Meeting Information

Building 60 (The Cloisters), First Floor, Room 144/142 (Chapel/Lecture Hall)
1 Cloister Court (Center Drive & Convent Drive)
Bethesda, MD 20892

NIH TAC In-Person Meeting Summary

Day 1 videocast

Day 2 videocast

Agenda

DAY 1 – SEPTEMBER 14
Schedule Topic Presenter/Facilitator
9:00 - 9:05 am Invocation Chester Antone
Councilman, Tohono O’odham Nation
Tucson Area Delegate, TAC
9:05 - 9:30 am

Call to Order, Introductions, Welcome, and Meeting Goals

  • Introductions
  • Welcome from NIH
  • Meeting Procedures
  • Goals of Meeting
  • Review of Agenda
 L. Jace Killsback
Chairperson, TAC
President, Northern Cheyenne Tribe

Liana Onnen
Co-Chairperson, TAC
Chairwoman, Prairie Band Potawatomi

James M. Anderson, M.D., Ph.D.
NIH Deputy Director for Program Coordination, Planning, and Strategic Initiatives

David R. Wilson, Ph.D.
Tribal Health Research Office Director
Division of Program Coordination,
Planning, and Strategic Initiatives
Office of the Director, NIH
9:30 - 10:15 am

Highlights of Tribal Activities at NIH and Discussion

 David R. Wilson, Ph.D.
10:15 - 11:15 am

Strong Heart Study Presentation and Discussion

 Lyle Best, M.D.
Principal Investigator, Dakotas Center
Great Plains Area Technical Advisor, TAC

Mona Puggal, M.P.H.
Scientific Program Specialist
National Heart, Lung, and Blood Institute

TAC Members
11:15 - 11:30 am Break  
11:30 - 12:30 pm Navajo Nation Institutional Review Board Presentation and Discussion Beverly Becenti-Pigman
Chair, Navajo Nation Human Research Review Board

David Begay, Ph.D.
Navajo Nation Human Research Review Board

TAC Members
12:30 - 1:45 pm Working Lunch: NIH Genomic Data Sharing, Clinical Trials and Single IRB Policies M. Khair ElZarrad, Ph.D., M.P.H.
Acting Director - Clinical and Healthcare Research Policy Division
Office of Science Policy

Sara Chandros Hull, Ph.D.
Chair, NHGRI Institutional Review Board
Director, NHGRI Bioethics Core
Faculty, Clinical Center Department of Bioethics
​
TAC Members
1:45 - 2:30 pm Tribal Caucus (TAC Members and Technical Advisors Only) TAC Members and Technical Advisors
2:30 - 3:15 pm Chickasaw Nation Institutional Review Board Presentation and Discussion Bobby Saunkeah, RN, MSHCE, CIP
Manager, Division of Research and Population Health
Chair, Institutional Review Board
Human Research Protections Administrator
Chickasaw Nation Department of Health

Michael Peercy, MPH, MT(ASCP)H
Epidemiologist and IRB Administrator
Chickasaw Nation Department of Health

TAC Members
3:15 - 4:15 pm Discussion with NIH Francis S. Collins, M.D., Ph.D.
Director, NIH

Lawrence A. Tabak, D.D.S., Ph.D.
Principal Deputy Director, NIH

James M. Anderson, M.D., Ph.D.
NIH Deputy Director for Program Coordination, Planning, Strategic Initiatives, NIH

TAC Members
4:15 - 4:45 pm TAC Charter Discussion David R. Wilson, Ph.D.

TAC Members
4:45 - 5:00 pm Closing Comments and Blessing

L. Jace Killsback

Liana Onnen

Beverly Becenti-Pigman
Chair, Navajo Nation Human Research Review Board

 

 

DAY 2 – SEPTEMBER 15
Schedule Topic Presenter/Facilitator
9:00 - 9:05 am Invocation Lynn Malerba
Chief, Mohegan Tribe
National At Large Member Delegate, TAC
9:05 - 9:15 am Welcome and Introductions
  • Introductions
  • Recap of Day 1 and Overview of Day 2
 L. Jace Killsback
Chairperson, TAC
President, Northern Cheyenne Tribe

Liana Onnen
Co-Chairperson, TAC
Chairwoman, Prairie Band Potawatomi

James M. Anderson, M.D., Ph.D.
NIH Deputy Director for Program Coordination, Planning, and Strategic Initiatives

David R. Wilson, Ph.D.
Tribal Health Research Office Director
Division of Program Coordination,
Planning, and Strategic Initiatives
Office of the Director, NIH
9:15 - 10:00 am Tribal Caucus (TAC Members and Technical Advisors Only) TAC Members and Technical Advisors
10:00 - 11:00 am BRAICELET Program Presentation and Discussion Marcia O’Leary
Manager, Missouri Breaks Industries Research Inc.

Joseph M. Yracheta, M.S.
Senior Researcher, Missouri Breaks Industries Research Inc.

TAC Members
11:00 - 12:00 am

Alaska Area Specimen Bank Presentation and Discussion (Video cast) 

Karen M. Rudolph, Ph.D.
CAPT, USPHS
Laboratory Team Leader
Director, Alaska Area Specimen Bank
Arctic Investigations Program
Centers for Disease Control and Prevention

Denise Dillard, Ph.D.
Director of Research, Southcentral Foundation
Alaska Area Delegate, TAC

TAC Members
12:00 - 1:15 pm Lunch with NIH AI/AN Scholars  
1:15 - 1:45 pm ECHO Research Program Update and Discussion Juliana Blome, Ph.D.
Chief of Staff, ECHO Program

TAC Members
1:45 - 2:00 pm All of UsSM Research Program Update and Discussion Provided by Dara Richardson-Heron, M.D. Director, Community Outreach, All of Us Research Program and presented by David R. Wilson, Ph.D.
2:00 - 2:45 pm Discussion on Priorities and Next Steps TAC Members
2:45 - 3:00 pm Wrap Up, Recommendations for Next Meeting Dates and Topics, and Closing Blessing L. Jace Killsback

Liana Onnen

James M. Anderson, M.D., Ph.D.

David R. Wilson, Ph.D.

David Begay, Ph.D.
Navajo Nation Human Research Review Board
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