Conferences, Workshops, and Meetings


Analysis of Functional Neuroimages (AFNI) Training Workshop
The NIMH Scientific and Statistical Computing Core has developed a 40-hour course on how to design and analyze functional magnetic resonance imaging (fMRI) data. This course is taught in a five-day hands-on "boot camp." In fiscal year 2017, the AFNI course was taught twice at the NIH with over 200 students in attendance. All materials for this continually evolving course (software, sample data, scripts, and PDF slides) are freely available on the website The course material includes several sample datasets that are used to illustrate and walk the participants through the entire process of analyzing the data, starting with image output by MRI scanners, and continuing through to the collective statistical analysis of groups of subjects.

NIH Participants: NIMH, NICHD


Annual Dissemination and Implementation Science Conference
The Annual Conference on the Science of Dissemination and Implementation is a forum for discussing the science of dissemination and implementation and aims to grow the research base by bridging the gap between evidence, practice, and policy in health and medicine. Researchers, evaluators and implementers who are interested in identifying opportunities, challenges, and strategies for disseminating the findings and implementation of research to key stakeholders are encouraged to attend. Discuss, debate, and explore in-depth approaches to advance dissemination and implementation science.



Assay Guidance Manual Workshop
The National Center for Advancing Translational Sciences (NCATS) Assay Guidance Manual, an eBook developed in coordination with an international editorial board and colleagues at Eli Lilly and Company, is a 32-chapter how-to guide for researchers on developing and using assays in high-throughput screening projects. More than 40 participants attended the "Assay Guidance Workshop for High-Throughput Screening and Lead Discovery" on August 7, 2017, in Potomac, Maryland. Supported by NCATS, the workshop was designed to provide participants with a broad and practical perspective on how to develop and implement robust assays for early-stage drug discovery projects. Participants included researchers from four NIH centers, the Food and Drug Administration, industry and academia. Workshop leaders with more than 20 years of drug discovery experience covered a broad range of critical concepts underlying robust assay development and screening strategies. There were also open discussions for participants to share experiences and seek practical advice about individual research interests.

HHS OPDIVs Participants: FDA


Common Data Element (CDE) Repository
Meetings were held to discuss NIH-wide Common Data Elements (CDE) requirements, discuss joint development of repositories for CDEs and Forms based on the Structured Data Capture initiative.

NIH Participants: NCI, NLM


Emerging Role of Branched-Chain Amino Acids (BCAA) in Human Diseases
The branched chain amino acids (BCAA) leucine, isoleucine and valine are essential nutrients, required for normal growth and protein balance. Cellular sensing of BCAAs and their metabolites alters signal transduction cascades to regulate metabolism and gene expression. Recent advancements have implicated BCAAs as an important and integral nutritional factor and biomarker in major health domains (performance, body mass, satiety) and human diseases (metabolic disorders, cancer, sarcopenia, along with neurological and cardiovascular diseases). The purpose of this conference is to identify opportunities and gaps in the field in order to promote multi-disciplinary research on BCAA actions and metabolism over a broad spectrum of human health and disease. With the recent plethora of high impact papers getting attention from the public and private sectors, the field is ready for a major update on BCAA metabolism. A deeper understanding of the regulation of BCAA inter-organ and intracellular metabolism could reveal new therapeutic targets to promote health, treat disease and/or improve the lifespan. The conference helped identify key gaps in current knowledge and infrastructure, from which a published report is expected to emerge.

NIH Participants: NIDDK, NICHD, ODS


FGF-23: An Interdisciplinary Dialog for Chronic Kidney Diseases
Patients with Chronic Kidney Diseases (CKDs) frequently experience disturbances of mineral metabolism resulting in systemic effects on the blood, bone, and vasculature. Iron and phosphate are important to maintain these systems; however, the biological signals controlling their regulation are only partly understood. Fibroblast Growth Factor 23 (FGF-23), a bone-derived hormone, regulates systemic phosphate homeostasis. Its discovery also has revealed novel interactions between phosphate and iron homeostasis. The NIDDK extramural research community offers a wealth of existing resources, infrastructure, and expertise that could accelerate the progress in this developing research area. This workshop's goal was to act as an opportunity for dialog about interdisciplinary approaches to understanding the physiologic and molecular regulators of phosphate and iron among patients with CKDs, toward identifying novel diagnostic tools, new interventions, and improve clinical outcomes.



