NIH Tribal Consultation on Draft Policy for Data Management and Sharing

On April 17, 2019, NIH initiated a Tribal Consultation and an Urban Confer on provisions of a Draft Policy for Data Management and Sharing recognizing that there may be unique concerns for American Indian and Alaska Native (AI/AN) communities regarding broad data sharing, including circumstances in which broad data sharing may not be appropriate (i.e., particularly sensitive data or data restricted by certain Federal, Tribal, state, and local laws, regulations, etc.). The Tribal Consultation aimed to solicit input from Tribal Nations on responsible data management and sharing practices and strategies, along with the identification of any additional resources that may need to be developed to assist researchers working with AI/AN communities to successfully implement these practices. Input was collected during three HHS Regional Tribal Consultations, a webinar, and written feedback.

NIH is supportive of the recommendations received during Consultation and plans to address Tribal leaders’ feedback through policy language and supplemental guidance. NIH will work with Tribal Nations and AI/AN communities to develop additional resources and will continue outreach activities to continue conversation with Tribal Nations around data management and sharing.

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NIH Office of Science Policy Blog Post:
NIH Releases Tribal Consultation Report on Draft Data Management and Sharing Policy

 

This page last reviewed on September 24, 2020