
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NCI
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Scientific Steering Committees (SSCs) are composed of leading cancer experts and advocates from outside the Institute as well as NCI senior investigators who meet regularly to: (1) increase the transparency and openness of the trial design and prioritization process; (2) enhance patient advocate and community oncologist involvement in clinical trial design and prioritization; (3) convene Clinical Trial Planning Meetings to identify critical questions, unmet needs, and prioritize key strategies.
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National Coalition for Oversite of Assisted Reproductive Technologies (NCOART)
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Committee, Work group, Advisory group, or Task Force
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CDC, FDA
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NICHD
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The National Coalition for Oversight of Assisted Reproductive Technologies (NCOART) has become a successful forum for discussion of issues by organizations involved in the assisted reproductive technologies (ART) in the United States.
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