Tribal Advisory Committee Meeting > Sept 2017 TAC | DPCPSI

Meeting Information

Building 60 (The Cloisters), First Floor, Room 144/142 (Chapel/Lecture Hall)
1 Cloister Court (Center Drive & Convent Drive)
Bethesda, MD 20892

NIH TAC In-Person Meeting Summary

Day 1 videocast

Day 2 videocast

Agenda

**DAY 1 – SEPTEMBER 14**
Schedule	Topic	Presenter/Facilitator
9:00 - 9:05 am	Invocation	Chester Antone Councilman, Tohono O’odham Nation Tucson Area Delegate, TAC
9:05 - 9:30 am	Call to Order, Introductions, Welcome, and Meeting Goals Introductions Welcome from NIH Meeting Procedures Goals of Meeting Review of Agenda	L. Jace Killsback Chairperson, TAC President, Northern Cheyenne Tribe Liana Onnen Co-Chairperson, TAC Chairwoman, Prairie Band Potawatomi James M. Anderson, M.D., Ph.D. NIH Deputy Director for Program Coordination, Planning, and Strategic Initiatives David R. Wilson, Ph.D. Tribal Health Research Office Director Division of Program Coordination, Planning, and Strategic Initiatives Office of the Director, NIH
9:30 - 10:15 am	Highlights of Tribal Activities at NIH and Discussion	David R. Wilson, Ph.D.
10:15 - 11:15 am	Strong Heart Study Presentation and Discussion	Lyle Best, M.D. Principal Investigator, Dakotas Center Great Plains Area Technical Advisor, TAC Mona Puggal, M.P.H. Scientific Program Specialist National Heart, Lung, and Blood Institute TAC Members
11:15 - 11:30 am	Break
11:30 - 12:30 pm	Navajo Nation Institutional Review Board Presentation and Discussion	Beverly Becenti-Pigman Chair, Navajo Nation Human Research Review Board David Begay, Ph.D. Navajo Nation Human Research Review Board TAC Members
12:30 - 1:45 pm	Working Lunch: NIH Genomic Data Sharing, Clinical Trials and Single IRB Policies ElZarrad presentation Hull presentation	M. Khair ElZarrad, Ph.D., M.P.H. Acting Director - Clinical and Healthcare Research Policy Division Office of Science Policy Sara Chandros Hull, Ph.D. Chair, NHGRI Institutional Review Board Director, NHGRI Bioethics Core Faculty, Clinical Center Department of Bioethics TAC Members
1:45 - 2:30 pm	Tribal Caucus (TAC Members and Technical Advisors Only)	TAC Members and Technical Advisors
2:30 - 3:15 pm	Chickasaw Nation Institutional Review Board Presentation and Discussion	Bobby Saunkeah, RN, MSHCE, CIP Manager, Division of Research and Population Health Chair, Institutional Review Board Human Research Protections Administrator Chickasaw Nation Department of Health Michael Peercy, MPH, MT(ASCP)H Epidemiologist and IRB Administrator Chickasaw Nation Department of Health TAC Members
3:15 - 4:15 pm	Discussion with NIH	Francis S. Collins, M.D., Ph.D. Director, NIH Lawrence A. Tabak, D.D.S., Ph.D. Principal Deputy Director, NIH James M. Anderson, M.D., Ph.D. NIH Deputy Director for Program Coordination, Planning, Strategic Initiatives, NIH TAC Members
4:15 - 4:45 pm	TAC Charter Discussion	David R. Wilson, Ph.D. TAC Members
4:45 - 5:00 pm	Closing Comments and Blessing	L. Jace Killsback Liana Onnen Beverly Becenti-Pigman Chair, Navajo Nation Human Research Review Board

DAY 2 – SEPTEMBER 15
Schedule	Topic	Presenter/Facilitator
9:00 - 9:05 am	Invocation	Lynn Malerba Chief, Mohegan Tribe National At Large Member Delegate, TAC
9:05 - 9:15 am	Welcome and Introductions Introductions Recap of Day 1 and Overview of Day 2	L. Jace Killsback Chairperson, TAC President, Northern Cheyenne Tribe Liana Onnen Co-Chairperson, TAC Chairwoman, Prairie Band Potawatomi James M. Anderson, M.D., Ph.D. NIH Deputy Director for Program Coordination, Planning, and Strategic Initiatives David R. Wilson, Ph.D. Tribal Health Research Office Director Division of Program Coordination, Planning, and Strategic Initiatives Office of the Director, NIH
9:15 - 10:00 am	Tribal Caucus (TAC Members and Technical Advisors Only)	TAC Members and Technical Advisors
10:00 - 11:00 am	BRAICELET Program Presentation and Discussion	Marcia O’Leary Manager, Missouri Breaks Industries Research Inc. Joseph M. Yracheta, M.S. Senior Researcher, Missouri Breaks Industries Research Inc. TAC Members
11:00 - 12:00 am	Alaska Area Specimen Bank Presentation and Discussion (Video cast) Rudolph presentation Dillard presentation	Karen M. Rudolph, Ph.D. CAPT, USPHS Laboratory Team Leader Director, Alaska Area Specimen Bank Arctic Investigations Program Centers for Disease Control and Prevention Denise Dillard, Ph.D. Director of Research, Southcentral Foundation Alaska Area Delegate, TAC TAC Members
12:00 - 1:15 pm	Lunch with NIH AI/AN Scholars
1:15 - 1:45 pm	ECHO Research Program Update and Discussion	Juliana Blome, Ph.D. Chief of Staff, ECHO Program TAC Members
1:45 - 2:00 pm	All of Us^SM Research Program Update and Discussion	Provided by Dara Richardson-Heron, M.D. Director, Community Outreach, All of Us Research Program and presented by David R. Wilson, Ph.D.
2:00 - 2:45 pm	Discussion on Priorities and Next Steps	TAC Members
2:45 - 3:00 pm	Wrap Up, Recommendations for Next Meeting Dates and Topics, and Closing Blessing	L. Jace Killsback Liana Onnen James M. Anderson, M.D., Ph.D. David R. Wilson, Ph.D. David Begay, Ph.D. Navajo Nation Human Research Review Board

This page last reviewed on

February 28, 2018