First Steering Committee Meeting between NCI/NIH and Government of India under the Cancer MoU
The governments of the United States and India signed a memorandum of understanding (MoU) for broad cooperation in cancer research in June 2015. One of the components of this cooperation was the establishment of a Joint Steering Committee (JSC) comprising of representatives from both governments. The first JSC meeting since the signing of the MoU was held in New Delhi on March 2, 2016. In this meeting attended by colleagues at the NCI and Fogarty as well as colleagues from the government of India, a range of topics for collaboration were discussed. These include the development of cancer research program at the new National Cancer Institute in India; collaboration in cancer screening and screening implementation; tobacco control research; collaboration on traditional medicine and cancer as well as capacity building in cancer research.

NIH Participants: NCI, FIC

Follow Up on The Workshop on Broad Consent
In 2013, the NIH Clinical Center (CC) Department of Bioethics convened a group of subject-matter leaders with a diversity of published perspectives and professional backgrounds to consider the ethics of broad consent for collection of biospecimens for future research, what broad consent should entail, and how it compares to other approaches. The goals of the workshop were to: 1) consider the ethical justifications for broad consent and alternative approaches; 2) develop an approach that could be adopted across diverse sites and studies; and 3) identify areas of consensus and disagreement, as well as ideas for future research. The focus was specifically on informed consent at the time of collection of biospecimens that will be used in future research, and not on research with existing samples, community consent, incidental findings, or other important and related issues.

NIH Participants: CC, NCI

NHGRI Short Course- Nurse, Nurse Practioner, Physician Assistant, and Educators Track
The National Human Genome Research Institute (NHGRI) offers a three-day intensive course to teach practitioners and their educators about genomic medicine.

NIH Participants: NHGRI, NCI, NHGRI


NIH Disaster Interest Group
This partnership among NIH Institutes and Centers aims to share timely information, enhance relationships and processes, improve opportunities for collaborations, and serve as a discussion platform for actions.


NIH Disaster Research Response Program
In response to recent disasters and the research conducted in their wake, NIH has committed to fund the NIH Disaster Research Response Program. This pilot program, developed by the National Institute of Environmental Health Sciences (NIEHS) in collaboration with the National Library of Medicine (NLM), aims to create a disaster research system consisting of coordinated environmental health disaster research data collection tools and a network of trained research responders

NIH Participants: NLM, NIEHS, NLM


Pathways to Prevention (P2P) Workshop Program
The Pathways to Prevention (P2P) program is a workshop series hosted by the Office of Disease Prevention (ODP) to identify research gaps in a selected scientific area, identify methodological and scientific weaknesses in that scientific area, suggest research needs, and move the field forward through an unbiased, evidence-based assessment of a complex public health issue. P2P workshops are designed for topics that have incomplete or underdeveloped research and for which it is difficult to produce a report synthesizing published literature. ODP collaborates with various NIH ICs and Offices as well as other federal partners to sponsor the workshops.

HHS OPDIVs Participants: AHRQ


Rare Disease Day at NIH
Rare Disease Day takes place worldwide on the last day in February to raise awareness among policymakers and the public about rare diseases and their impact on patients' lives. Each year, the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center (CC) sponsor Rare Disease Day at NIH as part of this global observance. Rare Disease Day at NIH aims to raise awareness about rare diseases, affected patients, and research collaborations addressing rare disease challenges. Sponsored by the NCATS and the NIH Clinical Center, this free event features presentations, posters and exhibits, an art show, and tours.

