All of Us Research Program Advisory Panel
Background
The All of Us Research Program Advisory Panel develops options, gives feedback, and evaluates program activities. The Advisory Panel is a working group of the NIH Council of Councils convened to provide the All of Us Research Program with external oversight and expert advice on the program’s vision, scientific goals, and operations.
Charge
The Advisory Panel is charged with evaluating and providing recommendations regarding All of Us activities. Specifically, the members of the Advisory Panel will consider:
- The vision and direction of the All of Us Research Program
- Concept clearance for new grant initiatives to be established under the All of Us Research Program
- Review of preliminary grant funding plan proposals
- Ongoing assessment of current projects and programs supported by the All of Us Research Program
- Coordination and integration of the All of Us Research Program with activities of individual NIH Institutes and Centers (ICs).
The Advisory Panel will provide an intensive examination of the progress of the All of Us Research Program at appropriate intervals to ensure that its vision has continued to adapt to the evolving landscape of research, clinical practice, and participant engagement.
As necessary, with approval of its chair, the Panel may call upon special consultants, assemble ad hoc work groups, and convene conferences, workshops, and other activities
Roster
Scout Ph.D., M.A.
Executive Director of the National LGBT Cancer Network and the principal investigator of the CDC-funded LGBTQ tobacco-related cancer disparity network and Out: The National Cancer Survey
Aaron Abend, M.B.A.
Executive Director of the Autoimmune Registry, Managing Director at Prognosis Data Corp., Software Technology Entrepreneur with 35 years’ experience in database development
Naomi Allen, D.Phil., M.Sc., B.Sc.
Chief Scientist, UK Biobank and Professor of Epidemiology at the Nuffield Department of Population Health, University of Oxford
Russ B. Altman, M.D., Ph.D.
Kenneth Fong Professor of Bioengineering, Genetics, Medicine, Biomedical Data Science and (by courtesy) Computer Science) and past chairman of the Bioengineering Department at Stanford University
Wendy K. Chung, M.D., Ph.D.
Kennedy Family Professor of Pediatrics and Medicine and Director of Clinical Genetics at Columbia University Irving Medical Center
Dontal Johnson, M.D.
Pediatrician at Meharry Medical College
Lovell Jones, Ph.D.
Research Professor at Texas A & M University, Corpus Christi and Adjunct Professor in the Department of Health Promotion & Community Health Sciences at Texas A&M School of Public Health
James Lu, M.D., Ph.D.
Co-founder and Chief Scientific Officer at Helix
Gary W. Miller, Ph.D.
Vice Dean for Research Strategy and Innovation and Professor of Environmental Health Sciences at the Columbia University Mailman School of Public Health
Christopher J. O’Donnell, M.D., M.P.H., FAHA, FACC
Global Head of Cardiovascular and Metabolism Translational Medicine at Novartis Institutes for Biomedical Research
Elizabeth O. Ofili, M.D., M.P.H., F.A.C.C.
Professor of Medicine, at Morehouse School of Medicine, and a practicing cardiologist with Morehouse Healthcare in Atlanta, Georgia
Jesus Ramirez-Valles, Ph.D., M.P.H.
Chief of the University of California, San Francisco Division of Prevention Science, and holds the Walter Gray Endowed Chair in HIV/AIDS Science of the AIDS Research Institute
Erica Ramos, M.S., C.G.C.
Vice President of Population Genomics at Genome Medical
Marylyn DeRiggi Ritchie, Ph.D.
Professor in the Department of Genetics, Director of the Center for Translational Informatics, Associate Director for Bioinformatics in the Institute for Biomedical Informatics, and Associate Director for Precision Medicine, University of Pennsylvania
Elizabeth “Beth” Rubinstein
Participant Representative
Prashant Shah, M.S.
Director of Engineering of Health and Life Sciences, Artificial Intelligence Products Group, Intel Corporation
Hannah Valantine, M.D., M.R.C.P.
Professor of Medcine at Stanford University, Former NIH Chief Officer for Scientific Workforce diversity
Roberto Vargas, M.D., M.P.H.
Assistant Dean for Health Policy and Inter-Professional Education within the College of Medicine and Director of the Health Policy Pillar of the Urban Health Institute at Charles R. Drew University of Medicine and Science
Karen Wall, Ed.D., M.A.
Participant Representative
Xiaobin Wang, M.D., M.P.H., Sc.D.
Zanvyl Krieger Professor in child health and Professor of Pediatrics, Director of the Center on the Early Life Origins of Disease at Johns Hopkins Bloomberg School of Public Health and School of Medicine
Working Groups of the All of Us Research Program Advisory Panel
The Child Enrollment Scientific Vision Working Group
The Child Enrollment Scientific Vision Working Group, a working group of the All of Us Research Program Advisory Panel, supported the program’s efforts to develop the approach for including pediatric populations. They identified critical research that All of Us may be uniquely positioned to enable through the enrollment of children from diverse backgrounds into the cohort.
A separate task force is now examining the practical considerations of child enrollment and data collection involving children.
The Data Quality and Completeness Working Group
The Data Quality and Completeness Working Group (DQCWG) will provide a framework of guidelines and metrics to help the program monitor data quality and completeness in an ongoing and automated fashion.
Genomics Working Group
As a working group of the All of Us Research Program Advisory Panel, the Genomics Working Group provided information on the available options for All of Us to consider as it develops a comprehensive genomics strategy. Deliberations addressed the rapidly evolving nature of genome sequencing and variant annotation technologies and considered the program’s commitment to the return of information to participants.
Tribal Collaboration Working Group
The All of Us Research Program is committed to ensuring that the program reflects the diversity of the United States and includes individuals who have typically been underrepresented in biomedical research. The Tribal Collaboration Working Group, a working group of the All of Us Research Program Advisory Panel, will provide information for consideration regarding the inclusion of American Indian and Alaska Native (AI/AN) populations in the program.