Methods and Measurement in Sexual & Gender Minority Health Research

Data Sources

Illustration of people looking at a wall of charts and graphs

The data sources highlighted below may be useful for those interested in conducting secondary data analyses related to the health of SGM populations. The tables are adapted from work compiled by NORC@University of Chicago, the Centers for Medicare and Medicaid Services (CMS) Office of Minority Health, the Substance Abuse and Mental Health Services Administration (SAMHSA) Center for Behavioral Health Statistics and Quality, and the National Academies of Science, Engineering, and Medicine (NASEM) Consensus Study Report on Understanding the Well-Being of LGBTQI+ Populations.

Publicly Available Nationally-Representative Datasets with SGM Measures

Publicly Available Nationally-Representative Datasets with SGM Measures
Study Name	Official Acronym	Study Website
All of Us Research Program	AoU	allofus.nih.gov/
American Community Survey	ACS	census.gov/acs
American National Election Studies	ANES	electionstudies.org/
National Longitudinal Study of Adolescent to Adult Health	Add Health	cpc.unc.edu/projects/addhealth
Behavioral Risk Factor Surveillance System	BRFSS	http://cdc.gov/brfss
United States Census	US CENSUS	census.gov
Current Population Survey	CPS	census.gov/cps/
General Social Survey	GSS	norc.uchicago.edu/GSS+Website/ http://www.norc.org/Research/Projects/Pages/general-social-survey.aspx or http://gss.norc.org/
Generations	N/A	www.icpsr.umich.edu/web/DSDR/studies/37166
Growing Up Today Study	GUTS	nhs2survey.org/gutswordpress/
Health and Retirement Survey	HRS	hrs.isr.umich.edu/about
Health Center Patient Survey	HCPS	rti.org/impact/health-center-patient-survey
Health Information National Trends Survey	HINTS	https://hints.cancer.gov/
High School Longitudinal Study of 2009	HSLS:09	nces.ed.gov/surveys/hsls09/
National Adult Tobacco Survey	NATS	cdc.gov/tobacco/data_statistics/surveys/nats/
National Crime Victimization Survey	NCVS	www.icpsr.umich.edu/icpsrweb/NACJD/series/95
National Epidemiologic Survey of Alcohol and Related Conditions	NESARC	pubs.niaaa.nih.gov/publications/AA70/AA70.htm
National Health & Nutrition Examination Survey	NHANES	cdc.gov/nchs/nhanes.htm
National Health Interview Survey	NHIS	cdc.gov/nchs/nhis.htm
National HIV Behavioral Surveillance	NHBS	www.cdc.gov/hiv/statistics/systems/nhbs/reports.html
National Inmate Survey	NIS	www.bjs.gov/index.cfm?ty=dcdetail&iid=278
National Intimate Partner and Sexual Violence Survey	NISVS	www.icpsr.umich.edu/web/NACJD/studies
National Longitudinal Surveys	NLS	www.bls.gov/nls/
National Survey on Drug Use and Health	NSDUH	oas.samhsa.gov/nsduh.htm
National Survey of Family Growth	NSFG	cdc.gov/nchs/nsfg.htm
National Survey of Older Americans Act Participants	NSOAAP	agid.acl.gov/DataFiles/NPS/
National Social Life, Health & Aging Project`	NSHAP	www.norc.org/Research/Projects/Pages/national-social-life-health-and-aging-project.aspx
National Violent Death Reporting System	NVDRS	www.cdc.gov/violenceprevention/datasources/nvdrs/index.html
Population Assessment of Tobacco and Health	PATH	www.icpsr.umich.edu/icpsrweb/NAHDAP/studies/36498
School Survey on Crime and Safety	SSCS	nces.ed.gov/surveys/ssocs/
Uniform Data System	UDS	www.icpsr.umich.edu/icpsrweb/NAHDAP/studies/36498
Youth Risk Behavior Surveillance System	YRBSS	cdc.gov/HealthyYouth/yrbs/
Source: NORC@University of Chicago, CMS Office of Minority Health, SAMHSA Center for Behavioral Health Statistics and Quality, NASEM

This page last reviewed on February 4, 2021