NIH Participants: NCATS , CC


Research Gaps in Gestational Diabetes Mellitus (GDM)
The overarching goal of this workshop was to understand 1) whether there is a compelling need for a large definitive clinical trial to improve long-term outcomes in women with GDM and/or their offspring, and 2) if so, whether we are ready to conduct such a trial or whether such a trial would be premature, because smaller studies (data supporting the rationale, pilots and/or mechanistic studies) are first required. The workshop focused on two topics: 1) the role of early (e.g., late first trimester or early 2nd trimester) diagnosis and treatment of GDM; and 2) pharmacologic treatment options for GDM.

NIH Participants: NIDDK, NICHD

Retinopathy of Prematurity Conference
During the Retinopathy of Prematurity (ROP) Conference, scientific experts convened to exchange information about ROP and discuss potential ROP research initiatives.

NIH Participants: NICHD, NEI

Science of Stigma Reduction: New Directions for Research to Improve Health
In June 2017, Fogarty's Center for Global Health Studies (CGHS) hosted The Science of Stigma Reduction: New Directions for Research to Improve Health at the NIH campus in Bethesda, Maryland. The 3-day workshop convened U.S. and low- and middle-income country (LMIC) researchers, policymakers and program implementers, with a focus on reducing health-related stigma across disease areas, populations and settings. Forthcoming publications resulting from the workshop will detail case studies, articulate lessons learned, illustrate partnership strategies and set forth key research priorities.

Other Participants: SGMRO


Sex and the Kidneys: Sex Differences in Renal Disease
In 1999, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) convened a workshop, Women in Renal Disease, that focused on identifying the unique risks of Chronic Kidney Disease (CKD) and progression to end-stage renal disease present in women across their lifespans. At the conclusion of the workshop, the workshop organizers proposed several avenues of research to advance our understanding of the pathophysiology of sex differences in CKD and improve clinical care of women with CKD. While some advances have been made in both clinical and basic research, much remains poorly understood, both at the molecular and clinical level. The NIH has recently re-focused the investigator community on the role of sex as a biological variable—requiring all research grant submissions to deliberately consider sex as a modifier of biological response. The purpose of this workshop was to afford the renal research community an opportunity to re-visit the role of sex in disease risk and etiology and take advantage of the advances made in our understanding of sex steroid action in somatic tissues, as well as understanding the role of sex chromosome complement in disease pathophysiology.



Structural Biology Related to HIV/AIDS Conference (annual)
Since 1987, the National Institute of General Medical Sciences (NIGMS) has supported research and center grants to determine the structure of AIDS-related proteins. The focus of NIGMS-supported HIV studies has evolved from determining the structures of AIDS-related proteins and developing structure-based drug design techniques to identifying mechanisms of drug resistance and complexes of host and viral elements essential to the HIV life cycle. The meeting provides the NIGMS Centers for HIV/AIDS-Related Structural Biology, NIGMS-funded Program Projects and other interested investigators an opportunity to share their progress and ideas with the community. The Centers are co-funded with the National Institute of Allergy and Infectious Diseases (NIAID).

NIH Participants: NIGMS, NIAID


Symptom Science Research: A Path to Precision Health
The many symptoms associated with a single illness, or, in many cases, occurring with co-morbid illnesses or conditions, often severely compromise the quality of life of individuals suffering from these conditions. New strategies are greatly needed for effectively managing the symptoms of co-morbid conditions and improving patient quality of life. On April 25, 2017, the National Institute of Nursing Research (NINR) Intramural Research Program hosted a scientific symposium, Symptom Science Research: A Path to Precision Health, on the NIH campus in Bethesda, Maryland, highlighting NINR Intramural's scientific advances and collaborations across the National Institutes of Health and other organizations with the scientific goal to enhance patient outcomes for individuals with conditions such as digestive disorders, cancer-related fatigue, and traumatic brain injury.

Other Participants: Boston University School of Medicine


The Science of Caregiving: Bringing Voices Together
There is an increasing shift of health care responsibilities from formal health care providers and settings to individuals, families, and communities in managing chronic illness; and, growing evidence that the responsibilities of caring for family members and friends can have a significant negative impact on the health of caregivers, sometimes resulting in worse health for the care recipient. On August 7 and 8, 2017, the National Institute of Nursing Research (NINR) and partners convened a trans-NIH Summit "The Science of Caregiving: Bringing Voices Together," bringing together scientists, caregivers, advocates, providers, and health care professionals to learn about the issues and challenges facing caregivers and discuss the related research.

