Council of Councils Disability Health Research Working Group

The Council of Councils Disability Health Research Working Group (DHRWG) will provide input to the Council on activities of the Division of Program Coordination, Planning, and Strategic Initiatives, in the context of the broader biomedical and behavioral ecosystem, that relate to disability health research activities.

Background

More than one in four people in the United States has a disability. Like all Americans, disabled people may experience a range of medical conditions that affect their health and well-being. They may also face non-medical factors that lead to poorer health outcomes, such as inaccessible healthcare facilities and equipment. Disability health research seeks to understand and address the effects of medical conditions, non-medical factors, and their interaction on the health and well-being of people with disabilities.

NIH has a long history of supporting a broad range of research related to disability across its Institutes, Centers, and Offices (ICOs). Though many ICOs fund research on disability-related topics, efforts have typically been fragmented and focused on specific conditions or impairments rather than addressing disabled people as a population with unique health and health care needs. As a result, there has been growing recognition that NIH needs a more harmonized, coordinated, and person-centered approach to disability health research.

To address this, DPCPSI created the Disability Health Research Program and is leading the development of the NIH Strategic Plan for Disability Health Research FY26-FY30. By providing strategic coordination of disability health research activities, DPCPSI strives to efficiently and effectively advance research that promotes the health and well-being of people with disabilities.

The Disability Health Research Working Group (DHRWG) was established to provide expert input and recommendations to the Council on NIH disability health research activities coordinated by DPCPSI.

Charge of the Working Group

The DHRWG is charged with providing expert input and recommendations to the Council regarding the following:

  1. Priorities for the most needed and promising areas of disability health research.
  2. Opportunities for NIH-wide disability health research collaborations.
  3. Strategies for increasing the number of investigators conducting disability health research.
  4. Approaches for optimizing outreach to disability communities.

Roster

Co-Chairs

Russell N. Van Gelder, M.D., Ph.D.
Council of Councils Member (2025)
Professor and Chair, Department of Ophthalmology
Director of UW Medicine Eye Institute
University of Washington

Adam M. Politis, M.S.
Senior Advisor for Disability Health Research
Division of Program Coordination, Planning, and Strategic Initiatives
Office of the Director
National Institutes of Health

Executive Secretary

Heather Kimmel, Ph.D.
Health Scientist Administrator
National Institute on Drug Abuse
National Institutes of Health

Members

Marco Baptista, Ph.D.
Chief Science Officer
Christopher & Dana Reeve Foundation

Diana Cejas, M.D., MPH
Associate Professor of Neurology
Carolina Institute of Developmental Disabilities
The University of North Carolina at Chapel Hill

Anjali Forber-Pratt, Ph.D.
Director of Research
American Association on Health and Disability

Amy Houtrow, M.D., Ph.D., MPH
Professor of Physical Medicine & Rehabilitation and Pediatrics
Endowed Chair for Pediatric Rehabilitation Medicine
University of Pittsburgh

Deborah Kado, M.D.
Professor of Medicine
Co-Director, Stanford Center on Longevity Stanford University

Barbara Kelley
Council of Councils Member (2028)
Executive Director
Hearing Loss Association of America

Poorna Kushalnagar, Ph.D.
Professor, Department of Psychology
Strategic Research Officer
Gallaudet University

Darius Lakdawalla, Ph.D.
Professor of Pharmaceutical Economics and Public Policy
Chief Scientific Officer, USC Schaeffer Center for Health Policy & Economics
University of Southern California

Monika Mitra, Ph.D.
Nancy Lurie Marks Professor of Disability Policy
Director of the Lurie Institute for Disability Policy
Brandeis University

Ari Ne’eman, Ph.D.
Assistant Professor of Health Policy and Management
Harvard T.H. Chan School of Public Health
Harvard University

Oluwaferanmi O. Okanlami, M.D., M.S.
Assistant Professor of Family Medicine, Physical Medicine & Rehabilitation, and Urology
Director of Student Accessibility and Accommodation Services University of Michigan

Bonnielin Swenor, Ph.D., MPH
Endowed Professor of Disability Health and Justice
Director, Disability Health Research Center Johns Hopkins University

Tiffany Yu, M.Sc.
Founder and CEO, Diversability LLC

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