Methods and Measurement in Sexual & Gender Minority Health Research

Data Sources

Illustration of people looking at a wall of charts and graphs

The data sources highlighted below may be useful for those interested in conducting secondary data analyses related to the health of SGM populations. The tables are adapted from work compiled by NORC@University of Chicago, the Centers for Medicare and Medicaid Services (CMS) Office of Minority Health, the Substance Abuse and Mental Health Services Administration (SAMHSA) Center for Behavioral Health Statistics and Quality, and the National Academies of Science, Engineering, and Medicine (NASEM) Consensus Study Report on Understanding the Well-Being of LGBTQI+ Populations.

Publicly Available Nationally-Representative Datasets with SGM Measures

Publicly Available Nationally-Representative Datasets with SGM Measures
Study Name Official Acronym Study Website

All of Us Research Program

AoU

allofus.nih.gov/

American Community Survey

ACS

census.gov/acs

American National Election Studies

ANES

electionstudies.org/

National Longitudinal Study of Adolescent to Adult Health

Add Health

cpc.unc.edu/projects/addhealth

Behavioral Risk Factor Surveillance System

BRFSS

cdc.gov/brfss

United States Census

US CENSUS

census.gov

Current Population Survey

CPS

census.gov/cps/

General Social Survey

GSS

norc.uchicago.edu/GSS+Website/
http://www.norc.org/Research/Projects/Pages/general-social-survey.aspx
or
http://gss.norc.org/

Generations

N/A

www.icpsr.umich.edu/web/DSDR/studies/37166

Growing Up Today Study

GUTS

nhs2survey.org/gutswordpress/

Health and Retirement Survey

HRS

hrs.isr.umich.edu/about

Health Center Patient Survey

HCPS

rti.org/impact/health-center-patient-survey

Health Information National Trends Survey

HINTS

https://hints.cancer.gov/

High School Longitudinal Study of 2009

HSLS:09

nces.ed.gov/surveys/hsls09/

National Adult Tobacco Survey

NATS

cdc.gov/tobacco/data_statistics/surveys/nats/

National Crime Victimization Survey

NCVS

www.icpsr.umich.edu/icpsrweb/NACJD/series/95

National Epidemiologic Survey of Alcohol and Related Conditions

NESARC

pubs.niaaa.nih.gov/publications/AA70/AA70.htm

National Health & Nutrition Examination Survey

NHANES

cdc.gov/nchs/nhanes.htm

National Health Interview Survey

NHIS

cdc.gov/nchs/nhis.htm

National HIV Behavioral Surveillance

NHBS

www.cdc.gov/hiv/statistics/systems/nhbs/reports.html

National Inmate Survey

NIS

www.bjs.gov/index.cfm?ty=dcdetail&iid=278

National Intimate Partner and Sexual Violence Survey

NISVS

www.icpsr.umich.edu/web/NACJD/studies

National Longitudinal Surveys

NLS

www.bls.gov/nls/

National Survey on Drug Use and Health

NSDUH

oas.samhsa.gov/nsduh.htm

National Survey of Family Growth

NSFG

cdc.gov/nchs/nsfg.htm

National Survey of Older Americans Act Participants

NSOAAP

agid.acl.gov/DataFiles/NPS/

National Social Life, Health & Aging Project`

NSHAP

www.norc.org/Research/Projects/Pages/national-social-life-health-and-aging-project.aspx

National Violent Death Reporting System

NVDRS

www.cdc.gov/violenceprevention/datasources/nvdrs/index.html

Population Assessment of Tobacco and Health

PATH

www.icpsr.umich.edu/icpsrweb/NAHDAP/studies/36498

School Survey on Crime and Safety

SSCS

nces.ed.gov/surveys/ssocs/

Uniform Data System

UDS

www.icpsr.umich.edu/icpsrweb/NAHDAP/studies/36498

Youth Risk Behavior Surveillance System

YRBSS

cdc.gov/HealthyYouth/yrbs/

Source: NORC@University of Chicago, CMS Office of Minority Health, SAMHSA Center for Behavioral Health Statistics and Quality, NASEM

 

This page last reviewed on November 6, 2020