Other Participants: American Association of Colleges of Nursing, Oncology Nursing Society, The Beckman Research Institute of City of Hope, The Honor Society of Nursing - Sigma Theta Tau International


U.S.-China Symposium on Nanobiology and Nanomedicine
The National Cancer Institute (NCI), in collaboration with other NIH Institutes and the National Center for Nanoscience and Technology of China, convened a meeting to explore opportunities for collaborations and facilitate discussions among scientists from the United States and China on priority issues of medical nanotechnologies and their potential for implementation into mainstream medicine.


Vascular Complications in Dyskeratosis Congenita Workshop
The purpose of this workshop was to bring together researchers and clinicians specializing in various fields to focus on understanding the vascular complications of Dyskeratosis Congenita (DC). Complications such as vascular ectasias causing gastrointestinal bleeding, pulmonary arteriovenous malformations, and retinal vascular abnormalities significantly affect the quality of life of our patients but we know very little about their cause(s) or approaches to clinical management. This workshop was held in conjunction with a meeting of the Clinical Care Consortium of Telomere-associated Ailments (CCCTAA) which included further discussions about new studies and potentially clinical trial development, consortium funding, DC registry, and future goals.


Video-Based Communal Data Collection & Coding: Advancing the Science of Infant Learning & Development
This workshop was conducted as part of the Play & Learning Across a Year Play project at New York University. Play is the primary context for infant learning and is foundational for all domains of healthy development—cognition, language, social interaction, motor action, and emotion. Before children begin formal schooling, play occupies nearly all of their waking day. In the first years of life, play provides an unparalleled window into typical and atypical patterns of development, and it is an ideal context for understanding development in children around the globe. Video uniquely captures the nuances and details of natural behavior and the surrounding context, and video can be used and reused by experts in multiple domains. The Play & Learning Across A Year (PLAY) project will create a large-scale shared corpus of video of natural infant play from homes in varied locations across the United States. Researchers with expertise in multiple domains of infant behavior (physical and motor development, communication and gesture, object exploration and play, emotion, gender, home environment, media) will contribute to the collection and coding of these videos, and will use the data to address questions about infant learning and development. The shared corpus will ultimately be shared with the entire research community.



Workshop on Best Practices for Studies of Diet and the Intestinal Microbiome
Many studies of the intestinal microbiome, whether in vitro, in animal models, or in humans report only minimal information on dietary components even though there is substantial evidence that diet modulates composition of the microbiota. Although many aspects of microbiome studies show improved quality control over time, this has not always extended to diet. The purpose of this workshop to improve rigor and reproducibility in research on the colonic microbiome, identify important dietary information that should be reported and parameters to consider in design of studies, particularly for clinical studies on diet and the intestinal microbiome. A summary for the research community will be published in a peer-reviewed journal.

NIH Participants: NIDDK, ODS
Other Participants: USDA


Workshop on Developing Precision Medicine Approaches to the Treatment of Severe Obesity in Adolescents: Research Gaps and Opportunities
This workshop brought together scientists with expertise in genetics, pediatric obesity, endocrinology, epidemiology, psychology, behavioral medicine, adolescent medicine, bariatric surgery, and other disciplines to discuss and identify 1) what is known regarding the epidemiology and biopsychosocial determinants of severe obesity in adolescents, 2) what is known regarding effectiveness of treatments for severe obesity in adolescents and predictors of response, and 3) gaps and opportunities for future research to develop more effective and targeted treatments for adolescents with severe obesity. The goal of this trans-NIH workshop was to accelerate research that will identify which treatment approaches will be most beneficial for specific patients based on a better understanding of individual differences in genetic endowment, clinical, metabolic, psychological, and behavioral phenotypes, and response to environmental exposures.



This page last reviewed on May 10, 2017