Methods and Measurement in Sexual & Gender Minority Health Research

Data Sources

Illustration of people looking at a wall of charts and graphs

The data sources highlighted below may be useful for those interested in conducting secondary data analyses related to the health of SGM populations. The tables are adapted from work compiled by NORC@University of Chicago, the Centers for Medicare and Medicaid Services (CMS) Office of Minority Health, and the Substance Abuse and Mental Health Services Administration (SAMHSA) Center for Behavioral Health Statistics and Quality.

Publicly Available Nationally-Representative Datasets with LGBT Measures

Publicly Available Nationally-Representative Datasets with LGBT Measures
Study Name Official Acronym Study Website

American Community Survey

ACS

census.gov/acs

National Longitudinal Study of Adolescent to Adult Health

Add Health

cpc.unc.edu/projects/addhealth

Behavioral Risk Factor Surveillance System

BRFSS

cdc.gov/brfss

United States Census

US CENSUS (YEAR)

census.gov

Current Population Survey

CPS

census.gov/cps/

General Social Survey

GSS

norc.uchicago.edu/GSS+Website/
http://www.norc.org/Research/Projects/Pages/general-social-survey.aspx
or
http://gss.norc.org/

National Epidemiologic Survey of Alcohol and Related Conditions

NESARC

pubs.niaaa.nih.gov/publications/AA70/AA70.htm

National Health & Nutrition Examination Survey

NHANES

cdc.gov/nchs/nhanes.htm

National Health Interview Survey

NHIS

cdc.gov/nchs/nhis.htm

National Survey on Drug Use and Health

NSDUH

oas.samhsa.gov/nsduh.htm

National Survey of Family Growth

NSFG

cdc.gov/nchs/nsfg.htm

National Social Life, Health & Aging Project

NSHAP

www.norc.org/Research/Projects/Pages/national-social-life-health-and-aging-project.aspx

Youth Risk Behavior Surveillance System

YRBSS

cdc.gov/HealthyYouth/yrbs/

Source: NORC@University of Chicago, CMS Office of Minority Health, SAMHSA Center for Behavioral Health Statistics and Quality

 

General Characteristics of Nationally-Representative Studies with LGBT Measures

General Characteristics of Nationally-Representative Studies with LGBT Measures
Study Data Structure Periodicity Sample Unit ACASI CAPI CATI F2F SAQ OTHER Notes
Data Collection Mode

ACS

Cross-Sectional

Annually

Households

0

1

1

0

1

0

 

Add Health

Longitudinal

Ad Hoc*

Individuals

 0

 1

 0

 1

 0

 0

*Average Period Between Waves: Wave1 = 1994; Wave 2 = 1996;
Wave 3 = 2001-2002; Wave 4 = 2007-2008; Wave 5 = 2015-2018

BRFSS

Cross-Sectional

Annually

Individuals

0

0

1

0

0

0

 

US CENSUS

Cross-Sectional

10 Years

Households

0

0

0

0

1

0

 

CPS

Cross-Sectional

Monthly

Households

0

1

1

0

0

0

 

GSS

Cross-Sectional

Biennially

Individuals

0

1

0

1

0

0

 

NESARC

Longitudinal

Ad Hoc*

Individuals

0

0

0

1

0

1**

*Wave 1 = 2001-2002; Wave 2 = 2004-2005. **Flashcards

NHANES

Cross-Sectional

Annually

Individuals

1

1

0

0

0

0

 

NHIS

Cross-Sectional

Annually

Households

0

0

0

1*

0

0

*Hand card with responses

NSDUH

Cross-Sectional

Annually

Individuals

1*

0

0

0

1*

0

*SAQ Prior to 1999, ACASI Thereafter

NSFG

Cross-Sectional

Annually*

Individuals

 1

 1

 0

 0

 0

 0

*Average periodicity was 5 years over 7 cycles between 1973 and
2006

NSHAP

Longitudinal

5 Years*

Individuals

0

1

0

0

1

0

*Wave 1 = 2005-2006; Wave 2 = 2010-2011; Wave 3=2015-2016

YRBSS

Cross-Sectional

Biennially

Individuals

0

0

0

0

1

0

 

Note: ACASI= Audio Computer-Assisted Self-Interview, CAPI= Computer-Assisted Personal Interview, CATI= Computer-Assisted Telephone Interview, F2F= Face-to-Face, SAQ= Self- Administered Questionnaire
Source: NORC@University of Chicago, CMS Office of Minority Health, SAMHSA Center for Behavioral Health Statistics and Quality

 

LGBT Measures in Publicly-Available Nationally-Representative Datasets

LGBT Measures in Publicly-Available Nationally-Representative Datasets.
Study Sexual Behavior Sexual Identity Transgender Identity Sexual Attraction Same-Sex Partner Household Years Included Valid Age Range Survey Sample Size Notes
Sexual Orientation/Gender Identity Analytic Details of Measure(s)

ACS

0

0

0

0

1

2000-2014

18+

27,749,435

*Only data from 2005-2014 currently available

Add Health

1

1

0

1

1

2008-2009

24-32*

15,701

*52 respondents were 33-34 years old at the time of interview

BRFSS

1*

1*

1*

0

0

Varies by State

18+

State-Dependent

*Measures vary by state

US CENSUS

0

0

0

0

1

2010

All Ages

308,745,538

 

CPS

0

0

0

0

1

2010-present

18+

97,263

 

GSS

1

1

0

0

1

1988-2012

18+

24,003

 

NESARC

1

1

0

1

0

2004-2005

18+

43,093

 

NHANES

1

1

0

0

0

1999-2014

14-59

52,000

 

NHIS

0

1

0

0

1

2014

18+

44,552

 

NSDUH

1

0

0

0

0

1996

12+

18,300

 

NSFG

1

1

0

1

0

2002; 2006-2013

15-44

46,669

 

NSHAP

1

0

0

0

1

2005-6
2010-11

57-85
18+

3,005
3,377

 

YRBSS

1*

1*

1*

1*

0

1991-2015

Varies

State-Dependent

*Measures vary by state

Source: NORC@University of Chicago, CMS Office of Minority Health, SAMHSA Center for Behavioral Health Statistics and Quality

 

This page last reviewed on December 7, 2018